Collecting Sensitive Personal Data in a Multi-Cultural Environment

Traumatic Brain Injury (TBI) has long-term effects on memory and cognitive functions. This paper discusses the challenges encountered and lessons learned from developing augmented memory aids for people with TBI. In particular, the paper discusses methodologies used to elicit potentially sensitive and personal data.

Content

Author and article information

Contributors

Annika Hinze

Claire Timpany

Judy Bowen

Carole Chang

Nicola Starkey

Hinemoa Elder

Conference

Publication date: July 2018

Publication date (Print): July 2018

Pages: 1-4

Affiliations

[1 ]University of Waikato, Hamilton, New Zealand

[2 ]University of Auckland, Auckland, New Zealand

Article

DOI: 10.14236/ewic/HCI2018.71

SO-VID: b58c3f08-5507-4a59-a9c6-f5c276213749

License:

This work is licensed under a Creative Commons Attribution 4.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/

Conference name: Proceedings of the 32nd International BCS Human Computer Interaction Conference

Conference acronym: HCI

Conference number: 32

Conference location: Belfast, UK

Conference date: 4 - 6 July 2018

Conference sponsor: Electronic Workshops in Computing (eWiC)

Conference theme: Human Computer Interaction Conference

History

Product

1477-9358 BCS Learning & Development

Self URI (article page): https://www.scienceopen.com/hosted-document?doi=10.14236/ewic/HCI2018.71

Self URI (journal page): https://ewic.bcs.org/

REFERENCES

S. Barker-ColloN. WildeV. Feigin 2008 Trends in head injury incidence in New Zealand: A hospital-based study from 1997/1998 to 2003/2004 Neuroepidemiology 32 1 32 39
C. S.-P. Chang 2017 A mobile augmented memory aid for people with traumatic brain injury Ph.D. thesis University of Waikato Hamilton, New Zealand
P. DavisR. Lay-YeeL. Dyall 2006 Quality of hospital care for Māori patients in New Zealand: retrospective cross-sectional assessment The Lancet 367 9526 1920 1925
H. Elder 2013 Indigenous theory building for Māori children and adolescents with traumatic brain injury and their extend-ed family Brain Impairment 14 03 406 414
H. ElderP KerstenK. McPherson 2016 Making time, deeper connection, fuller stories, best practice Experiences of Māori and non-Māori nurse researchers Annals of Psy-chiatry and Mental Health 4 6 1079 1082
H. Elder 2017 Te Waka Kuaka and Te Waka Oranga. Working with whānau (extended families) to improve outcomes Aus-tralia and NZ Journal of Family Therapy 38 1 27-42
V. FeiginS. Barker-ColloR. KrishnamurthiA. TheadomN. Starkey 2010 Epidemiology of ischaemic stroke and traumatic brain injury Best Practice and Research Clinical Anaesthesiology 24 4 485 494
S. FergusonD. FriedlandE. Woodberry 2015 Smartphone technology: Gentle reminders of everyday tasks for those with prospective memory difficulties post-brain injury Brain Injury 29 5 1 9
E. Khong 2016 Exploring community-based health care using mobile applications. Master‟s thesis, University of Waikato
S. McCullaghA. Feinstein 2011 Cognitive changes 2 [American Psychiatric Press] 279 294
A. Schweer 2011 Augmenting Autobiographical Memory: An Approach Based on Cognitive Psychology Ph.D. thesis Uni-versity of Waikato, Hamilton New Zealand

Comments

Comment on this article

[1] S. Barker-ColloN. WildeV. Feigin 2008 Trends in head injury incidence in New Zealand: A hospital-based study from 1997/1998 to 2003/2004 Neuroepidemiology 32 1 32 39

[2] C. S.-P. Chang 2017 A mobile augmented memory aid for people with traumatic brain injury Ph.D. thesis University of Waikato Hamilton, New Zealand

[3] P. DavisR. Lay-YeeL. Dyall 2006 Quality of hospital care for Māori patients in New Zealand: retrospective cross-sectional assessment The Lancet 367 9526 1920 1925

[4] H. Elder 2013 Indigenous theory building for Māori children and adolescents with traumatic brain injury and their extend-ed family Brain Impairment 14 03 406 414

[5] H. ElderP KerstenK. McPherson 2016 Making time, deeper connection, fuller stories, best practice Experiences of Māori and non-Māori nurse researchers Annals of Psy-chiatry and Mental Health 4 6 1079 1082

[6] H. Elder 2017 Te Waka Kuaka and Te Waka Oranga. Working with whānau (extended families) to improve outcomes Aus-tralia and NZ Journal of Family Therapy 38 1 27-42

[7] V. FeiginS. Barker-ColloR. KrishnamurthiA. TheadomN. Starkey 2010 Epidemiology of ischaemic stroke and traumatic brain injury Best Practice and Research Clinical Anaesthesiology 24 4 485 494

[8] S. FergusonD. FriedlandE. Woodberry 2015 Smartphone technology: Gentle reminders of everyday tasks for those with prospective memory difficulties post-brain injury Brain Injury 29 5 1 9

[9] E. Khong 2016 Exploring community-based health care using mobile applications. Master‟s thesis, University of Waikato

[10] S. McCullaghA. Feinstein 2011 Cognitive changes 2 [American Psychiatric Press] 279 294

[11] A. Schweer 2011 Augmenting Autobiographical Memory: An Approach Based on Cognitive Psychology Ph.D. thesis Uni-versity of Waikato, Hamilton New Zealand

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