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      Conceptualizing citizenship in dementia: A scoping review of the literature

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          Abstract

          Citizenship has provided an important conceptual framework in dementia research and practice over the past fifteen years. To date, there has been no attempt to synthesize the multiple perspectives that have arisen in this literature. The purpose of this paper is to explore, reflect on, and contrast, the key concepts and trends in the citizenship discourse as it relates to people with dementia. Using a scoping review methodology, forty-nine articles were identified for review. Despite the use of different descriptors, thematic analysis revealed four core themes underpinning citizenship discourse: 1) the relationality of citizenship; 2) facilitated agency and autonomy; 3) attention to stigma, discrimination and exclusion; and 4) recognition of the possibilities of identity and growth. Overall, this scoping review found a major emphasis on expanding definitions of agency and autonomy to render citizenship unconditional and inclusive of the diverse life experiences of people living with dementia. Notably, there is recognition that a more intersectional lens for embedding the subjective experience within a broader socio-political context is needed. Whilst the adoption of a citizenship lens in dementia research and practice has had real-world implications for policy and research, its exploration and use continue to be led by academics, highlighting the importance that future research involve input form people with dementia.

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          Most cited references64

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          Using thematic analysis in psychology

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            Scoping studies: towards a methodological framework

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              Embodied selfhood in Alzheimer's disease: Rethinking person-centred care

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                Author and article information

                Journal
                Dementia (London)
                Dementia (London)
                spdem
                DEM
                Dementia (London, England)
                SAGE Publications (Sage UK: London, England )
                1471-3012
                1741-2684
                29 June 2022
                October 2022
                : 21
                : 7
                : 2310-2350
                Affiliations
                [1-14713012221111014]School of Social Work, Ringgold 8166, universityUniversity of British Columbia; , Vancouver, BC, Canada
                [2-14713012221111014]Centre for Research on Personhood in Dementia, Ringgold 8166, universityUniversity of British Columbia; , Vancouver, BC, Canada
                [3-14713012221111014]Department of Gerontology, Ringgold 1763, universitySimon Fraser University; , Vancouver, BC, Canada
                [4-14713012221111014]School of Nursing, Ringgold 8166, universityUniversity of British Columbia; , Vancouver, BC, Canada
                Author notes
                [*]Deborah O'Connor, School of Social Work, University of British Columbia, 2080 West Mall, Vancouver, BC V6T 1Z2, Canada. Email: Deborah.oconnor@ 123456ubc.ca
                Author information
                https://orcid.org/0000-0002-1164-0324
                https://orcid.org/0000-0002-9323-5620
                https://orcid.org/0000-0001-5770-3776
                https://orcid.org/0000-0003-3025-0396
                Article
                10.1177_14713012221111014
                10.1177/14713012221111014
                9483710
                35768395
                06336c3c-a87b-46f9-9b42-f6395cb09efe
                © The Author(s) 2022

                This article is distributed under the terms of the Creative Commons Attribution 4.0 License ( https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

                History
                Categories
                Review Articles
                Custom metadata
                ts10

                dementia,citizenship,scoping review,human rights,agency and autonomy

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