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ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research.
Bryce B Reeve
1 ,
Kathleen W Wyrwich ,
Albert W Wu ,
Galina Velikova ,
Caroline B Terwee ,
Claire F Snyder ,
Carolyn Schwartz ,
Dennis A Revicki ,
Carol M Moinpour ,
Lori D McLeod ,
Jessica C Lyons ,
William R Lenderking ,
Pamela S Hinds ,
Ron D Hays ,
Joanne Greenhalgh ,
Richard Gershon ,
David Feeny ,
Peter M Fayers ,
David Cella ,
Michael Brundage ,
Sara Ahmed ,
Neil K Aaronson ,
Zeeshan Butt
Oct 2013
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Abstract
An essential aspect of patient-centered outcomes research (PCOR) and comparative effectiveness research (CER) is the integration of patient perspectives and experiences with clinical data to evaluate interventions. Thus, PCOR and CER require capturing patient-reported outcome (PRO) data appropriately to inform research, healthcare delivery, and policy. This initiative's goal was to identify minimum standards for the design and selection of a PRO measure for use in PCOR and CER.