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      The role of medical registries, potential applications and limitations

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          Abstract

          Medical registries provide highly reliable data, challenged hierarchically only by randomized controlled trials. Although registries have been used in several fields of medicine for more than a century and a half, their key role is frequently overlooked and poorly recognized. Medical registries have evolved from calculating basic epidemiological data (incidence, prevalence, mortality) to diverse applications in disease prevention, early diagnosis and screening programs, treatment response, health care planning, decision making and disease control programs. Implementing, maintaining and running a medical registry requires substantial effort. Developing the registry represents a complex task and is one of the major barriers in widespread use of registries. Medical registries have potential to evolve to a next generation by taking benefit from recent semantic web technology developments. This paper is aimed at providing a summary of the basic information available on medical registries and to highlight the progress and potential applications in this field.

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          Evaluation of data quality in the cancer registry: principles and methods. Part I: comparability, validity and timeliness.

          The value of the modern cancer registry and its ability to carry out cancer control activities rely heavily on the underlying quality of its data and the quality control procedures in place. This two-part review provides an update of the practical aspects and techniques for addressing data quality at the cancer registry. This first installment of the review examines the factors influencing three of the four key aspects, namely, the comparability, validity and timeliness of cancer registry data. Comparability of cancer data may be established through a comprehensive review of the registration routines in place. Validity is examined via numerical indices of that permit comparisons with other registries, or, within a registry, over time, or with respect to specified subsets of cases. There are no international guidelines for timeliness at present, although specific standards for the abstraction and reporting of registry have been set out by certain organisations.
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            Cancer Incidence in Five Continents: Inclusion criteria, highlights from Volume X and the global status of cancer registration.

            Cancer Incidence in Five Continents (CI5), a longstanding collaboration between the International Agency for Research on Cancer and the International Association of Cancer Registries, serves as a unique source of cancer incidence data from high-quality population-based cancer registries around the world. The recent publication of Volume X comprises cancer incidence data from 290 registries covering 424 populations in 68 countries for the registration period 2003-2007. In this article, we assess the status of population-based cancer registries worldwide, describe the techniques used in CI5 to evaluate their quality and highlight the notable variation in the incidence rates of selected cancers contained within Volume X of CI5. We also discuss the Global Initiative for Cancer Registry Development as an international partnership that aims to reduce the disparities in availability of cancer incidence data for cancer control action, particularly in economically transitioning countries, already experiencing a rapid rise in the number of cancer patients annually.
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              Global epidemiology of tuberculosis

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                Author and article information

                Journal
                Med Pharm Rep
                Med Pharm Rep
                Med Pharm Rep
                Medicine and Pharmacy Reports
                Iuliu Hatieganu University of Medicine and Pharmacy
                2602-0807
                2668-0572
                January 2019
                15 January 2019
                : 92
                : 1
                : 7-14
                Affiliations
                [1 ]Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania
                [2 ]Department of Pathology, “Prof. Dr. Ion Chiricuta” Oncology Institute, Cluj-Napoca, Romania
                [3 ]Department of Information Technology, “Prof. Dr. Ion Chiricuta” Oncology Institute, Cluj-Napoca Cluj-Napoca, Romania
                [4 ]Department of Medical Genetics, Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania
                [5 ]Department of Genetic Explorations, “Prof. Dr. Ion Chiricuta” Oncology Institute, Cluj-Napoca Cluj-Napoca, Romania
                [6 ]Department of Surgical and Gynecological Oncology, Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania
                [7 ]Department of Surgery, “Prof. Dr. Ion Chiricuta” Oncology Institute, Cluj-Napoca, Romania
                [8 ]Department of Medical Informatics and Biostatistics, Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca, Romania
                [9 ]Department of Internal Medicine, “Prof. Dr. Ion Chiricuta” Oncology Institute, Cluj-Napoca Cluj-Napoca, Romania
                Author notes
                Address for correspondence: pop.bogdan21@ 123456gmail.com
                Article
                cm-92-7
                10.15386/cjmed-1015
                6448488
                30957080
                15b6d52e-29a4-4ee1-bcae-2255837bd7bf
                Copyright @ 2019

                This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License

                History
                : 13 March 2018
                : 19 July 2018
                : 23 July 2018
                Categories
                Review
                Epidemiology

                registries,data accuracy,quality assurance,health care,registries/standards,public health

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