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      Quality of life of informal caregivers of cervical cancer patients: analysis of anxiety and spirituality Translated title: La calidad de vida de los cuidadores informales de las pacientes con cáncer de cuello uterino: análisis de la ansiedad y la espiritualidad

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          Abstract

          ABSTRACT This study analyzed the association and contribution of anxiety, spirituality, coping and burden to quality of life (QOL) in informal caregivers of patients with cervical cancer. The sample included 119 informal caregivers of patients undergoing treatment for cervical cancer at a reference hospital in the state of Amazonas, Brazil. The caregivers answered instruments that assessed sociodemographic variables, burden, coping, anxiety, spirituality, and QOL. Female caregivers used more spirituality (reflection and positive interpretation) than male caregivers. The number of hours of care dedicated by caregivers was positively correlated with their burden. Burden had a positive association with anxiety and was negatively associated with the caregivers’ mental QOL. Spirituality (reflection and positive interpretation) moderated the relationship between anxiety and caregiver’s mental QOL. The results showed the importance of interprofessional teams in oncology to intervene with caregivers, focusing on psychological morbidity to prevent burden and the spirituality as a coping strategy.

          Translated abstract

          RESUMEN Este estudio analiza la asociación y contribución de la ansiedad, espiritualidad, afrontamiento y sobrecarga con la calidad de vida (CV) en cuidadores informales de pacientes con cáncer de cuello uterino. La muestra fue de 119 cuidadores informales de pacientes en tratamiento de cáncer de cuello uterino en un hospital de referencia en el estado de Amazonas, Brasil. Los cuidadores cumplimentaron cuestionarios que evaluaban variables sociodemográficas, sobrecarga, afrontamiento, ansiedad, espiritualidad y calidad de vida. Las mujeres cuidadoras utilizaron más espiritualidad (reflexión e interpretación positiva) que los varones cuidadores. El número de horas de atención dedicadas por los cuidadores se correlacionaba positivamente con su sobrecarga. Esta tuvo una asociación positiva con la ansiedad, asociándose negativamente con la calidad de vida mental de los cuidadores. La espiritualidad (reflexión e interpretación positiva) moderaba la relación entre la ansiedad y la calidad de vida mental del cuidador. Los resultados mostraron la importancia de que los equipos interprofesionales de oncología intervengan con los cuidadores, centrándose en la morbilidad psicológica para prevenir la sobrecarga, así como en la espiritualidad como estrategia de afrontamiento.

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          The hospital anxiety and depression scale.

          A self-assessment scale has been developed and found to be a reliable instrument for detecting states of depression and anxiety in the setting of an hospital medical outpatient clinic. The anxiety and depressive subscales are also valid measures of severity of the emotional disorder. It is suggested that the introduction of the scales into general hospital practice would facilitate the large task of detection and management of emotional disorder in patients under investigation and treatment in medical and surgical departments.
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            Discovering Statistics Using SPSS

            Andy Field (2009)
            <p>Written in his vivid and entertaining style, Andy Field provides students with everything they need to understand, use and report statistics—at every level—in the <b>Third Edition</b> of <b>Discovering Statistics Using SPSS</b>. Retaining the strong pedagogy from previous editions, he makes statistics meaningful by including playful examples from everyday student life (among other places), creating a gateway into the often intimidating world of statistics. In the process, he presents an opportunity for students to ground their knowledge of statistics through the use of SPSS.<br><br></p>
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              Brazilian version of the Burden Interview scale for the assessment of burden of care in carers of people with mental illnesses

              INTRODUCTION: Burden on informal carers of people with mental or physical illnesses has been studied for a long time. Several standardized instruments for the assessment of carer's burden have been developed. The Burden Interview is one of the most frequently used instruments. The aim of the present study is to examine the internal consistency and validity of the Brazilian version of the Burden Interview, designed to examine the burden in carers of individuals with mental illnesses. METHODS: Carers of patients with a diagnosis of depression, aged 60 or over, were assessed for burden (Burden Interview), emotional distress (SRQ-20) and their perception of patients' behavioral and mood disturbances (Behavioral and Mood Disturbance Scale - BMD). Socio-demographic information of patients and carers was collected with a standardized form. The reliability of the Burden Interview was assessed through its internal consistency. Construct validity was assessed through the exam of the associations of carers' burden with their perception of patients' behavioral and mood disturbances, and the carers' burden with carers' distress. RESULTS: Eighty-two carers of elderly patients with depression were included, being forty-eight (58,5%) women. The internal consistency was good, with a Cronbach's alpha of 0.87. The associations between total scores of the Burden Interview and total scores of the SRQ-20 (r=0.37, p=0.001), and between total scores of the Burden Interview with total scores of BMD (r=0.54, p=0.001) were strong, and similar to other studies that examined those associations, indicating a good construct validity of the Brazilian version of the Burden Interview. DISCUSSION: The Brazilian version of the Burden Interview is a standardized and valid instrument that can be used in the study of the impact of mental and physical illnesses on informal carers.
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                Author and article information

                Journal
                clinsa
                Clínica y Salud
                Clínica y Salud
                Colegio Oficial de la Psicología de Madrid (Madrid, Madrid, Spain )
                1130-5274
                2174-0550
                2022
                : 33
                : 2
                : 65-71
                Affiliations
                [01] Manaus orgnameFederal University of Amazonas Brazil
                [02] Braga orgnameUniversity of Minho Portugal
                [03] Manaus orgnameAmazonas State University Brazil
                Article
                S1130-52742022000200003 S1130-5274(22)03300200003
                10.5093/clysa2022a6
                1cbdc9ba-3967-46e6-99f8-ddbde7c7616a

                This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

                History
                : 20 October 2021
                : 13 March 2021
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 47, Pages: 7
                Product

                SciELO Spain

                Categories
                Research Article

                Cáncer de cuello uterino,Ansiedad,Espiritualidad,Cuidadores informales,Calidad de vida,Cervical cancer,Anxiety,Spirituality,Informal caregivers,Quality of life

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