14
views
0
recommends
+1 Recommend
1 collections
    0
    shares
      • Record: found
      • Abstract: found
      • Article: found
      Is Open Access

      Profile of technology-dependent children in Ribeirão Preto-SP Translated title: Perfil de crianças dependentes de tecnologia no municipio de Ribeirão Preto-SP

      research-article

      Read this article at

      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          The aim of this descriptive and exploratory research with a quantitative approach was to characterize technology-dependent children living in Ribeirão Preto - SP regarding gestation and birth conditions, origin of the special health needs and care demands. Participants were 102 mothers or responsible caregivers. Data were collected between January and April 2011 through the application of a form during home visits. The results revealed that 57% of the children are male; the predominant age range was between 1 and 4 years; 7.8% of the mothers had no prenatal follow-up; 96% were born in hospitals; 63.7% through c-section and, in 29.3% of cases, the children were premature. As for the origin of the special health needs, 65.7% had some congenital problem, 30.4% experienced problems during delivery and/or in the neonatal period and 30.4% experienced problems during the lifetime, defined as acquired causes. Regarding special care demands, all children display technological care demands, 92 need medication care, 74 developmental care and 102 modified habitual care. The study appoints relevant data to broaden these clients' visibility in official rates and public policies, so as to guarantee qualified and comprehensive care delivery.

          Translated abstract

          Estudo descritivo, exploratório, com abordagem quantitativa que objetivou caracterizar crianças dependentes de tecnologia, residentes em Ribeirão Preto - SP, com relação às condições de gestação e nascimento, origem das necessidades especiais de saúde e demandas de cuidados. Participaram 102 mães ou responsáveis. Os dados foram obtidos no período de janeiro a abril de 2011, mediante aplicação de formulário, durante visita domiciliar. Os resultados revelaram que 57% das crianças são do sexo masculino; a faixa etária predominante foi de 1 a 4 anos; 7,8% das mães não fizeram acompanhamento pré-natal; 96% nasceram em instituições hospitalares; 63,7% de parto cesárea e a prematuridade ocorreu em 29,3% dos casos. Quanto à origem das necessidades especiais de saúde, 65,7% possuíam algum problema congênito, 30,4% tiveram intercorrências durante o parto e ou no período neonatal e 30,4% apresentaram intercorrências ao longo da vida, definidas como causas adquiridas. Quanto às demandas de cuidados especiais, todas apresentam demanda de cuidado tecnológico, 92 necessitam de cuidado medicamentoso, 74 requerem cuidado de desenvolvimento e 102 cuidados habituais modificados. O estudo aponta dados relevantes para ampliar a visibilidade dessa clientela nas taxas oficiais e nas políticas públicas de forma a assegurar uma assistência qualificada e integral.

          Related collections

          Most cited references32

          • Record: found
          • Abstract: not found
          • Article: not found

          Technology-dependent children and their families: a review

            Bookmark
            • Record: found
            • Abstract: not found
            • Article: not found

            Saúde Brasil 2004: uma análise da situação de saúde

            (2004)
              Bookmark
              • Record: found
              • Abstract: found
              • Article: not found

              Parent or nurse? The experience of being the parent of a technology-dependent child.

              This paper reports a study exploring parents' experiences of caring for a child who is dependent on medical technology, and in particular of performing clinical procedures on their own children. A group of children with a continuing need for the support of medical technology have emerged in community settings as a result of medical advances and government policies. Caring for these children has a significant social and emotional impact on parents, because of their specialized and intensive care needs. Obtaining appropriate and coordinated home support services is problematic. Grounded theory techniques were used, and in-depth interviews were conducted with the parents of 24 children. Parents' accounts revealed that their constructions of parenting were shaped by the nature of their role in caring for their child and by the transformation of their homes by medical equipment and personnel. They described themselves as having a role that had both parenting and nursing dimensions. Parents managed this tension and defined their role and relationship to their child to be primarily one of parenting by differentiating parental care-giving and its underpinning knowledge from that of professionals, particularly nurses. Parenting a technology-dependent child alters the meaning of parenting. Professionals need to recognize that providing care has a substantial emotional dimension for parents, and that they need opportunities to discuss their feelings about caregiving and what it means for their parenting identity and their relationship with their child. A key professional nursing role will be giving emotional support and supporting parents' coping strategies. Parents' perceptions of nurses raise questions about whether nurses' caregiving is individualized to the needs of the child and family, and whether parental expertise is recognized.
                Bookmark

                Author and article information

                Contributors
                Role: ND
                Role: ND
                Role: ND
                Journal
                rbcdh
                Revista brasileira de crescimento e desenvolvimento humano
                Rev. bras. crescimento desenvolv. hum.
                Centro de Estudos de Crescimento e Desenvolvimento do Ser Humano (São Paulo )
                0104-1282
                2012
                : 22
                : 3
                : 291-296
                Affiliations
                [1 ] University of São Paulo at Ribeirão Preto College of Nursing
                Article
                S0104-12822012000300003
                2027cb83-2dcc-41f6-b14a-1abe2ad383c6

                http://creativecommons.org/licenses/by/4.0/

                History
                Categories
                MULTIDISCIPLINARY SCIENCES

                pediatric nursing,child care,chronic illness,enfermagem Pediátrica,cuidado da criança,doença crônica

                Comments

                Comment on this article