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      Knowledge and Practice of Patients’ Data Sharing and Confidentiality Among Nurses in Jordan

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          Abstract

          Background

          The key patient rights entail respecting human decency, receiving healthcare services of high-quality, the right to information, the initial agreement of the patient to medical intervention, respecting privacy and personal life, and sustaining care and treatment. This study aims to survey the knowledge and practice of nurses in various healthcare industries toward sharing and confidentiality of patients’ data.

          Methods

          A descriptive cross-sectional design was employed through an online survey from May to June 2020. The authors sent a developed tool containing 19 statements reflecting the understanding of nurses’ knowledge and practice of privacy and sharing of data required to safeguard patient privacy. A total of 800 nurses agreed to participate in the study out of 1000 nurses.

          Results

          Roughly, all participants agreed that junior nurses should participate in a data sharing and confidentiality course before engaging in practice. Regarding institution policies for data sharing and protection, many nurses agreed that there are special recommendations and instructions from the institution in which they work to exchange patient information among nurses and the medical staff. The predictors of sharing practices and confidentiality among nurses include age, gender, marriage status, and attending a security course before practice. Young age, female, not attending a data sharing course, and single nurses are less engaging with data sharing and confidentiality of the patients for unauthorized patients.

          Conclusion

          A significant proportion of the staff had appropriate practices that ensured data security. However, practices that ensure patient confidentiality in the aspects of access, sharing, and transferring of patient data need improvement. Training is essential since it will have a beneficial relationship with knowledge, opinions, views, and actions. Thus, planning continuous training on policies and regulations about data safety and privacy may assist in improving healthcare setting practices.

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          Most cited references26

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          Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation

          Key Points Question Do the privacy policies of popular smartphone applications (apps) for depression and smoking cessation describe accurately whether data will be processed by commercial third parties? Findings In this cross-sectional study of 36 top-ranked apps for depression and smoking cessation available in public app stores, 29 transmitted data to services provided by Facebook or Google, but only 12 accurately disclosed this in a privacy policy. Meaning Health care professionals prescribing apps should not rely on disclosures about data sharing in health app privacy policies but should reasonably assume that data will be shared with commercial entities whose own privacy practices have been questioned and, if possible, should consider only apps with data transmission behaviors that have been subject to direct scrutiny.
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            Security and privacy in electronic health records: a systematic literature review.

            To report the results of a systematic literature review concerning the security and privacy of electronic health record (EHR) systems.
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              Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

              Background Electronic health records are widely acknowledged to provide an important opportunity to anonymize patient-level health care data and collate across populations to support research. Nonetheless, in the wake of public and policy concerns about security and inappropriate use of data, conventional approaches toward data governance may no longer be sufficient to respect and protect individual privacy. One proposed solution to improve transparency and public trust is known as Dynamic Consent, which uses information technology to facilitate a more explicit and accessible opportunity to opt out. In this case, patients can tailor preferences about whom they share their data with and can change their preferences reliably at any time. Furthermore, electronic systems provide opportunities for informing patients about data recipients and the results of research to which their data have contributed. Objective To explore patient perspectives on the use of anonymized health care data for research purposes. To evaluate patient perceptions of a Dynamic Consent model and electronic system to enable and implement ongoing communication and collaboration between patients and researchers. Methods A total of 26 qualitative interviews and three focus groups were conducted that included a video presentation explaining the reuse of anonymized electronic patient records for research. Slides and tablet devices were used to introduce the Dynamic Consent system for discussion. A total of 35 patients with chronic rheumatic disease with varying levels of illness and social deprivation were recruited from a rheumatology outpatient clinic; 5 participants were recruited from a patient and public involvement health research network. Results Patients were supportive of sharing their anonymized electronic patient record for research, but noted a lack of transparency and awareness around the use of data, making it difficult to secure public trust. While there were general concerns about detrimental consequences of data falling into the wrong hands, such as insurance companies, 39 out of 40 (98%) participants generally considered that the altruistic benefits of sharing health care data outweighed the risks. Views were mostly positive about the use of an electronic interface to enable greater control over consent choices, although some patients were happy to share their data without further engagement. Participants were particularly enthusiastic about the system as a means of enabling feedback regarding data recipients and associated research results, noting that this would improve trust and public engagement in research. This underlines the importance of patient and public involvement and engagement throughout the research process, including the reuse of anonymized health care data for research. More than half of patients found the touch screen interface easy to use, although a significant minority, especially those with limited access to technology, expressed some trepidation and felt they may need support to use the system. Conclusions Patients from a range of socioeconomic backgrounds viewed a digital system for Dynamic Consent positively, in particular, feedback about data recipients and research results. Implementation of a digital Dynamic Consent system would require careful interface design and would need to be located within a robust data infrastructure; it has the potential to improve trust and engagement in electronic medical record research.
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                Author and article information

                Journal
                J Multidiscip Healthc
                J Multidiscip Healthc
                jmdh
                jmulthealth
                Journal of Multidisciplinary Healthcare
                Dove
                1178-2390
                16 September 2020
                2020
                : 13
                : 935-942
                Affiliations
                [1 ]Department of Maternal and Child Health, Jordan University of Science and Technology , Irbid 22110, Jordan
                [2 ]Department of Clinical Pharmacy, Jordan University of Science and Technology , Irbid 22110, Jordan
                [3 ]Department of Basic Medical Sciences, Faculty of Medicine, Yarmouk University , Irbid, Jordan
                Author notes
                Correspondence: Sawsan Abuhammad Email shabuhammad@just.edu.jo
                Author information
                http://orcid.org/0000-0001-5817-8950
                http://orcid.org/0000-0002-2808-5099
                http://orcid.org/0000-0002-2919-1280
                Article
                269511
                10.2147/JMDH.S269511
                7502382
                32982270
                2c4d86cf-9f5e-48ec-97a1-b0074841d442
                © 2020 Abuhammad et al.

                This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License ( http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms ( https://www.dovepress.com/terms.php).

                History
                : 26 June 2020
                : 17 August 2020
                Page count
                Figures: 0, Tables: 3, References: 32, Pages: 8
                Categories
                Original Research

                Medicine
                nurse,confidentiality,data sharing,privacy
                Medicine
                nurse, confidentiality, data sharing, privacy

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