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      Translation and adaptation of the sleep apnea quality of life index (SAQLI) to Brazilian Portuguese Translated title: Tradução e adaptação cultural do questionário de qualidade de vida (SAQLI) para o português brasileiro

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          ABSTRACT

          Background

          Obstructive sleep apnea syndrome (OSAS) is characterized by episodes of upper airway obstruction during sleep, with a risk of cardiovascular and cerebrovascular diseases. There is no tool in Brazil to measure the impact of treatment on patients with OSAS.

          Objective

          To translate and culturally adapt the Sleep Apnea Quality of Life Index (SAQLI) into Brazilian Portuguese.

          Methods

          The translation and cultural adaptation were carried out in five steps: translation, synthesis of the translations, back translation, review committee and pretesting.

          Results

          A version of a culturally compatible SAQLI was constructed after lexical changes, along with changes to the sentence structures, visual format, instructions and cards. The essence of the questionnaire and its social, emotional, and disease impact in treatment measures was maintained, with 80% understanding.

          Conclusions

          The questionnaire was translated and adapted culturally to Brazilian Portuguese, and presented good comprehension in the study population.

          RESUMO

          Antecedentes

          A síndrome da apneia obstrutiva do sono (SAOS) é caracterizada por episódios de obstrução da via aérea superior durante o sono, com risco para doenças cardiovasculares e cerebrovasculares. Não há ferramenta no Brasil para medir o impacto do tratamento em pacientes com SAOS.

          Objetivo

          Traduzir e adaptar culturalmente o Índice de Qualidade de Vida em Apneia do Sono (SAQLI) para o português brasileiro.

          Métodos

          A tradução e adaptação cultural foram realizadas em cinco etapas: tradução, síntese das traduções, retrotradução, comitê de revisão e pré-teste.

          Resultados

          Uma versão de SAQLI culturalmente compatível foi construída após mudanças lexicais, bem como mudanças nas estruturas das frases, formato visual, instruções e cartões, mantendo a essência do questionário e seu impacto social, emocional e da doença nas medidas de tratamento, com 80% de compreensão.

          Conclusões

          O questionário foi traduzido e adaptado culturalmente para o português brasileiro apresentando bom índice de compreensão na população estudada.

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          Most cited references27

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          Guidelines for the Process of Cross-Cultural Adaptation of Self-Report Measures

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            Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines

            Clinicians and researchers without a suitable health-related quality of life (HRQOL) measure in their own language have two choices: (1) to develop a new measure, or (2) to modify a measure previously validated in another language, known as a cross-cultural adaptation process. We propose a set of standardized guidelines for this process based on previous research in psychology and sociology and on published methodological frameworks. These guidelines include recommendations for obtaining semantic, idiomatic, experiential and conceptual equivalence in translation by using back-translation techniques and committee review, pre-testing techniques and re-examining the weight of scores. We applied these guidelines to 17 cross-cultural adaptation of HRQOL measures identified through a comprehensive literature review. The reporting standards varied across studies but agreement between raters in their ratings of the studies was substantial to almost perfect (weighted kappa = 0.66-0.93) suggesting that the guidelines are easy to apply. Further research is necessary in order to delineate essential versus optional steps in the adaptation process.
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              Increased prevalence of sleep-disordered breathing in adults.

              Sleep-disordered breathing is a common disorder with a range of harmful sequelae. Obesity is a strong causal factor for sleep-disordered breathing, and because of the ongoing obesity epidemic, previous estimates of sleep-disordered breathing prevalence require updating. We estimated the prevalence of sleep-disordered breathing in the United States for the periods of 1988-1994 and 2007-2010 using data from the Wisconsin Sleep Cohort Study, an ongoing community-based study that was established in 1988 with participants randomly selected from an employed population of Wisconsin adults. A total of 1,520 participants who were 30-70 years of age had baseline polysomnography studies to assess the presence of sleep-disordered breathing. Participants were invited for repeat studies at 4-year intervals. The prevalence of sleep-disordered breathing was modeled as a function of age, sex, and body mass index, and estimates were extrapolated to US body mass index distributions estimated using data from the National Health and Nutrition Examination Survey. The current prevalence estimates of moderate to severe sleep-disordered breathing (apnea-hypopnea index, measured as events/hour, ≥15) are 10% (95% confidence interval (CI): 7, 12) among 30-49-year-old men; 17% (95% CI: 15, 21) among 50-70-year-old men; 3% (95% CI: 2, 4) among 30-49-year-old women; and 9% (95% CI: 7, 11) among 50-70 year-old women. These estimated prevalence rates represent substantial increases over the last 2 decades (relative increases of between 14% and 55% depending on the subgroup).
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                Author and article information

                Journal
                Arq Neuropsiquiatr
                Arq Neuropsiquiatr
                anp
                Arquivos de Neuro-Psiquiatria
                Academia Brasileira de Neurologia - ABNEURO
                0004-282X
                1678-4227
                08 August 2022
                June 2022
                : 80
                : 6
                : 616-619
                Affiliations
                [1 ]Universidade Federal de São Paulo, Escola Paulista de Medicina, Departamento de Neurologia, São Paulo SP, Brazil.
                [2 ]Hospital São Paulo, Laboratório de Sono, São Paulo SP, Brazil.
                [3 ]Laboratório de Pesquisa Neuro-Sono, São Paulo SP, Brazil.
                Author notes
                [Correspondence: ] Luciane Carvalho; Email: neuro.sono.unifesp@ 123456gmail.com .

                Conflict of interest: There is no conflict of interest to declare.

                Authors’ contributions: APFP: conception, planning, acquisition of patients and/or data, interpretation of the results and preparation of the manuscript; VRF: planning; LFP, MAM, GFP, LBCC: review committee; GFP, LBCC: conception, planning.

                Author information
                http://orcid.org/0000-0003-0530-6001
                http://orcid.org/0000-0003-2086-0801
                http://orcid.org/0000-0003-3579-4077
                http://orcid.org/0000-0002-3383-8198
                http://orcid.org/0000-0001-5499-4950
                http://orcid.org/0000-0003-1733-3023
                Article
                10.1590/0004-282X-ANP-2021-0275
                9387197
                35946712
                2ccd0959-8097-4766-a39a-9f0bc3c727c8

                This is an open-access article distributed under the terms of the Creative Commons Attribution License

                History
                : 24 August 2021
                : 29 September 2021
                : 02 October 2021
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 24, Pages: 4
                Categories
                Article

                quality of life,sleep apnea, obstructive,translating,qualidade de vida,apneia obstrutiva do sono,tradução

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