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      Can capabilities be self-reported? A think aloud study

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          Abstract

          Direct assessment of capability to function may be useful in healthcare settings, but poses many challenges. This paper reports a first investigation of the feasibility of individuals self-reporting their capabilities and the meaning of the responses. The study was conducted in 2010, using think-aloud interviews with participants in the UK. The findings of the study suggest that the majority of participants were able to comprehend questions about their capabilities, felt able to judge their own capability wellbeing and provided responses in line with this judgement. In a number of cases, for example in relation to ‘autonomy’, participants highlighted that their capability was potentially greater than their functioning. The findings also show varying interpretations of the capability concept, with some participants finding the capability concept unintuitive in relation to specific aspects of life (in particular, ‘attachment’). The findings suggest that guiding individuals in the process of identifying their capabilities may be important in generating consistent responses to capability questions.

          Highlights

          • Think-aloud interviews were used, in the UK, to study the response to capability wellbeing questions.

          • Most people felt able to judge their capabilities and made few obvious ‘errors’ in doing so.

          • The capability concept was unintuitive for some people in some aspects of their life.

          • Occasional divergence between capability and functioning was reported.

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          Most cited references34

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          EuroQol: the current state of play.

          R. Brooks (1996)
          The EuroQol Group first met in 1987 to test the feasibility of jointly developing a standardised non-disease-specific instrument for describing and valuing health-related quality of life. From the outset the Group has been multi-country, multi-centre, and multi-disciplinary. The EuroQol instrument is intended to complement other forms of quality of life measures, and it has been purposefully developed to generate a cardinal index of health, thus giving it considerable potential for use in economic evaluation. Considerable effort has been invested by the Group in the development and valuation aspects of health status measurement. Earlier work was reported upon in 1990; this paper is a second 'corporate' effort detailing subsequent developments. The concepts underlying the EuroQol framework are explored with particular reference to the generic nature of the instrument. The valuation task is reviewed and some evidence on the methodological requirements for measurement is presented. A number of special issues of considerable interest and concern to the Group are discussed: the modelling of data, the duration of health states and the problems surrounding the state 'dead'. An outline of some of the applications of the EuroQol instrument is presented and a brief commentary on the Group's ongoing programme of work concludes the paper.
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            Integrating response shift into health-related quality of life research: a theoretical model.

            Patients confronted with a life-threatening or chronic disease are faced with the necessity to accommodate to their illness. An important mediator of this adaptation process is 'response shift' which involves changing internal standards, values and the conceptualization of quality of life (QOL). Integrating response shift into QOL research would allow a better understanding of how QOL is affected by changes in health status and would direct the development of reliable and valid measures for assessing changes in QOL. A theoretical model is proposed to clarify and predict changes in QOL as a result of the interaction of: (a) a catalyst, referring to changes in the respondent's health status; (b) antecedents, pertaining to stable or dispositional characteristics of the individual (e.g. personality); (c) mechanisms, encompassing behavioral, cognitive, or affective processes to accommodate the changes in health status (e.g. initiating social comparisons, reordering goals); and (d) response shift, defined as changes in the meaning of one's self-evaluation of QOL resulting from changes in internal standards, values, or conceptualization. A dynamic feedback loop aimed at maintaining or improving the perception of QOL is also postulated. This model is illustrated and the underlying assumptions are discussed. Future research directions are outlined that may further the investigation of response shift, by testing specific hypotheses and predictions about the QOL domains and the clinical and psychosocial conditions that would potentiate or prevent response shift effects.
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              Human Rights and Capabilities

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                Author and article information

                Contributors
                Journal
                Soc Sci Med
                Soc Sci Med
                Social Science & Medicine (1982)
                Pergamon
                0277-9536
                1873-5347
                1 June 2013
                June 2013
                : 87
                : 100
                : 116-122
                Affiliations
                [1]Health Economics Unit, University of Birmingham, UK
                [2]MRC Hub for Trials Methodology Research, University of Birmingham, UK
                Author notes
                [* ]Corresponding author. Public Health Building, University of Birmingham, Edgbaston, Birmingham B15 2TT, UK. Tel.: +44 121 4158483; fax: +44 121 4148969. h.aljanabi@ 123456bham.ac.uk
                Article
                SSM8907
                10.1016/j.socscimed.2013.03.035
                3664929
                23631786
                32a819d8-d696-4b2f-ab17-70c02c3b4558
                © 2013 Elsevier Ltd.

                This document may be redistributed and reused, subject to certain conditions.

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                Categories
                Article

                Health & Social care
                capability approach,eq-5d,health economics,icecap-a,outcome measurement,think-aloud,united kingdom,wellbeing

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