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      Designing and Facilitating Collaborative Research Design and Data Analysis Workshops: Lessons Learned in the Healthy Neighborhoods Study

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          Abstract

          One impediment to expanding the prevalence and quality of community-engaged research is a shortage of instructive resources for collaboratively designing research instruments and analyzing data with community members. This article describes how a consortium of community residents, grassroots community organizations, and academic and public institutions implemented collaborative research design and data analysis processes as part of a participatory action research (PAR) study investigating the relationship between neighborhoods and health in the greater Boston area. We report how nine different groups of community residents were engaged in developing a multi-dimensional survey instrument, generating and testing hypotheses, and interpreting descriptive statistics and preliminary findings. We conclude by reflecting on the importance of balancing planned strategies for building and sustaining resident engagement with improvisational facilitation that is responsive to residents’ characteristics, interests and needs in the design and execution of collaborative research design and data analysis processes.

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          Most cited references21

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          Community-based research partnerships: challenges and opportunities.

          The complexity of many urban health problems often makes them ill suited to traditional research approaches and interventions. The resultant frustration, together with community calls for genuine partnership in the research process, has highlighted the importance of an alternative paradigm. Community-based participatory research (CBPR) is presented as a promising collaborative approach that combines systematic inquiry, participation, and action to address urban health problems. Following a brief review of its basic tenets and historical roots, key ways in which CBPR adds value to urban health research are introduced and illustrated. Case study examples from diverse international settings are used to illustrate some of the difficult ethical challenges that may arise in the course of CBPR partnership approaches. The concepts of partnership synergy and cultural humility, together with protocols such as Green et al.'s guidelines for appraising CBPR projects, are highlighted as useful tools for urban health researchers seeking to apply this collaborative approach and to deal effectively with the difficult ethical challenges it can present.
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            The Three R's: How Community Based Participatory Research Strengthens the Rigor, Relevance and Reach of Science.

            In the last few decades, community based participatory research (CBPR) has emerged as an important approach that links environmental health and justice advocates with research institutions to understand and address environmental health problems. CBPR has generally been evaluated for its impact on policy, regulation, and its support of community science. However, there has been less emphasis on assessing the ways in which CBPR (re)shapes and potentially improves the scientific enterprise itself. This commentary focuses on this under-emphasized aspect of CBPR-how it can strengthen science. Using two case studies of environmental health CBPR research-the Northern California Exposure Study, and the San Joaquin Valley Drinking Water Study-we posit that CBPR helps improve the "3 R's"of science-rigor, relevance and reach-and in so doing benefits the scientific enterprise itself.
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              The promise of community-based participatory research for health equity: a conceptual model for bridging evidence with policy.

              Insufficient attention has been paid to how research can be leveraged to promote health policy or how locality-based research strategies, in particular community-based participatory research (CBPR), influences health policy to eliminate racial and ethnic health inequities. To address this gap, we highlighted the efforts of 2 CBPR partnerships in California to explore how these initiatives made substantial contributions to policymaking for health equity. We presented a new conceptual model and 2 case studies to illustrate the connections among CBPR contexts and processes, policymaking processes and strategies, and outcomes. We extended the critical role of civic engagement by those communities that were most burdened by health inequities by focusing on their political participation as research brokers in bridging evidence and policymaking.
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                Author and article information

                Journal
                Int J Environ Res Public Health
                Int J Environ Res Public Health
                ijerph
                International Journal of Environmental Research and Public Health
                MDPI
                1661-7827
                1660-4601
                24 January 2019
                February 2019
                : 16
                : 3
                : 324
                Affiliations
                [1 ]Department of Urban Studies and Planning, Massachusetts Institute of Technology, 77 Massachusetts Ave., Cambridge, MA 02139, USA; abinet@ 123456mit.edu
                [2 ]Conservation Law Foundation, 62 Summer St., Boston, MA 02110, USA; vgavin@ 123456clf.org
                [3 ]SEIU Healthcare Pennsylvania, 1500 N. 2nd St., Harrisburg, PA 17102, USA; leigh.m.carroll@ 123456gmail.com
                Author notes
                [* ]Correspondence: marcaya@ 123456mit.edu ; Tel.: +1-(617)-253-5196
                Article
                ijerph-16-00324
                10.3390/ijerph16030324
                6388393
                30682790
                3e6a2ad9-f75a-417a-8a12-9776a9a62e4b
                © 2019 by the authors.

                Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license ( http://creativecommons.org/licenses/by/4.0/).

                History
                : 06 December 2018
                : 17 January 2019
                Categories
                Article

                Public health
                participatory action research,community engagement,instrument design,data analysis,urban development,community health

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