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      Roma child participation in public health policy and practice across Europe

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          Abstract

          Roma teenagers are often excluded from participation opportunities, when they could be informing a wide range of law, policy and practice. CoE and EU recommendations make it clear that improvements in living conditions can only be achieved through active participation of Roma people. The 2018 Roma Civil Society Monitoring report reinforces that 'it is essential for Roma to be involved not only in narrowly defined 'Roma issues', but also in a wider range of topics and policies'. We address the question of what methods enable Roma children to become involved in influencing health policy and service design, focusing on the case of Bulgaria. A qualitative European survey (Feb - June 2020) in English, French, Spanish and Bulgarian identified professional perspectives on the impact of COVID-19 on children, with a focus on Roma families. Case studies of Roma children's experiences, and examples of their participation, were analysed of these case studies was conducted by the authors (combining sociological, public health and community perspectives). Accuracy of emergent findings were assessed through dialogue with survey participants. Preliminary results indicate that participatory practices that enable Roma children's participation in designing public health policy, services and responses are limited and pre-existing inequalities are deepening. However relevant isolated examples of inclusive participation were identified: information design, peer-administered questionnaires, arts-based activities, dialogue events, and campaigning in Bulgaria and beyond. Inclusive methods that enable Roma teenagers' engagement in health policy and service design are closely tied to methods used with other communities facing discrimination. However, significant structural barriers, related to economic inequalities and anti-gypsyism are additional barriers faced by some Roma children. International exchange of examples of such practices could inform future health promotion practice.

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          Author and article information

          Journal
          Eur J Public Health
          Eur J Public Health
          eurpub
          The European Journal of Public Health
          Oxford University Press
          1101-1262
          1464-360X
          September 2020
          30 September 2020
          : 30
          : Suppl 5 , Supplement: 16th World Congress on Public Health 2020 Public Health for the future of humanity: analysis, advocacy and action
          : ckaa165.1169
          Affiliations
          [ckaa165.1169-AFF1 ] School of Social Work, Care and Community, University of Central Lancashire , Preston, UK
          [ckaa165.1169-AFF2 ] Public Health Program, Open Society Foundations , Berlin, Germany
          [ckaa165.1169-AFF3 ] Trust for Social Achievement TSA, Health , Sofia, Bulgaria
          Author notes
          Article
          ckaa165.1169
          10.1093/eurpub/ckaa165.1169
          7543575
          43192813-ff9b-4708-bdfb-504fdb89a080
          © The Author(s) 2020. Published by Oxford University Press on behalf of the European Public Health Association. All rights reserved.

          This article is published and distributed under the terms of the Oxford University Press, Standard Journals Publication Model ( https://academic.oup.com/journals/pages/open_access/funder_policies/chorus/standard_publication_model)

          This article is made available via the PMC Open Access Subset for unrestricted re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the COVID-19 pandemic or until permissions are revoked in writing. Upon expiration of these permissions, PMC is granted a perpetual license to make this article available via PMC and Europe PMC, consistent with existing copyright protections.

          History
          Page count
          Pages: 1
          Categories
          Parallel Programme
          24.M. Workshop: Deprived adolescent children access to health
          AcademicSubjects/MED00860
          AcademicSubjects/SOC01210
          AcademicSubjects/SOC02610

          Public health
          Public health

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