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      Person-Generated Health Data in Women’s Health: Protocol for a Scoping Review

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          Abstract

          Background

          Due to their ability to collect person-generated health data, digital tools and connected health devices may hold great utility in disease prevention, chronic disease self-monitoring and self-tracking, as well as in tailoring information and educational content to fit individual needs. Facilitators and barriers to the use of digital health technologies vary across demographics, including sex. The “femtech” market is growing rapidly, and women are some of the largest adopters of digital health technologies.

          Objective

          This paper aims to provide the background and methods for conducting a scoping review on the use of person-generated health data from connected devices in women’s health. The objectives of the scoping review are to identify the various contexts of digital technologies in women’s health and to consolidate women’s views on the usability and acceptability of the devices.

          Methods

          Searches were conducted in the following databases: Medline, Embase, APA PsycInfo, CINAHL Complete, and Web of Science Core Collection. We included articles from January 2015 to February 2020. Screening of articles was done independently by at least two authors in two stages. Data charting is being conducted in duplicate. Results will be reported using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) checklist.

          Results

          Our search identified 9102 articles after deduplication. As of November 2020, the full-text screening stage is almost complete and data charting is in progress. The scoping review is expected to be completed by Fall 2021.

          Conclusions

          This scoping review will broadly map the literature regarding the contexts and acceptability of digital health tools for women. The results from this review will be useful in guiding future digital health and women’s health research.

          International Registered Report Identifier (IRRID)

          DERR1-10.2196/26110

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          PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation

          Adrian Aldcroft, Chantelle Garritty, Simon Lewin … (2018)
          Scoping reviews, a type of knowledge synthesis, follow a systematic approach to map evidence on a topic and identify main concepts, theories, sources, and knowledge gaps. Although more scoping reviews are being done, their methodological and reporting quality need improvement. This document presents the PRISMA-ScR (Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews) checklist and explanation. The checklist was developed by a 24-member expert panel and 2 research leads following published guidance from the EQUATOR (Enhancing the QUAlity and Transparency Of health Research) Network. The final checklist contains 20 essential reporting items and 2 optional items. The authors provide a rationale and an example of good reporting for each item. The intent of the PRISMA-ScR is to help readers (including researchers, publishers, commissioners, policymakers, health care providers, guideline developers, and patients or consumers) develop a greater understanding of relevant terminology, core concepts, and key items to report for scoping reviews.
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            Scoping studies: towards a methodological framework

            Lisa O'Malley, Hilary Arksey (2005)
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              Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015 statement

              David Moher, Larissa Shamseer, Mike Clarke … (2017)
              Systematic reviews should build on a protocol that describes the rationale, hypothesis, and planned methods of the review; few reviews report whether a protocol exists. Detailed, well-described protocols can facilitate the understanding and appraisal of the review methods, as well as the detection of modifications to methods and selective reporting in completed reviews. We describe the development of a reporting guideline, the Preferred Reporting Items for Systematic reviews and Meta-Analyses for Protocols 2015 (PRISMA-P 2015). PRISMA-P consists of a 17-item checklist intended to facilitate the preparation and reporting of a robust protocol for the systematic review. Funders and those commissioning reviews might consider mandating the use of the checklist to facilitate the submission of relevant protocol information in funding applications. Similarly, peer reviewers and editors can use the guidance to gauge the completeness and transparency of a systematic review protocol submitted for publication in a journal or other medium.
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                Author and article information

                Contributors
                Aline Talhouk:
                ORCID: https://orcid.org/0000-0001-7760-410X
                Department of Obstetrics and GynecologyUniversity of British Columbia593-828 West 10th AveVancouver, BC, V5Z 1M9Canada1 604 618 6403a.talhouk@ubc.ca
                Journal
                Journal ID (nlm-ta): JMIR Res Protoc
                Journal ID (iso-abbrev): JMIR Res Protoc
                Journal ID (publisher-id): ResProt
                Title: JMIR Research Protocols
                Publisher: JMIR Publications (Toronto, Canada )
                ISSN (Electronic): 1929-0748
                Publication date Collection: May 2021
                Publication date (Electronic): 28 May 2021
                Volume: 10
                Issue: 5
                Electronic Location Identifier: e26110
                Affiliations
                [1 ] Department of Statistics and Actuarial Science University of Waterloo Waterloo, ON Canada
                [2 ] Department of Obstetrics and Gynecology University of British Columbia Vancouver, BC Canada
                Author notes
                Corresponding Author: Aline Talhouk a.talhouk@ 123456ubc.ca
                Author information
                https://orcid.org/0000-0001-9520-0651
                https://orcid.org/0000-0001-7760-410X
                Article
                Publisher ID: v10i5e26110
                DOI: 10.2196/26110
                PMC ID: 8196349
                PubMed ID: 34047708
                SO-VID: 45a0fd02-aeff-4233-9f8e-c460193d8569
                Copyright © ©Jalisa Lynn Karim, Aline Talhouk. Originally published in JMIR Research Protocols (https://www.researchprotocols.org), 28.05.2021.
                License:

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on https://www.researchprotocols.org, as well as this copyright and license information must be included.

                History
                Date received : 27 November 2020
                Date revision requested : 22 February 2021
                Date revision received : 25 March 2021
                Date accepted : 4 April 2021
                Categories
                Subject: Protocol
                Subject: Protocol

                Keywords: digital health,women’s health,mobile health,health app,wearables,femtech,self-tracking,personalized health,person-generated health data,patient-generated health data,scoping review
                Data availability:
                Keywords: digital health, women’s health, mobile health, health app, wearables, femtech, self-tracking, personalized health, person-generated health data, patient-generated health data, scoping review

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