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      A coproduced patient and public event: An approach to developing and prioritizing ambulance performance measures

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          Abstract

          Background

          Patient and public involvement ( PPI) is recognized as an important component of high‐quality health services research. PPI is integral to the Pre‐hospital Outcomes for Evidence Based Evaluation (Ph OEBE) programme. The PPI event described in detail in this article focusses on the process of involving patients and public representatives in identifying, prioritizing and refining a set of outcome measures that can be used to support ambulance service performance measurement.

          Objective

          To obtain public feedback on little known, complex aspects of ambulance service performance measurement.

          Design

          The event was codesigned and coproduced with the Ph OEBE PPI reference group and Ph OEBE research team. The event consisted of brief researcher‐led presentations, group discussions facilitated by the PPI reference group members and electronic voting.

          Setting and participants

          Data were collected from eighteen patient and public representatives who attended an event venue in Yorkshire.

          Results

          The results of the PPI event showed that this interactive format and mode of delivery was an effective method to obtain public feedback and produced a clear indication of which ambulance performance measures were most highly favoured by event participants.

          Discussion and conclusions

          The event highlighted valuable contributions the PPI reference group made to the design process, supporting participant recruitment and facilitation of group discussions. In addition, the positive team working experience of the event proved a catalyst for further improvements in PPI within the Ph OEBE project.

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          Most cited references12

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          ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study

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            Representativeness, legitimacy and power in public involvement in health-service management.

            Public participation in health-service management is an increasingly prominent policy internationally. Frequently, though, academic studies have found it marginalized by health professionals who, keen to retain control over decision-making, undermine the legitimacy of involved members of the public, in particular by questioning their representativeness. This paper examines this negotiation of representative legitimacy between staff and involved users by drawing on a qualitative study of service-user involvement in pilot cancer-genetics services recently introduced in England, using interviews, participant observation and documentary analysis. In contrast to the findings of much of the literature, health professionals identified some degree of representative legitimacy in the contributions made by users. However, the ways in which staff and users constructed representativeness diverged significantly. Where staff valued the identities of users as biomedical and lay subjects, users themselves described the legitimacy of their contribution in more expansive terms of knowledge and citizenship. My analysis seeks to show how disputes over representativeness relate not just to a struggle for power according to contrasting group interests, but also to a substantive divergence in understanding of the nature of representativeness in the context of state-orchestrated efforts to increase public participation. This divergence might suggest problems with the enactment of such aspirations in practice; alternatively, however, contestation of representative legitimacy might be understood as reflecting ambiguities in policy-level objectives for participation, which secure implementation by accommodating the divergent constructions of those charged with putting initiatives into practice.
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              Principles and indicators of successful consumer involvement in NHS research: results of a Delphi study and subgroup analysis.

              Consumer involvement in NHS research is Department of Health policy within the UK. Despite the existence of policy directives and guidance, until recently there has been no consensus among consumers and researchers about what it means to involve consumers successfully in NHS research. This paper discusses the value of consensus research in this policy area, and presents the detailed findings of a Delphi study carried out to reach consensus on principles and indicators of successful consumer involvement in NHS research. Study participants, comprising consumers, researchers and consumer-researchers, were identified using a purposive sampling strategy. Consensus was reached on eight clear and valid principles of successful consumer involvement in NHS research, with each principle having at least one clear and valid indicator. Subgroup analysis revealed few significant differences in how consumers, researchers and consumer-researchers rated the principles and indicators. The implications and limitations of the study are discussed. Further research is needed to assess: (1) the usefulness of the principles and indicators for differing models of consumer involvement, health research methodologies, and subject areas within health research; and (2) the impact of 'successful' consumer involvement on health research processes and outcomes.
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                Author and article information

                Contributors
                a.d.irving@sheffield.ac.uk
                Journal
                Health Expect
                Health Expect
                10.1111/(ISSN)1369-7625
                HEX
                Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
                John Wiley and Sons Inc. (Hoboken )
                1369-6513
                1369-7625
                25 August 2017
                February 2018
                : 21
                : 1 ( doiID: 10.1111/hex.2018.21.issue-1 )
                : 230-238
                Affiliations
                [ 1 ] School of Health and Related Research (ScHARR) University of Sheffield Sheffield UK
                [ 2 ] Sheffield Emergency Care Forum Sheffield UK
                [ 3 ] ‘Dispel’ Disability Consultancy York UK
                [ 4 ] School of Health and Social Care University of Lincoln Community and Health Research Unit Christchurch New Zealand
                Author notes
                [*] [* ] Correspondence

                Andy Irving, School of Health and Related Research (ScHARR), Centre for Urgent and Emergency Care Research (CURE), University of Sheffield, Sheffield, UK.

                Email: a.d.irving@ 123456sheffield.ac.uk

                Author information
                http://orcid.org/0000-0002-1175-716X
                http://orcid.org/0000-0003-3884-7875
                http://orcid.org/0000-0002-0599-4222
                http://orcid.org/0000-0003-2484-8201
                Article
                HEX12606
                10.1111/hex.12606
                5750774
                28841272
                4a20ed83-fe3b-4c71-aec4-7414b0a47f9a
                © 2017 The Authors Health Expectations Published by John Wiley & Sons Ltd

                This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

                History
                : 27 June 2017
                Page count
                Figures: 1, Tables: 5, Pages: 9, Words: 6789
                Funding
                Funded by: Pre‐hospital Outcomes for Evidence Based Evaluation (PhOEBE)
                Funded by: National Institute for Health Research (NIHR)
                Funded by: Programme Grants for Applied Research (PGfAR)
                Award ID: RP‐PG‐0609‐10195
                Categories
                Original Research Paper
                Original Research Papers
                Custom metadata
                2.0
                hex12606
                February 2018
                Converter:WILEY_ML3GV2_TO_NLMPMC version:5.2.8 mode:remove_FC converted:15.01.2018

                Health & Social care
                ambulance service,co‐production,health service research,patient and public involvement,pre‐hospital health care

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