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      Original qualitative research - Hacking systemic lupus erythematosus (SLE): outcomes of the Waterlupus hackathon

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          Abstract

          Introduction:

          There is a growing literature demonstrating the benefits of engaging knowledge-users throughout the research process. We engaged a multi-stakeholder team to undertake a hackathon as part of an integrated knowledge translation (iKT) process to develop nonpharmacological interventions to enhance the economic lives of people with systemic lupus erythematosus (SLE). The aims of this research were to (1) increase understanding of the economic challenges of living with SLE through stakeholder engagement at a research hackathon; (2) investigate possible interventions to improve the economic lives of individuals affected by SLE in Canada; and (3) document the outcomes of the Waterlupus hackathon.

          Methods:

          Waterlupus was held at the University of Waterloo in May 2019, attended by lupus advocacy organization representatives, researchers, physicians, individuals with lived experience and students. We conducted participant observation with participants’ understanding and consent; notes from the hackathon were qualitatively analyzed to document hackathon outcomes.

          Results:

          At the conclusion of the 28-hour hackathon event, five teams pitched nonpharmacological interventions to address the economic challenges of living with SLE. The winning team’s pitch focussed on increasing accessibility of affordable sun-protective clothing. Other Waterlupus outcomes include increased awareness of SLE among participants, and professional and informal networking opportunities.

          Conclusion:

          This paper contributes to a limited literature on health hackathons. The successful outcomes of Waterlupus emphasize the value of hackathons as an iKT tool. Research about how knowledge-users perceive hackathons is an important next step.

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          Author and article information

          Journal
          Health Promot Chronic Dis Prev Can
          Health Promot Chronic Dis Prev Can
          CDIC
          Health Promotion and Chronic Disease Prevention in Canada : Research, Policy and Practice
          Public Health Agency of Canada
          2368-738X
          July 2020
          : 40
          : 7-8
          : 235-244
          Affiliations
          [1 ] Department of Geography and Environmental Management, University of Waterloo, Waterloo, Ontario, Canada
          [2 ] School of Kinesiology and Health Studies, Queen’s University, Kingston, Ontario, Canada
          [3 ] Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
          Author notes

          Correspondence: Francesca S. Cardwell, Department of Geography and Environmental Management, EV1-351, University of Waterloo, Waterloo, ON N2L 3G1; Tel: 519-888-4567; Email: fcardwel@uwaterloo.ca

          Article
          PMC7450907 PMC7450907 7450907 40_7-8_3 150421_Willis_v7-mthighlights_clean_SD
          10.24095/hpcdp.40.7/8.03
          7450907
          32667880
          4d1bfda4-8bd8-4d4e-bb65-80635bb1d5d8
          Her Majesty the Queen in Right of Canada, represented by the Minister of Health
          History
          Categories
          Article

          social innovation,integrated knowledge translation,systemic lupus erythematosus,hackathon

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