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      Estudio epidemiológico de la prevalencia del síndrome de intestino corto en España Translated title: Epidemiological study of the prevalence of short bowel syndrome in Spain

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          Abstract

          Resumen Introducción: El síndrome de intestino corto (SIC) es una alteración de la absorción de los nutrientes causado, frecuentemente, por la resección quirúrgica del intestino delgado. El espectro de las manifestaciones clínicas varía ampliamente, según la longitud remanente del intestino delgado. Objetivo: Conocer la prevalencia de los casos de SIC en España en el año 2018. Método: Estudio observacional transversal multicéntrico, de base poblacional, mediante cuestionario telemático en el que se recogen los datos de los pacientes diagnosticados de SIC en 2018. Resultados: De un total de 541 centros sanitarios seleccionados, del Catálogo Nacional de Hospitales del Ministerio de Sanidad, participaron 101 hospitales. Con los datos obtenidos, la prevalencia de SIC en España se estimaría en 4,18 pacientes por millón de habitantes durante ese año. Conclusiones: La falta de participación dificulta obtener resultados concluyentes, lo que resulta mucho más importante cuando se trata de problemas de salud poco prevalentes.

          Translated abstract

          Abstract Introduction: Short bowel syndrome (SBS) is a disturbance in nutrient absorption often caused by surgical resection of the small intestine. The spectrum of clinical manifestations varies widely, depending on the remaining length of the small intestine. Objective: To estimate the prevalence of cases of SBS cases in Spain in 2018. Method: A population-based, multicenter cross-sectional study, using an online survey, that collects data from patients diagnosed with SBS in 2018. Results: From a total of 541 health centers selected, of the National Catalog of Hospitals of the Ministry of Health, 101 hospitals took part in. With the data obtained, the prevalence of SIC in Spain would be estimated at 4.18 patients per million inhabitants during that year. Conclusions: Lack of participation makes it difficult to obtain conclusive results, which is much more important when it comes to low prevalence health topics.

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          Most cited references24

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          Short bowel syndrome and intestinal failure: consensus definitions and overview.

          Short bowel syndrome (SBS)-associated intestinal failure is a highly disabling condition that impairs quality of life and social integration. Although the condition is not uniformly fatal, it might lead to serious, life-threatening complications. The basic goals of medical treatment are to maintain fluid, electrolyte, and nutrient balances and to make appropriate modifications in disease management to avoid side effects. Various definitions have been proposed for SBS and intestinal failure within the medical literature, but many focus on different aspects of the conditions, leading to confusion. In the past, identifying the cause of intestinal failure was of little consequence, because all patients were managed on total parenteral nutrition at home. However, with the recent development of medical therapies such as recombinant growth hormone, octreotide, and glucagon-like peptide-2 analogues and with improvements in small bowel transplantation, many patients can be made nutritionally autonomous. To evaluate the relative efficacy of these therapies, there is now a need to develop consensus definitions so that patients can be properly categorized before therapy. To this end, a group of experts on the subject was convened to develop the following new definitions: "Intestinal failure results from obstruction, dysmotility, surgical resection, congenital defect, or disease-associated loss of absorption and is characterized by the inability to maintain protein-energy, fluid, electrolyte, or micronutrient balance." "Short-bowel syndrome results from surgical resection, congenital defect, or disease-associated loss of absorption and is characterized by the inability to maintain protein-energy, fluid, electrolyte, or micronutrient balances when on a conventionally accepted, normal diet."
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            Outcome on home parenteral nutrition for benign intestinal failure: a review of the literature and benchmarking with the European prospective survey of ESPEN.

            Indications and timing for referral for intestinal transplantation (ITx) were investigated through a review of the literature on home parenteral nutrition (HPN) for benign intestinal failure and a benchmarking to the results of a prospective European survey which evaluated the appropriateness of the current indications for ITx.
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              AGA technical review on short bowel syndrome and intestinal transplantation

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                Author and article information

                Journal
                had
                Hospital a Domicilio
                Hosp. domic.
                Centro Internacional Virtual de Investigación en Nutrición (CIVIN) (Alicante, Alicante, Spain )
                2530-5115
                March 2022
                : 6
                : 1
                : 27-36
                Affiliations
                [2] Alicante orgnameCentro Internacional Virtual de Investigación en Nutrición (CIVIN) España
                [1] Alicante orgnameHospital General Universitario de Alicante orgdiv1ISABIAL-FISABIO España
                Article
                S2530-51152022000100027 S2530-5115(22)00600100027
                10.22585/hospdomic.v6i1.152
                51ad155d-b546-477e-b4ef-7a7859cfcaba

                This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.

                History
                : 10 January 2022
                : 24 December 2021
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 24, Pages: 10
                Product

                SciELO Spain

                Categories
                Artículos originales

                Short Bowel Syndrome,Parenteral Nutrition, Home,Home Care Services,Epidemiology,Prevalence,Síndrome del Intestino Corto,Nutrición Parenteral en el Domicilio,Servicios de Atención de Salud a Domicilio,Epidemiología,Prevalencia

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