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      Applying the CRPD to People With Intellectual and Developmental Disability With Behaviors of Concern During COVID‐19


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          People with intellectual and developmental disability (IDD) are a vulnerable population in all aspects of access and participation, abuse and neglect, and being subject to the use of restrictive practices. Accordingly, they are a group whose human rights can be impacted where equal access to supports, services, and accessible information is compromised. The current COVID‐19 pandemic is a global humanitarian emergency that has had a devastating impact across the world, for all people. Growing concern has been raised about the impact of the COVID‐19 virus on the health of people with disabilities and there has been subsequent development of strategies and protocols to promote equal access to information, health supports, and services. People with IDD have high levels of underlying comorbidity that increases their risk of contracting COVID‐19 and measures to protect them from infection are critically important. However, those measures may trigger behaviors of concern and increase the risk of being subjected to restrictive practices. While some attention has been paid to the health impacts of COVID‐19 on people with disabilities, there has been less paid to the impact on the human rights of people with IDD who present with behaviors of concern. The aim of this paper is to provide a hypothetical exploration of the impacts of pandemic prevention measures on people with IDD and behaviors of concern in the context of the Convention on the Rights of Persons with Disabilities (CRPD). In the absence of available guidance for working with people with IDD with behaviors of concern during COVID‐19, we suggest behavior support response plans that aim to ensure that people with IDD with behaviors of concern are supported properly in a time of significant disruption for them, thereby safeguarding their human rights.

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          Intellectual and Developmental Disability and COVID-19 Case-Fatality Trends: TriNetX Analysis

          Background Despite possibly higher risk of severe outcomes from COVID-19 among people with intellectual and developmental disabilities (IDD), there has been limited reporting of COVID-19 trends for this population. Objective To compare COVID-19 trends among people with and without IDD, overall and stratified by age. Methods Data from the TriNetX COVID-19 Research Network platform was used to identify COVID-19 patients. Analysis focused on trends in comorbidities, number of cases, number of deaths, and case-fatality rate among patients with and without IDD who had a positive diagnosis for COVID-19 through May 14, 2020. Results People with IDD had higher prevalence of specific comorbidities associated with poorer COVID-19 outcomes. Distinct age-related differences in COVID-19 trends were present among those with IDD, with a higher concentration of COVID-19 cases at younger ages. In addition, while the overall case-fatality rate was similar for those with IDD (5.1%) and without IDD (5.4%), these rates differed by age: ages 75– IDD 21.1%, without IDD, 20.7%. Conclusions Though of concern for all individuals, COVID-19 appears to present a greater risk to people with IDD, especially at younger ages. Future research should seek to document COVID-19 trends among people with IDD, with particular attention to age related trends.
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            Challenging behaviours: prevalence and topographies.

            Variations in reported prevalence of challenging behaviour indicate the need for further epidemiological research to support accurate planning of future service provision.
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              Covid-19: challenges for people with intellectual disability


                Author and article information

                J Policy Pract Intellect Disabil
                J Policy Pract Intellect Disabil
                Journal of Policy and Practice in Intellectual Disabilities
                John Wiley & Sons, Inc. (Hoboken, USA )
                05 March 2021
                : 10.1111/jppi.12374
                [ 1 ] University of Queensland St Lucia QLD Australia
                Author notes
                [*] [* ] Correspondence: Karen Nankervis, School of Education, University of Queensland, St Lucia, QLD, Australia. E‐mail: k.nankervis@ 123456uq.edu.au

                Author information
                © 2021 International Association for the Scientific Study of Intellectual and Developmental Disabilities and Wiley Periodicals LLC

                This article is being made freely available through PubMed Central as part of the COVID-19 public health emergency response. It can be used for unrestricted research re-use and analysis in any form or by any means with acknowledgement of the original source, for the duration of the public health emergency.

                : 04 November 2020
                : 08 September 2020
                : 02 December 2020
                Page count
                Figures: 0, Tables: 0, Pages: 6, Words: 5086
                Original Article
                Original Articles
                Custom metadata
                Converter:WILEY_ML3GV2_TO_JATSPMC version:6.0.4 mode:remove_FC converted:02.07.2021

                covid‐19,human rights,intellectual and developmental disability,restrictive practice


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