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      Síntomas asociados al sufrimiento en pacientes con enfermedad renal crónica en hemodiálisis Translated title: Symptoms associated to suffering among patients with end-stage renal disease undergoing hemodialysis

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          Abstract

          Resumen Introducción: Los síntomas insuficientemente controlados pueden constituir un factor determinante o agravante del sufrimiento en los pacientes sometidos a hemodiálisis; sin embargo, escasean las investigaciones que aborden este tema. Objetivos: El presente estudio tiene como objetivo describir el sufrimiento según la severidad de determinados síntomas en pacientes con enfermedad renal crónica en hemodiálisis. Material y Método: El estudio es observacional descriptivo transversal, con algunas tareas de correlación en una muestra de 31 pacientes. Se emplearon la entrevista, el instrumento para detección de bienestar/malestar propuesto por Bayés y colaboradores y una serie de sub-escalas de la Escala de Evaluación de Síntomas de Edmonton/ESAS para identificar la presencia de síntomas (intensidad y frecuencia) que pudieran estar asociados al sufrimiento. Resultados: El 87,1 % del total mostró un bajo predominio de síntomas con severa intensidad asociados al sufrimiento en las últimas 24 horas, el 77,4 % bajo predominio en la semana anterior y el 61,3 % un bajo predominio en un periodo de un mes. No se encontró asociación significativa entre el predominio de los síntomas con intensidad severa asociados al sufrimiento en 24 horas. Conclusiones: En la mayoría de los sujetos predominó el bajo predominio de síntomas con severa intensidad asociados al sufrimiento; la magnitud de la sintomatología no constituyó un factor importante asociado al sufrimiento en estos pacientes.

          Translated abstract

          Introduction: Insufficiently controlled symptoms could be a determining factor or aggravation of suffering in patients undergoing hemodialysis. However, research about this topic is not enough. Objectives: This study aims to describe suffering according to severity of symptoms in patients with End-Stage Renal Disease undergoing hemodialysis. Materials and Method: The study is transversal, descriptive and observational with some tasks of correlation in a sample of 31 patients. The assessment tools were; the interview, the instrument to detect wellbeing/disturbance proposed by Bayés and collaborators and a series of subscales of the Edmonton Symptom Assessment Scale/ESAS to identify the intensity and frequency of symptoms that could be associated to suffering. Results: 87.1 % of the sample showed a low presence of symptoms with severe intensity associated to suffering in the last 24 hours, 77.4% showed low presence in the last week and 61.3 % showed a low presence in a period of one month. No significant association was found between the presence of symptoms with severe intensity associated to suffering in 24 hours. Conclusions: The majority of subjects were characterized by low presence of symptoms with severe intensity associated to that suffering. The magnitude of a set of symptoms did not result in an important factor associated to the suffering in these patients.

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          Most cited references36

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          Public health significance of neuroticism.

          The personality trait of neuroticism refers to relatively stable tendencies to respond with negative emotions to threat, frustration, or loss. Individuals in the population vary markedly on this trait, ranging from frequent and intense emotional reactions to minor challenges to little emotional reaction even in the face of significant difficulties. Although not widely appreciated, there is growing evidence that neuroticism is a psychological trait of profound public health significance. Neuroticism is a robust correlate and predictor of many different mental and physical disorders, comorbidity among them, and the frequency of mental and general health service use. Indeed, neuroticism apparently is a predictor of the quality and longevity of our lives. Achieving a full understanding of the nature and origins of neuroticism, and the mechanisms through which neuroticism is linked to mental and physical disorders, should be a top priority for research. Knowing why neuroticism predicts such a wide variety of seemingly diverse outcomes should lead to improved understanding of commonalities among those outcomes and improved strategies for preventing them. PsycINFO Database Record (c) 2009 APA, all rights reserved.
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            Emotions, morbidity, and mortality: new perspectives from psychoneuroimmunology.

            Negative emotions can intensify a variety of health threats. We provide a broad framework relating negative emotions to a range of diseases whose onset and course may be influenced by the immune system; inflammation has been linked to a spectrum of conditions associated with aging, including cardiovascular disease, osteoporosis, arthritis, type 2 diabetes, certain cancers, Alzheimer's disease, frailty and functional decline, and periodontal disease. Production of proinflammatory cytokines that influence these and other conditions can be directly stimulated by negative emotions and stressful experiences. Additionally, negative emotions also contribute to prolonged infection and delayed wound healing, processes that fuel sustained proinflammatory cytokine production. Accordingly, we argue that distress-related immune dysregulation may be one core mechanism behind a large and diverse set of health risks associated with negative emotions. Resources such as close personal relationships that diminish negative emotions enhance health in part through their positive impact on immune and endocrine regulation.
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              Executive summary of the KDIGO Controversies Conference on Supportive Care in Chronic Kidney Disease: developing a roadmap to improving quality care.

              Patients with advanced chronic kidney disease (CKD) have a high burden of physical and psychosocial symptoms, poor outcomes, and high costs of care. Current paradigms of care for this highly vulnerable population are variable, prognostic and assessment tools are limited, and quality of care, particularly regarding conservative and palliative care, is suboptimal. The KDIGO Controversies Conference on Supportive Care in CKD reviewed the current state of knowledge in order to define a roadmap to guide clinical and research activities focused on improving the outcomes of people living with advanced CKD, including those on dialysis. An international group of multidisciplinary experts in CKD, palliative care, methodology, economics, and education identified the key issues related to palliative care in this population. The conference led to a working plan to address outstanding issues in this arena, and this executive summary serves as an output to guide future work, including the development of globally applicable guidelines.
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                Author and article information

                Journal
                enefro
                Enfermería Nefrológica
                Enferm Nefrol
                Sociedad Española de Enfermería Nefrológica (Madrid, Madrid, Spain )
                2254-2884
                2255-3517
                September 2021
                : 24
                : 3
                : 295-302
                Affiliations
                [1] La Habana orgnameHospital Docente Clínico Quirúrgico "Doctor Salvador Allende" orgdiv1Servicio de Nefrología Cuba
                [3] orgnameFacultad de Ciencias Médicas de La Habana "Manuel Fajardo" orgdiv1Departamento de Psicología Cuba
                [2] Andalucía orgnameUniversidad de Málaga orgdiv1Facultad de Psicología Spain
                Article
                S2254-28842021000300295 S2254-2884(21)02400300295
                10.37551/s2254-28842021026
                580b9465-1486-409f-829a-3b00b3b3879a

                This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

                History
                : 10 June 2021
                : 25 July 2021
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 36, Pages: 8
                Product

                SciELO Spain

                Categories
                Originales

                suffering,symptoms,chronic kindney disease,hemodialysis,sufrimiento,síntomas,enfermedad renal crónica,hemodiálisis

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