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      P103 Developing Visual Tools for Participant Information and Consent in Sleep Health Research

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          Abstract

          Introduction

          Informed consent in research is crucial for meeting ethical standards, transparency, and voluntary participation. However, current institutional research consent processes often rely on text-heavy documents filled with complex academic jargon. This approach can lead to misunderstandings and disengagement, posing a significant challenge to obtaining genuinely informed consent. This study outlines the process of developing visual tools to improve the informed consent process in sleep health research with First Nations peoples.

          Methods

          Through a collaborative process engaging First Nations visual communication experts and First Nations community researchers, visual consent tools were redesigned to prioritise participant engagement. Iterative feedback was provided regarding accessibility, cultural responsiveness, and suitability for First Nations communities, whilst balancing consumer-centric information and the rigour of the informed consent process. Subsequently, the Lets Yarn About Sleep First Nations Data Governance team assessed the work for cultural responsiveness and suitability for First Nations sleep health research. The final stage involved obtaining institutional ethics committee approval for consumers to test and evaluate the visual tools.

          Results

          Initial feedback from community researchers and the Data Governance team highlights the potential of the visual consent tools to enhance the informed consent process. Further testing and evaluation will confirm the impact of these tools on participant comprehension and engagement.

          Discussion

          This study documented initial steps in First Nations-led development of culturally responsive visual tools for seeking informed consent in sleep health research. Future work must evaluate broader acceptability of culturally grounded visual consent approaches, with a view to reforming institutional research ethics processes.

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          Author and article information

          Contributors
          Journal
          Sleep Adv
          Sleep Adv
          sleepadvances
          Sleep Advances: A Journal of the Sleep Research Society
          Oxford University Press (US )
          2632-5012
          October 2024
          25 November 2024
          25 November 2024
          : 5
          : Suppl 1 , 2024 Australasian Sleep Association Abstracts
          : A64-A65
          Affiliations
          Poche Centre for Indigenous Health, The University of Queensland , Toowong, Australia
          Queensland College of Art and Design, Griffith University, South Bank Campus , South Brisbane, Australia
          Queensland College of Art and Design, Griffith University, South Bank Campus , South Brisbane, Australia
          Poche Centre for Indigenous Health, The University of Queensland , Toowong, Australia
          Poche Centre for Indigenous Health, The University of Queensland , Toowong, Australia
          Toowoomba Regional Clinical Unit Medical School, Faculty of Medicine, The University of Queensland , Toowoomba, Australia
          Institute for Social Science, The University of Queensland , Brisbane, Australia
          Poche Centre for Indigenous Health, The University of Queensland , Toowong, Australia
          The University of Western Australia , Crawley, Australia
          Poche Centre for Indigenous Health, The University of Queensland , Toowong, Australia
          Poche Centre for Indigenous Health, The University of Queensland , Toowong, Australia
          Article
          zpae070.185
          10.1093/sleepadvances/zpae070.185
          11645816
          596b31d0-df60-4149-ab12-273db1f88a1a
          © The Author(s) 2024. Published by Oxford University Press on behalf of Sleep Research Society. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com

          This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs licence ( https://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial reproduction and distribution of the work, in any medium, provided the original work is not altered or transformed in any way, and that the work is properly cited. For commercial re-use, please contact reprints@oup.com for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact journals.permissions@oup.com.

          History
          Page count
          Pages: 2
          Categories
          Poster Presentations
          Poster Viewing Presentations
          AcademicSubjects/MED00370
          AcademicSubjects/MED00310
          AcademicSubjects/MED00385
          AcademicSubjects/SCI01870

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