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      “A Little Bit of Their Souls”: Investigating the Concept of Dignity for People Living With Dementia Using Caregivers’ Blogs

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          Abstract

          Dignity is an important component of quality of life and a core value of family nursing care. Few studies have explored dignity in community-dwelling adults with dementia. This study used blogs written by caregivers to explore the concept of dignity in dementia caregiving. A template analysis of blogs written by family caregivers of people with dementia was conducted. Four themes were defined a priori in relation to Jacelon’s model of dignity: perceived value from others, self in relation to others, behavioral respect, and self-value. Caregivers wrote about experiences that related to each of the four a priori themes from Jacelon’s model. In addition, the theme of dignity by proxy was derived from the analysis. By understanding the concept of dignity in the context of dementia family caregiving, interventions and services can be developed to improve family quality of life through dignifying, family-focused care.

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          Most cited references6

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          Naturalistic inquiry

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            Qualitative data analysis for applied policy research

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              Dementia reconsidered : the person comes first

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                Author and article information

                Contributors
                (View ORCID Profile)
                Journal
                Journal of Family Nursing
                J Fam Nurs
                SAGE Publications
                1074-8407
                1552-549X
                February 2021
                December 04 2020
                February 2021
                : 27
                : 1
                : 43-54
                Affiliations
                [1 ]The University of Tennessee, Knoxville, USA
                [2 ]University of Virginia, Charlottesville, USA
                [3 ]University of Massachusetts Amherst, USA
                Article
                10.1177/1074840720975216
                33272070
                5a89f8f8-6f2e-4871-8706-7f1fc63c012b
                © 2021

                http://journals.sagepub.com/page/policies/text-and-data-mining-license

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