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Annotated bibliography on participatory consultations to help aid the inclusion of marginalized perspectives in setting policy agendas

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      Abstract

      The purpose of this bibliography is to present studies from peer-reviewed and grey literature that used consultations and other participatory strategies to capture a community’s perspective of their health priorities, and of techniques used to elevate participation from the implementation phase to a more upstream phase of prioritization, policymaking and agenda setting. The focus here is of those studies that worked with marginalized populations or sub-populations. This bibliography contains four areas of research. It begins by first offering some philosophical and conceptual frameworks that link participatory interventions with inclusive policy making or agenda setting, and a rationale for prioritizing marginalized populations in such an undertaking. After situating ourselves in this manner, the second section looks at various participatory instruments for participatory consultations, for reaching out to marginalized populations, and for communicating the results to policymakers. Two sets of distinctions are made here: one between external (non-invitation) and internal (stifling of opinions) exclusion, and between mere participation and from active inclusion within consultations and within the policies. In the third section, examples of consultations that created or changed policy in various jurisdictions are shared, followed by a final section on a reflective and evaluative look at the recruitment, instruments and examples. An earlier iteration of this bibliography was created to assist a multi-country research project by the author to inform the UN Post-2015 development framework of the views of several diverse and highly marginalized populations around the world on their health-related priorities.

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      Most cited references 22

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      A review of collaborative partnerships as a strategy for improving community health.

      Collaborative partnerships (people and organizations from multiple sectors working together in common purpose) are a prominent strategy for community health improvement. This review examines evidence about the effects of collaborative partnerships on (a) community and systems change (environmental changes), (b) community-wide behavior change, and (c) more distant population-level health outcomes. We also consider the conditions and factors that may determine whether collaborative partnerships are effective. The review concludes with specific recommendations designed to enhance research and practice and to set conditions for promoting community health.
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        Photovoice as a Participatory Health Promotion Strategy

         C. C. Wang,  W. Yi,  Z. W. Tao (1998)
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          Participatory research maximises community and lay involvement. North American Primary Care Research Group.

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            Author and article information

            Affiliations
            O’Neill Institute for National and Global Health Law, Georgetown University Law Center, 600 New Jersey Avenue, NW Washington, DC 20001 USA
            Contributors
            fsiddiqui@law.howard.edu
            Journal
            Int J Equity Health
            Int J Equity Health
            International Journal for Equity in Health
            BioMed Central (London )
            1475-9276
            20 December 2014
            20 December 2014
            2014
            : 13
            : 1
            25532831
            4279799
            124
            10.1186/s12939-014-0124-0
            © Siddiqui; licensee BioMed Central. 2014

            This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver ( http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

            Categories
            Annotated Bibliography
            Custom metadata
            © The Author(s) 2014

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