For Publishers
DiscoveryMetadataPeer reviewHostingPublishing
For Researchers
JoinPublishReviewCollect
Register
Blog
About
Search
Advanced search
My ScienceOpen
Search
For Publishers
For Researchers
Blog
About
18
views
26
references
 Top references
cited by
12
    
0 reviews
 Review
0
comments
 Comment
0
recommends
+1 Recommend
0 collections
    0
    shares
      130
      similar
       All similar
      • Record: found
      • Abstract: found
      • Article: found
      Is Open Access

      HOMESIDE: home-based family caregiver-delivered music and reading interventions for people living with dementia: protocol of a randomised controlled trial

      protocol

      Read this article at

      ScienceOpenPublisherPMC
      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Introduction

          Pharmacological interventions to address behavioural and psychological symptoms of dementia (BPSD) can have undesirable side effects, therefore non-pharmacological approaches to managing symptoms may be preferable. Past studies show that music therapy can reduce BPSD, and other studies have explored how formal caregivers use music in their caring roles. However, no randomised study has examined the effects on BPSD of music interventions delivered by informal caregivers (CGs) in the home setting. Our project aims to address the need for improved informal care by training cohabiting family CGs to implement music interventions that target BPSD, and the quality of life (QoL) and well-being of people with dementia (PwD) and CGs.

          Methods and analysis

          A large international three-arm parallel-group randomised controlled trial will recruit a sample of 495 dyads from Australia, Germany, UK, Poland and Norway. Dyads will be randomised equally to standard care (SC), a home-based music programme plus SC, or a home-based reading programme plus SC for 12 weeks. The primary outcome is BPSD of PwD (measured using the Neuropsychiatric Inventory-Questionnaire). Secondary outcomes will examine relationship quality between CG and PwD, depression, resilience, competence, QoL for CG and QoL for PwD. Outcomes will be collected at baseline, at the end of the 12-week intervention and at 6 months post randomisation. Resource Utilisation in Dementia will be used to collect economic data across the life of the intervention and at 6-month follow-up. We hypothesise that the music programme plus SC will generate better results than SC alone (primary comparison) and the reading programme plus SC (secondary comparison).

          Ethics and dissemination

          Ethical approval has been obtained for all countries. Results will be presented at national and international conferences and published in scientific journals and disseminated to consumer and caregiver representatives and the community.

          Trial registration numbers

          ACTRN12618001799246p; NCT03907748

          Related collections

          Most cited references26

          • Record: found
          • Abstract: found
          • Article: found

          Dementia prevention, intervention, and care

          Gill Livingston, Andrew Sommerlad, Vasiliki Orgeta … (2018)
          Article 0 comments Cited 2008 times – based on 0 reviews     Review now
            Bookmark
            • Record: found
            • Abstract: found
            • Article: not found

            Caring for a relative with dementia: family caregiver burden.

            P Sourtzi, Haritini Tsangari, Evridiki Papastavrou … (2007)
            This paper is a report of part of a study to investigate the burden experienced by families giving care to a relative with dementia, the consequences of care for the mental health of the primary caregiver and the strategies families use to cope with the care giving stressors. The cost of caring for people with dementia is enormous, both monetary and psychological. Partners, relatives and friends who take care of patients experience emotional, physical and financial stress, and care giving demands are central to decisions on patient institutionalization. A volunteer sample of 172 caregiver/care recipient dyads participated in the study in Cyprus in 2004-2005. All patients were suffering from probable Alzheimer's type dementia and were recruited from neurology clinics. Data were collected using the Memory and Behaviour Problem Checklist, Burden Interview, Center for Epidemiological Studies-Depression scale and Ways of Coping Questionnaire. The results showed that 68.02% of caregivers were highly burdened and 65% exhibited depressive symptoms. Burden was related to patient psychopathology and caregiver sex, income and level of education. There was no statistically significant difference in level of burden or depression when patients lived in the community or in institutions. High scores in the burden scale were associated with use of emotional-focused coping strategies, while less burdened relatives used more problem-solving approaches to care-giving demands. Caregivers, especially women, need individualized, specific training in how to understand and manage the behaviour of relatives with dementia and how to cope with their own feelings.
            Article 0 comments Cited 134 times – based on 0 reviews     Review now
              Bookmark
              • Record: found
              • Abstract: found
              • Article: not found

              Cognitive, emotional, and social benefits of regular musical activities in early dementia: randomized controlled study.

              Pekka Rantanen, Jura Numminen, Mari Tervaniemi … (2014)
              During aging, musical activities can help maintain physical and mental health and cognitive abilities, but their rehabilitative use has not been systematically explored in persons with dementia (PWDs). Our aim was to determine the efficacy of a novel music intervention based on coaching the caregivers of PWDs to use either singing or music listening regularly as a part of everyday care. Eighty-nine PWD-caregiver dyads were randomized to a 10-week singing coaching group (n = 30), a 10-week music listening coaching group (n = 29), or a usual care control group (n = 30). The coaching sessions consisted primarily of singing/listening familiar songs coupled occasionally with vocal exercises and rhythmic movements (singing group) and reminiscence and discussions (music listening group). In addition, the intervention included regular musical exercises at home. All PWDs underwent an extensive neuropsychological assessment, which included cognitive tests, as well as mood and quality of life (QOL) scales, before and after the intervention period and 6 months later. In addition, the psychological well-being of family members was repeatedly assessed with questionnaires. Compared with usual care, both singing and music listening improved mood, orientation, and remote episodic memory and to a lesser extent, also attention and executive function and general cognition. Singing also enhanced short-term and working memory and caregiver well-being, whereas music listening had a positive effect on QOL. Regular musical leisure activities can have long-term cognitive, emotional, and social benefits in mild/moderate dementia and could therefore be utilized in dementia care and rehabilitation. © The Author 2013. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.
              Article 0 comments Cited 121 times – based on 0 reviews     Review now
                Bookmark
                All references

                Author and article information

                Journal
                Journal ID (nlm-ta): BMJ Open
                Journal ID (iso-abbrev): BMJ Open
                Journal ID (hwp): bmjopen
                Journal ID (publisher-id): bmjopen
                Title: BMJ Open
                Publisher: BMJ Publishing Group (BMA House, Tavistock Square, London, WC1H 9JR )
                ISSN (Electronic): 2044-6055
                Publication date Collection: 2019
                Publication date (Electronic): 19 November 2019
                Volume: 9
                Issue: 11
                Electronic Location Identifier: e031332
                Affiliations
                [1 ] departmentFaculty of Fine Arts and Music , The University of Melbourne , Melbourne, Victoria, Australia
                [2 ] departmentCambridge Institute for Music Therapy Research , Anglia Ruskin University , Cambridge, UK
                [3 ] departmentSchool of Population and Global Health , The University of Melbourne , Melbourne, Victoria, Australia
                [4 ] departmentDepartment of Occupational Therapy , University of Physical Education , Kraków, Poland
                [5 ] Austin Health , Melbourne, Victoria, Australia
                [6 ] departmentCentre for Research in Music and Health , Norwegian Academy of Music , Oslo, Norway
                [7 ] departmentDepartment of Psychiatry , The University of Melbourne , Melbourne, Victoria, Australia
                [8 ] departmentNorthWestern Mental Health , Melbourne Health , Melbourne, Victoria, Australia
                [9 ] Hochschule für angewandte Wissenschaften Würzburg-Schweinfurt , Würzburg, Germany
                Author notes
                [Correspondence to ] Dr Felicity Anne Baker; felicity.baker@ 123456unimelb.edu.au
                Author information
                http://orcid.org/0000-0002-9851-7133
                Article
                Publisher ID: bmjopen-2019-031332
                DOI: 10.1136/bmjopen-2019-031332
                PMC ID: 6886975
                PubMed ID: 31748300
                SO-VID: 6396eb12-60da-4564-b744-1fafb3c048b1
                Copyright © © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
                License:

                This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

                History
                Date received : 29 April 2019
                Date revision received : 02 August 2019
                Date accepted : 25 October 2019
                Categories
                Subject: Geriatric Medicine
                Subject: Protocol
                Subject: 1506
                Subject: 1698
                Custom metadata
                special-feature unlocked

                ScienceOpen disciplines: Medicine
                Keywords: music therapy,dementia,caregivers,home-based interventions,randomised controlled trial,behavioural and psychological symptoms of dementia
                Data availability:
                ScienceOpen disciplines: Medicine
                Keywords: music therapy, dementia, caregivers, home-based interventions, randomised controlled trial, behavioural and psychological symptoms of dementia

                Comments

                Comment on this article

                scite_

                Similar content130

                See all similar

                Cited by11

                See all cited by

                Most referenced authors860

                See all reference authors