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      Current unmet needs of cancer survivors: Analysis of open-ended responses to the American Cancer Society Study of Cancer Survivors II : Current Unmet Needs of Cancer Survivors

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          Abstract

          Cancer survivors may continue to experience psychosocial and physical needs related to their cancer experience for many years after treatment. The specification of these needs across cancer types and by survivor characteristics may lead to better prevention approaches and clinical responses. Mixed methods were used to examine responses to an open-ended question about current unmet needs from a survey of 2-, 5-, and 10-year cancer survivors.

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          What are the unmet supportive care needs of people with cancer? A systematic review.

          James D Harrison, Jane M Young, Melanie A Price … (2009)
          The identification and management of unmet supportive care needs is an essential component of health care for people with cancer. Information about the prevalence of unmet need can inform service planning/redesign. A systematic review of electronic databases was conducted to determine the prevalence of unmet supportive care needs at difference time points of the cancer experience. Of 94 articles or reports identified, 57 quantified the prevalence of unmet need. Prevalence of unmet need, their trends and predictors were highly variable in all domains at all time points. The most frequently reported unmet needs were those in the activities of daily living domain (1-73%), followed by psychological (12-85%), information (6-93%), psychosocial (1-89%) and physical (7-89%). Needs within the spiritual (14-51%), communication (2-57%) and sexuality (33-63%) domains were least frequently investigated. Unmet needs appear to be highest and most varied during treatment, however a greater number of individuals were likely to express unmet need post-treatment compared to any other time. Tumour-specific unmet needs were difficult to distinguish. Variations in the classification of unmet need, differences in reporting methods and the diverse samples from which patients were drawn inhibit comparisons of studies. The diversity of methods used in studies hinders analysis of patterns and predictors of unmet need among people with cancer and precludes generalisation. Well-designed, context-specific, prospective studies, using validated instruments and standard methods of analysis and reporting, are needed to benefit future interventional research to identify how best to address the unmet supportive care needs of people with cancer.
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            Concept Mapping as an Alternative Approach for the Analysis of Open-Ended Survey Responses

            K. M. Jackson, W. M. K. Trochim (2002)
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              The development and evaluation of a measure to assess cancer survivors' unmet supportive care needs: the CaSUN (Cancer Survivors' Unmet Needs measure).

              K Hodgkinson, P Butow, G. Hunt … (2007)
              Many cancer survivors experience ongoing morbidity over the survivorship continuum and their supportive care needs have yet to be comprehensively assessed. This study aimed to develop and empirically evaluate a self-report measure of cancer survivors' supportive care needs. In Phase I, questionnaire items were generated based upon previous qualitative research that identified both unique and shared needs in survivors and their partners; items were constructed into the Cancer Survivors' Unmet Needs measure (CaSUN). In Phase 2, the CaSUN was completed by 353 cancer survivors who had been diagnosed with cancer between 1 and 15 years earlier and were currently disease-free. After modification, the CaSUN included 35 unmet need items, 6 positive change items and an open-ended question. Good acceptability, internal consistency and validity were demonstrated, although test-retest reliability was low. Maximum likelihood factor analysis identified five discrete factors: Existential Survivorship, Comprehensive Care, Information, Quality of Life and Relationships. Preliminary data indicates that the CaSUN meets the majority of psychometric criteria for assessment measures, although its low test-retest reliability awaits further investigation. The CaSUN will facilitate the evaluation of supportive care services and generation of service delivery recommendations for cancer survivors. Copyright 2006 John Wiley & Sons, Ltd.
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                Author and article information

                Journal
                Title: Cancer
                Abbreviated Title: Cancer
                Publisher: Wiley
                ISSN: 0008543X
                Publication date Created: February 15 2015
                Publication date (Print): February 15 2015
                Publication date (Electronic): January 12 2015
                Volume: 121
                Issue: 4
                Pages: 623-630
                Affiliations
                [1 ]School of Social Work, College of Health and Public Affairs; University of Central Florida; Orlando Florida
                [2 ]School of Social Work; University of Texas at Arlington; Arlington Texas
                [3 ]Department of Psychology/Center for Alaska Native Health Research; University of Alaska Fairbanks; Fairbanks Alaska
                [4 ]College of Nursing; University of Central Florida; Orlando Florida
                [5 ]Behavioral Research Center; American Cancer Society, Incorporated; Atlanta Georgia
                Article
                DOI: 10.1002/cncr.28951
                PubMed ID: 25581252
                SO-VID: 63a9f012-97e6-436f-81b3-02efa52768d7
                Copyright © © 2015
                License:

                http://doi.wiley.com/10.1002/tdm_license_1.1

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