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      Parents’ Experiences of Childhood Cancer During the COVID-19 Pandemic: An Australian Perspective

      research-article
      , BA (Hons), Post Grad Dip (Public Policy), BA Psychology (Hons) 1 , , BA (Hons), MSc, PhD 1 , 2 , , BMed Rad (Hons), PhD, FASMIRT 3 , , BA (Hons), PhD Psychology 4 , 5 , , MBChB, FRACP, PhD 6 , 7 , 8
      Journal of Pediatric Psychology
      Oxford University Press
      Australia, cancer, childhood, COVID-19, neutropenia, pediatric, qualitative

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          Abstract

          Introduction

          COVID-19 has had far-reaching impacts including changes in work, travel, social structures, education, and healthcare.

          Objective

          This study aimed to explore the experiences of parents of children receiving treatment for cancer during the COVID-19 pandemic.

          Methods

          Parents whose children were currently in treatment for childhood cancer or had completed treatment in the previous 12 months, participated in semi-structured interviews, face-to-face or via teleconferencing. Thematic analysis was used to analyze the data.

          Results

          The sample consisted of 34 participants (17 fathers and 17 mothers) from all states across Australia. Median age 37.5 years (range 29–51, years, SD = 6.3). Five main themes were identified: “Welcome to the Club”; “Remote Work and Study”; “Silver Linings”; “The Loneliest Experience” with three sub-themes “Immediate Family”; “Friends”; and “Overseas Family” and “Lack of Support” with two sub-themes: “Community Support” and “Organized Support.”

          Conclusion

          These findings revealed contrasting experiences of the impact of the COVID-19 pandemic. For parents whose children were neutropenic, the pandemic provided benefits in increased community understanding of infection control. Parents also reflected that the movement to remote work made it easier to earn an income. In contrast, some parents observed that restrictions on visitors and family intensified feelings of isolation. Parents also described how the COVID-19 reduced access to support services. These findings contribute to an understanding of the multifaceted impacts of the COVID-19 pandemic on families of children with cancer.

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          Most cited references38

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          Using thematic analysis in psychology

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            The outbreak of COVID-19 coronavirus and its impact on global mental health

            The current outbreak of COVID-19 coronavirus infection among humans in Wuhan (China) and its spreading around the globe is heavily impacting on the global health and mental health. Despite all resources employed to counteract the spreading of the virus, additional global strategies are needed to handle the related mental health issues. Published articles concerning mental health related to the COVID-19 outbreak and other previous global infections have been considered and reviewed. This outbreak is leading to additional health problems such as stress, anxiety, depressive symptoms, insomnia, denial, anger and fear globally. Collective concerns influence daily behaviors, economy, prevention strategies and decision-making from policy makers, health organizations and medical centers, which can weaken strategies of COVID-19 control and lead to more morbidity and mental health needs at global level.
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              Now I see it, now I don't: researcher's position and reflexivity in qualitative research

              M R Berger (2015)
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                Author and article information

                Journal
                J Pediatr Psychol
                J Pediatr Psychol
                jpepsy
                Journal of Pediatric Psychology
                Oxford University Press
                0146-8693
                1465-735X
                03 December 2021
                03 December 2021
                : jsab125
                Affiliations
                [1 ] School of Population Health, Faculty of Health Sciences, Curtin University , Australia
                [2 ] WA Cancer Prevention Research Unit, School of Population Health, Curtin University , Australia
                [3 ] Faculty of Health Sciences, Curtin School of Nursing, Curtin University , Australia
                [4 ] School of Women’s and Children’s Health, UNSW Sydney , Australia
                [5 ] Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children’s Hospital , Australia
                [6 ] Brain Tumour Research Programme, Telethon Kids Institute , Australia
                [7 ] Paediatrics, School of Medicine, University of Western Australia , Australia
                [8 ] Department of Paediatric and Adolescent Oncology/Haematology, Perth Children’s Hospital , Australia
                Author notes
                All correspondence concerning this article should be addressed to Jenny Davies, BA (Hons), Post Grad Dip (Public Policy), BA Psychology (Hons), Faculty of Health Sciences, School of Population Health, School of Population Health, Faculty of Health Sciences, Curtin University, GPO Box U1987, Perth, Australia. E-mail: jenny.davies@ 123456postgrad.curtin.edu.au
                Author information
                https://orcid.org/0000-0002-9498-1422
                https://orcid.org/0000-0002-7298-5553
                https://orcid.org/0000-0003-4065-4044
                https://orcid.org/0000-0001-9428-8807
                https://orcid.org/0000-0002-1082-6776
                Article
                jsab125
                10.1093/jpepsy/jsab125
                8690259
                34865100
                6643ed08-2478-48b0-bfc1-a208da5bac36
                © The Author(s) 2021. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com

                This article is published and distributed under the terms of the Oxford University Press, Standard Journals Publication Model ( https://academic.oup.com/journals/pages/open_access/funder_policies/chorus/standard_publication_model)

                This article is made available via the PMC Open Access Subset for unrestricted re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the COVID-19 pandemic or until permissions are revoked in writing. Upon expiration of these permissions, PMC is granted a perpetual license to make this article available via PMC and Europe PMC, consistent with existing copyright protections.

                History
                : 19 July 2021
                : 17 October 2021
                : 01 November 2021
                Page count
                Pages: 10
                Categories
                Original Research Article
                AcademicSubjects/MED00810
                AcademicSubjects/SCI02112
                Custom metadata
                PAP

                Pediatrics
                australia,cancer,childhood,covid-19,neutropenia,pediatric,qualitative
                Pediatrics
                australia, cancer, childhood, covid-19, neutropenia, pediatric, qualitative

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