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Amelogenesis Imperfecta and Early Restorative Crown Therapy: An Interview Study with Adolescents and Young Adults on Their Experiences

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      Abstract

      Patients with Amelogenesis imperfecta (AI) can present with rapid tooth loss or fractures of enamel as well as alterations in enamel thickness, color, and shape; factors that may compromise aesthetic appearance and masticatory function. The aim was to explore the experiences and perceptions of adolescents and young adults living with AI and receiving early prosthetic therapy. Seven patients with severe AI aged 16 to 23 years who underwent porcelain crown therapy participated in one-to-one individual interviews. The interviews followed a topic guide consisting of open-ended questions related to experiences of having AI. Transcripts from the interviews were analyzed using thematic analysis. The analysis process identified three main themes: Disturbances in daily life, Managing disturbances, and Normalization of daily life. These themes explain the experiences of patients living with enamel disturbances caused by AI and receiving early crown therapy. Experiences include severe pain and sensitivity problems, feelings of embarrassment, and dealing with dental staff that lack knowledge and understanding of their condition. The patients described ways to manage their disturbances and to reduce pain when eating or drinking, and strategies for meeting other people. After definitive treatment with porcelain crown therapy, they described feeling like a normal patient. In conclusion the results showed that adolescents and young adults describe a profound effect of AI on several aspects of their daily life.

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      Most cited references 26

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      Amelogenesis imperfecta, dentinogenesis imperfecta and dentin dysplasia revisited: problems in classification.

       C J Witkop (1988)
      The classification and prevalence of amelogenesis imperfecta is updated based upon new information in the literature. Problems with the currently used classification of inherited dentin defects are discussed.
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        The mass media and American adolescents' health.

        American teens today grow up in a world saturated with the mass media. In general, the media depict a world in which unhealthy behaviors such as physical aggression, unprotected sex, smoking, and drinking are glamorous and risk-free. We summarize what is known about the media's effects on four adolescent health issues that have been studied most comprehensively: violence and aggression; sex; obesity, nutrition, and eating disorders; and alcohol and tobacco use. A number of approaches that have potential for helping turn the media into more positive forces for adolescents' health are discussed
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          Amelogenesis imperfecta: prevalence and incidence in a northern Swedish county.

          The aim of the study was to establish the prevalence and incidence of amelogenesis imperfecta (AI) in the county of Västerbotten, northern Sweden using the criteria of Witkop & Sauk (1976). The diagnoses were based upon clinical and radiographic evidence. The study-population consisted of all 3-19-yr-olds born in the county from 1963 to 1979. AI was diagnosed in 79 children, 41 girls and 38 boys, giving a prevalence of 1.4:1000. The mean incidence 1963-79 was 1.3:1000. Half of the children with AI had brothers or sisters in the group. The hypoplastic form was the most common (58 children) followed by the hypomaturation form (16 children). Only five children had the hypomineralization form.
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            Author and article information

            Affiliations
            [1 ]Department of Dental Medicine, Division of Pediatric Dentistry, Karolinska Institutet, Stockholm, Sweden
            [2 ]Center for Pediatric Oral Health Research, Stockholm, Sweden
            [3 ]Department of Pediatric Dentistry, Public Dental Service, Dalarna County, Falun, Sweden
            [4 ]Department of Thematic Studies, Child Studies, Linköping University, Linköping, Sweden
            University of North Carolina at Chapel Hill, UNITED STATES
            Author notes

            Competing Interests: The authors have declared that no competing interests exist.

            Conceived and designed the experiments: GD AW GPL. Performed the experiments: GPL TH. Analyzed the data: GPL AW TH GD. Wrote the paper: GPL GD AW.

            [¤]

            Current address: Karolinska Institutet, Department of Dental Medicine, Division of Pediatric Dentistry, POB 4064, SE-141 04 Huddinge, Sweden

            Contributors
            Role: Editor
            Journal
            PLoS One
            PLoS ONE
            plos
            plosone
            PLoS ONE
            Public Library of Science (San Francisco, CA USA )
            1932-6203
            30 June 2016
            2016
            : 11
            : 6
            27359125 4928800 10.1371/journal.pone.0156879 PONE-D-16-06371
            © 2016 Pousette Lundgren et al

            This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

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            Figures: 1, Tables: 2, Pages: 15
            Product
            Funding
            Funded by: funder-id http://dx.doi.org/10.13039/501100006721, Landstinget Dalarnas;
            Award Recipient : ORCID: http://orcid.org/0000-0002-5018-6216
            Funded by: Emelie and Gotthard Thourén Foundation, Karolinska
            Award Recipient : ORCID: http://orcid.org/0000-0002-5018-6216
            The study was funded by the Public Dental Service in the County of Dalarna. The funders had no role in the decision to publish or in the study design. They paid the salary for GPL during the writing of the manuscript.
            Categories
            Research Article
            Biology and Life Sciences
            Anatomy
            Digestive System
            Teeth
            Medicine and Health Sciences
            Anatomy
            Digestive System
            Teeth
            Biology and Life Sciences
            Anatomy
            Head
            Jaw
            Teeth
            Medicine and Health Sciences
            Anatomy
            Head
            Jaw
            Teeth
            Biology and Life Sciences
            Physiology
            Sensory Physiology
            Somatosensory System
            Pain Sensation
            Medicine and Health Sciences
            Physiology
            Sensory Physiology
            Somatosensory System
            Pain Sensation
            Biology and Life Sciences
            Neuroscience
            Sensory Systems
            Somatosensory System
            Pain Sensation
            People and Places
            Population Groupings
            Age Groups
            Adolescents
            Biology and Life Sciences
            Physiology
            Physiological Processes
            Eating
            Medicine and Health Sciences
            Physiology
            Physiological Processes
            Eating
            Medicine and Health Sciences
            Health Care
            Patients
            People and Places
            Population Groupings
            Age Groups
            Young Adults
            Medicine and Health Sciences
            Oral Medicine
            Dentistry
            Medicine and Health Sciences
            Pain Management
            Custom metadata
            There is an ethical restriction for making the transcribed interviews available. In the ethical permission, the authors did not ask for this and the patients have not given their approval for publication. The transcribed interviews in Swedish language can be made available to researchers on request to the corresponding author, gunilla.pousette-lundgren@ 123456ki.se .

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