Partnership for defining the impact of 12 selected rare CNS tumors: a report from the CBTRUS and the NCI-CONNECT.

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Abstract

Population-based cancer statistics, including histology-specific incidence, prevalence, and survival are essential to evaluating the total burden due to disease in a population. The National Cancer Institute's (NCI) Comprehensive Oncology Network Evaluating Rare CNS Tumors (NCI-CONNECT) was developed to better understand tumor biology and patient outcomes for 12 selected brain and other central nervous system (CNS) tumor histologies that are rare in adults to improve approaches to care and treatment. The aim of this study was to determine the incidence, prevalence, and survival of these selected rare histologies.

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Author and article information

Journal

Journal ID (iso-abbrev): J. Neurooncol.

Title: Journal of neuro-oncology

Publisher: Springer Science and Business Media LLC

ISSN (Electronic): 1573-7373

ISSN (Print): 0167-594X

Publication date (Electronic): Aug 2019

Volume: 144

Issue: 1

Affiliations

[1 ] Central Brain Tumor Registry of the United States, Hinsdale, IL, USA.

[2 ] Case Comprehensive Cancer Center, Cleveland, OH, USA.

[3 ] Department of Bioethics, Case Western Reserve University School of Medicine, Cleveland, OH, USA.

[4 ] Department of Population and Quantitative Health Sciences, Case Western Reserve University School of Medicine, Cleveland, OH, USA.

[5 ] Case Western Reserve University School of Medicine, Cleveland, OH, USA.

[6 ] Department of Medicine, Section of Epidemiology and Population Sciences, Dan L. Duncan Comprehensive Cancer Center, Baylor College of Medicine, Houston, TX, USA.

[7 ] Neuro Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, MD, USA.

[8 ] Central Brain Tumor Registry of the United States, Hinsdale, IL, USA. jsb42@case.edu.

[9 ] Case Comprehensive Cancer Center, Cleveland, OH, USA. jsb42@case.edu.

[10 ] Department of Population and Quantitative Health Sciences, Case Western Reserve University School of Medicine, Cleveland, OH, USA. jsb42@case.edu.

Article

Publisher Item ID: 10.1007/s11060-019-03215-x

DOI: 10.1007/s11060-019-03215-x

PubMed ID: 31209773

SO-VID: 68c563fa-954b-485d-8a75-4ae77e6826f5

History

Keywords: Prevalence,Survival,Rare tumors,Incidence,CNS tumors

Data availability:

Keywords: Prevalence, Survival, Rare tumors, Incidence, CNS tumors

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