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      The generative potential of mess in community-based participatory research with young people who use(d) drugs in Vancouver

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          Abstract

          Community-based participatory research (CBPR) is increasingly standard practice for critical qualitative health research with young people who use(d) drugs in Vancouver, Canada. One aim of CBPR in this context is to redress the essentialization, erasure, and exploitation of people who use(d) drugs in health research. In this paper, we reflect on a partnership that began in 2018 between three university researchers and roughly ten young people (ages 17–28) who have current or past experience with drug use and homelessness in Greater Vancouver. We focus on moments when our guiding principles of shared leadership, safety, and inclusion became fraught in practice, forcing us in some cases to re-imagine these principles, and in others to accept that certain ethical dilemmas in research can never be fully resolved. We argue that this messiness can be traced to the complex and diverse positionalities of each person on our team, including young people. As such, creating space for mess was ethically necessary and empirically valuable for our CBPR project.

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          Review of community-based research: assessing partnership approaches to improve public health.

          Community-based research in public health focuses on social, structural, and physical environmental inequities through active involvement of community members, organizational representatives, and researchers in all aspects of the research process. Partners contribute their expertise to enhance understanding of a given phenomenon and to integrate the knowledge gained with action to benefit the community involved. This review provides a synthesis of key principles of community-based research, examines its place within the context of different scientific paradigms, discusses rationales for its use, and explores major challenges and facilitating factors and their implications for conducting effective community-based research aimed at improving the public's health.
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            The value and challenges of participatory research: strengthening its practice.

            The increasing use of participatory research (PR) approaches to address pressing public health issues reflects PR's potential for bridging gaps between research and practice, addressing social and environmental justice and enabling people to gain control over determinants of their health. Our critical review of the PR literature culminates in the development of an integrative practice framework that features five essential domains and provides a structured process for developing and maintaining PR partnerships, designing and implementing PR efforts, and evaluating the intermediate and long-term outcomes of descriptive, etiological, and intervention PR studies. We review the empirical and nonempirical literature in the context of this practice framework to distill the key challenges and added value of PR. Advances to the practice of PR over the next decade will require establishing the effectiveness of PR in achieving health outcomes and linking PR practices, processes, and core elements to health outcomes.
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              Suspending Damage: A Letter to Communities

              Eve Tuck (2009)
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                Author and article information

                Contributors
                danya.fast@bccsu.ubc.ca
                Journal
                Harm Reduct J
                Harm Reduct J
                Harm Reduction Journal
                BioMed Central (London )
                1477-7517
                25 March 2022
                25 March 2022
                2022
                : 19
                : 30
                Affiliations
                [1 ]GRID grid.511486.f, ISNI 0000 0004 8021 645X, British Columbia Centre on Substance Use, ; 1045 Howe St Suite 400, Vancouver, BC V6Z 2A9 Canada
                [2 ]Youth Health Advisory Council, Vancouver, Canada
                [3 ]Coalition of Peers Dismantling the Drug War, Vancouver, Canada
                [4 ]GRID grid.17091.3e, ISNI 0000 0001 2288 9830, Department of Medicine, , University of British Columbia, ; Vancouver, Canada
                Article
                615
                10.1186/s12954-022-00615-7
                8956276
                35337350
                69d51542-2b95-4732-8150-91de3c80520d
                © The Author(s) 2022

                Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver ( http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

                History
                : 15 January 2022
                : 14 March 2022
                Funding
                Funded by: FundRef http://dx.doi.org/10.13039/501100000024, Canadian Institutes of Health Research;
                Award ID: OCC-154893
                Award ID: OCC-154893
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                Award ID: OCC-154893
                Award Recipient :
                Funded by: FundRef http://dx.doi.org/10.13039/501100000165, Sick Kids Foundation;
                Award ID: 160823
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                Award Recipient :
                Funded by: FundRef http://dx.doi.org/10.13039/501100000204, Vancouver Foundation;
                Award ID: 20R01810
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                Award Recipient :
                Funded by: Frayme
                Award ID: 2741469749
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                Award ID: 2741469749
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                Categories
                Research
                Custom metadata
                © The Author(s) 2022

                Health & Social care
                community-based participatory research,qualitative health research,young people,substance use,ethics

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