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      Reasons for non-participation in follow-up research on eating disorders.

      Eating and weight disorders : EWD
      Adult, Age of Onset, Analysis of Variance, Body Mass Index, Comorbidity, Eating Disorders, epidemiology, Female, Follow-Up Studies, Humans, Longitudinal Studies, Male, Marriage, statistics & numerical data, Mental Disorders, Middle Aged, Occupations, Patient Participation, Self Concept, Treatment Refusal

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          Abstract

          Lack of participation in follow-ups is thought to be a serious bias in outcome research on eating disorders; however, little systematic knowledge exists about the problem. The present study aimed to delineate non-participation in long-term follow-up research, and explore the reasons for non-participation. Eating disorder patients (N=840) entering a naturalistic, longitudinal multi-centre study were divided into participators (N=508) and non-participators (N=332) in 36-month follow-ups. Non-participators were further classified as either active (i.e. refused participation or failed to attend scheduled appointments) or passive non-participators (i.e. could not be traced). Active non-participators exhibited significantly lower levels of general and eating disorder psychopathology at intake compared to participators, while passive non-participators reported higher levels of hostility. Systematic exploration of non-participation in longitudinal research can help to mitigate the problem of indistinct results due to missing data. Barriers to successful longitudinal research and how to overcome non-participation at endpoint are discussed.

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