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      Ativação do paciente com diagnóstico de doença renal crônica: uma revisão integrativa Translated title: Activation of the patient diagnosed with chronic kidney disease: an integrative review Translated title: Activación del paciente diagnosticado de enfermedad renal crónica: una revisión integrativa

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          Abstract

          Resumo Objetivo: Estabelecer a medida de ativação de pacientes com doença renal crônica e seus fatores associados. Metodologia: Revisão integrativa de literatura realizada nas seguintes bases de dados: Pubmed, Lilacs, Scielo, Scopus, Science Direct e Insignia Health. Foram utilizados os descritores: Patient Activation, Nephrology, Kidney e Renal Insufficiency, Chronic e seus correspondentes em português e espanhol e os operadores booleanos AND e OR. Não foi utilizado filtro de data para as buscas. Nove manuscritos compuseram a amostra final desta revisão. Resultados: A média do escore de ativação variou entre 51±10 e 65,02±16 pontos, com o predomínio de pessoas com alta ativação (níveis 3 e 4). A ativação do paciente foi associada a múltiplas variáveis, entre elas a idade, condição socioeconômica, escolaridade e carga de sintomas. Conclusões: Conhecer o nível de ativação dos pacientes e os fatores associados a ele direciona a atuação do profissional de saúde para obtenção e/ou manutenção da alta ativação.

          Translated abstract

          Abstract Objective: To know the activation measures used by patients with chronic kidney disease and the associated factors. Methodology: Integrative literature review carried out in the following databases: Pubmed, Lilacs, Scielo, Scopus, Science Direct and Insignia Health. The descriptors were used: Patient Activation, Nephrology, Kidney and Renal Insufficiency, Chronic as well as the terms in Portuguese and Spanish and the Boolean operators AND and OR. No date filter was used for searches. Nine manuscripts made up the final sample of this review. Results: The average activation score varied between 51±10 and 65.02±16 points, with a predominance of people with high activation (levels 3 and 4). Patient activation was associated with multiple variables such as age, socioeconomic status, education and symptom load. Conclusions: Knowing the level of activation of patients and the associated factors helps the health professional to obtain and/or maintain a high activation.

          Translated abstract

          Resumen Objetivo: Conocer las medidas de activación empleadas por los pacientes con enfermedad renal crónica y los factores asociados. Metodología: Revisión integrativa de la literatura realizada en las siguientes bases de datos: Pubmed, Lilacs, Scielo, Scopus, Science Direct e Insignia Health. Se utilizaron los descriptores: Patient Activation, Nephrology, Kidney and Renal Insufficiency, Chronic así como los términos en portugués y español y los operadores booleanos AND y OR. No se utilizó ningún filtro de fecha para las búsquedas. Nueve manuscritos conformaron la muestra final de esta revisión. Resultados: El puntaje promedio de activación varió entre 51±10 y 65,02±16 puntos, con predominio de personas con alta activación (niveles 3 y 4). La activación del paciente se asoció con múltiples variables tales como la edad, el nivel socioeconómico, la educación y la carga de los síntomas. Conclusiones: Conocer el nivel de activación de los pacientes y los factores asociados ayuda al profesional de la salud a la obtención y/o mantenimiento de una alta activación.

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          Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L)

          Purpose This article introduces the new 5-level EQ-5D (EQ-5D-5L) health status measure. Methods EQ-5D currently measures health using three levels of severity in five dimensions. A EuroQol Group task force was established to find ways of improving the instrument’s sensitivity and reducing ceiling effects by increasing the number of severity levels. The study was performed in the United Kingdom and Spain. Severity labels for 5 levels in each dimension were identified using response scaling. Focus groups were used to investigate the face and content validity of the new versions, including hypothetical health states generated from those versions. Results Selecting labels at approximately the 25th, 50th, and 75th centiles produced two alternative 5-level versions. Focus group work showed a slight preference for the wording ‘slight-moderate-severe’ problems, with anchors of ‘no problems’ and ‘unable to do’ in the EQ-5D functional dimensions. Similar wording was used in the Pain/Discomfort and Anxiety/Depression dimensions. Hypothetical health states were well understood though participants stressed the need for the internal coherence of health states. Conclusions A 5-level version of the EQ-5D has been developed by the EuroQol Group. Further testing is required to determine whether the new version improves sensitivity and reduces ceiling effects.
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            Development and testing of a short form of the patient activation measure.

            The Patient Activation Measure (PAM) is a 22-item measure that assesses patient knowledge, skill, and confidence for self-management. The measure was developed using Rasch analyses and is an interval level, unidimensional, Guttman-like measure. The current analysis is aimed at reducing the number of items in the measure while maintaining adequate precision. We relied on an iterative use of Rasch analysis to identify items that could be eliminated without loss of significant precision and reliability. With each item deletion, the item scale locations were recalibrated and the person reliability evaluated to check if and how much of a decline in precision of measurement resulted from the deletion of the item. The data used in the analysis were the same data used in the development of the original 22-item measure. These data were collected in 2003 via a telephone survey of 1,515 randomly selected adults. Principal Findings. The analysis yielded a 13-item measure that has psychometric properties similar to the original 22-item version. The scores for the 13-item measure range in value from 38.6 to 53.0 (on a theoretical 0-100 point scale). The range of values is essentially unchanged from the original 22-item version. Subgroup analysis suggests that there is a slight loss of precision with some subgroups. The results of the analysis indicate that the shortened 13-item version is both reliable and valid.
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              EuroQol: the current state of play

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                Author and article information

                Journal
                enefro
                Enfermería Nefrológica
                Enferm Nefrol
                Sociedad Española de Enfermería Nefrológica (Madrid, Madrid, Spain )
                2254-2884
                2255-3517
                April 2021
                : 24
                : 1
                : 11-23
                Affiliations
                [2] Rio de Janeiro Rio de Janeiro orgnameUniversidade do Estado do Rio de Janeiro orgdiv1Residência de Enfermagem em Nefrologia Brazil
                [1] Minas Gerais Minas Gerais orgnameUniversidade Federal de Juiz de Fora orgdiv1Programa de Pós Graduação em Saúde Coletiva Brazil
                Article
                S2254-28842021000100002 S2254-2884(21)02400100002
                10.37551/s2254-28842021002
                6d4eb667-95ca-4150-9bd0-729385ccdc2a

                This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

                History
                : 15 January 2021
                : 01 October 2020
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 48, Pages: 13
                Product

                SciELO Spain


                nefrologia,doença renal crônica,activación,activation,autogestão,autogestión,self-management,nephrology,renal insufficiency chronic,insuficiencia renal crónica,ativação,nefrología

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