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      What outcomes are associated with developing and implementing co-produced interventions in acute healthcare settings? A rapid evidence synthesis

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          Abstract

          Background

          Co-production is defined as the voluntary or involuntary involvement of users in the design, management, delivery and/or evaluation of services. Interest in co-production as an intervention for improving healthcare quality is increasing. In the acute healthcare context, co-production is promoted as harnessing the knowledge of patients, carers and staff to make changes about which they care most. However, little is known regarding the impact of co-production on patient, staff or organisational outcomes in these settings.

          Aims

          To identify and appraise reported outcomes of co-production as an intervention to improve quality of services in acute healthcare settings.

          Design

          Rapid evidence synthesis.

          Data sources

          Medline, Cinahl, Web of Science, Embase, HMIC, Cochrane Database of Systematic Reviews, SCIE, Proquest Dissertation and Theses, EThOS, OpenGrey; CoDesign; The Design Journal; Design Issues.

          Study selection

          Studies reporting patient, staff or organisational outcomes associated with using co-production in an acute healthcare setting.

          Findings

          712 titles and abstracts were screened; 24 papers underwent full-text review, and 11 papers were included in the evidence synthesis. One study was a feasibility randomised controlled trial, three were process evaluations and seven used descriptive qualitative approaches. Reported outcomes related to (a) the value of patient and staff involvement in co-production processes; (b) the generation of ideas for changes to processes, practices and clinical environments; and (c) tangible service changes and impacts on patient experiences. Only one study included cost analysis; none reported an economic evaluation. No studies assessed the sustainability of any changes made.

          Conclusions

          Despite increasing interest in and advocacy for co-production, there is a lack of rigorous evaluation in acute healthcare settings. Future studies should evaluate clinical and service outcomes as well as the cost-effectiveness of co-production relative to other forms of quality improvement. Potentially broader impacts on the values and behaviours of participants should also be considered.

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          Most cited references32

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          Defining and Designing Mixed Research Synthesis Studies.

          Mixed research synthesis is the latest addition to the repertoires of mixed methods research and systematic review. Mixed research synthesis requires that the problems generated by the methodological diversity within and between qualitative and quantitative studies be resolved. Three basic research designs accommodate this diversity, including the segregated, integrated, and contingent designs. Much work remains to be done before mixed research synthesis can secure its place in the repertoires of mixed methods research and systematic review, but the effort is well worth it as it has the potential to enhance both the significance and utility for practice of the many qualitative and quantitative studies constituting shared domains of research.
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            Implementing patient-centred cancer care: using experience-based co-design to improve patient experience in breast and lung cancer services

            Purpose The aim of this paper was to briefly describe how the experience-based co-design (EBCD) approach was used to identify and implement improvements in the experiences of breast and lung cancer patients before (1) comparing the issues identified as shaping patient experiences in the different tumour groups and (2) exploring participants' reflections on the value and key characteristics of this approach to improving patient experiences. Methods Fieldwork involved 36 filmed narrative patient interviews, 219 h of ethnographic observation, 63 staff interviews and a facilitated co-design change process involving patient and staff interviewees over a 12-month period. Four of the staff and five patients were interviewed about their views on the value of the approach and its key characteristics. The project setting was a large, inner-city cancer centre in England. Results Patients from both tumour groups generally identified similar issues (or 'touchpoints') that shaped their experience of care, although breast cancer patients identified a need for better information about side effects of treatment and end of treatment whereas lung cancer patients expressed a need for more information post-surgery. Although the issues were broadly similar, the particular improvement priorities patients and staff chose to work on together were tumour specific. Interviewees highlighted four characteristics of the EBCD approach as being key to its successful implementation: patient involvement, patient responsibility and empowerment, a sense of community, and a close connection between their experiences and the subsequent improvement priorities. Conclusion EBCD positions patients as active partners with staff in quality improvement. Breast and lung cancer patients identified similar touchpoints in their experiences, but these were translated into different improvement priorities for each tumour type. This is an important consideration when developing patient-centred cancer services across different tumour types.
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              Pseudoinnovation: the development and spread of healthcare quality improvement methodologies.

              Over the last two decades, we have seen the successive rise and fall of a number of concepts, ideas or methods in healthcare quality improvement (QI). Paradoxically, the content of many of these QI methodologies is very similar, though their presentation often seeks to differentiate or distinguish them. This paper sets out to explore the processes by which new QI methodologies are developed and disseminated and the impact this has on the effectiveness of QI programmes in healthcare organizations. It draws on both a bibliometric analysis of the QI literature over the period from 1988 to 2007 and a review of the literature on the effectiveness of QI programmes and their evaluation. The repeated presentation of an essentially similar set of QI ideas and methods under different names and terminologies is a process of 'pseudoinnovation', which may be driven by both the incentives for QI methodology developers and the demands and expectations of those responsible for QI in healthcare organizations. We argue that this process has important disbenefits because QI programmes need sustained and long-term investment and support in order to bring about significant improvements. The repeated redesign of QI programmes may have damaged or limited their effectiveness in many healthcare organizations. A more sceptical and scientifically rigorous approach to the development, evaluation and dissemination of QI methodologies is needed, in which a combination of theoretical, empirical and experiential evidence is used to guide and plan their uptake. Our expectations of the evidence base for QI methodologies should be on a par with our expectations in relation to other forms of healthcare interventions.
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                Author and article information

                Journal
                BMJ Open
                BMJ Open
                bmjopen
                bmjopen
                BMJ Open
                BMJ Open (BMA House, Tavistock Square, London, WC1H 9JR )
                2044-6055
                2017
                11 July 2017
                : 7
                : 7
                : e014650
                Affiliations
                [1 ] Academic Unit of Elderly Care and Rehabilitation, Leeds Institute of Health Sciences , Bradford, UK
                [2 ] Faculty of Health Social Care and Education, St George's University of London , London, UK
                [3 ] departmentFlorence Nightingale Faculty of Nursing and Midwifery , King's College London , London, UK
                Author notes
                [Correspondence to ] David Clarke; d.j.clarke@ 123456leeds.ac.uk
                Article
                bmjopen-2016-014650
                10.1136/bmjopen-2016-014650
                5734495
                28701409
                6ec5bf4d-085a-4b4f-838a-f0c09ac14b64
                © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2017. All rights reserved. No commercial use is permitted unless otherwise expressly granted.

                This is an Open Access article distributed in accordance with the terms of the Creative Commons Attribution (CC BY 4.0) license, which permits others to distribute, remix, adapt and build upon this work, for commercial use, provided the original work is properly cited. See: http://creativecommons.org/licenses/by/4.0/

                History
                : 09 October 2016
                : 04 April 2017
                : 25 April 2017
                Funding
                Funded by: FundRef http://dx.doi.org/10.13039/501100002001, Health Services and Delivery Research Programme;
                Categories
                Health Services Research
                Research
                1506
                1704
                Custom metadata
                unlocked

                Medicine
                rapid evidence synthesis,systematic review,co-production,acute healthcare
                Medicine
                rapid evidence synthesis, systematic review, co-production, acute healthcare

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