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      The stigma perceived by people bereaved by suicide and other sudden deaths: A cross-sectional UK study of 3432 bereaved adults

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          Abstract

          Objective

          To test the hypothesis that perceived stigma scores in young adults bereaved by suicide are significantly higher than in young adults bereaved by other sudden deaths, whether blood-related to the deceased or not.

          Methods

          We conducted a cross-sectional study of all staff and students aged 18–40 at 37 UK higher educational institutions in 2010, and identified 3432 respondents who had experienced a sudden bereavement of a close contact since reaching the age of 10, either due to sudden natural causes, sudden unnatural causes, or suicide. We used multivariable regression to compare scores on the stigma, shame, responsibility and guilt subscales of the Grief Experience Questionnaire, adjusting for socio-demographic factors and pre-bereavement psychopathology.

          Results

          People bereaved by suicide (n = 614) had higher stigma scores than people bereaved by sudden natural death (n = 2106; adjusted coefficient = 2.52; 95% CI = 2.13–2.90; p = < 0.001) and people bereaved by sudden unnatural death (n = 712; adjusted coefficient = 1.69; 95% CI = 1.25–2.13; p = < 0.001). Shame, responsibility and guilt scores were also significantly higher in people bereaved by suicide, whether compared with bereavement by sudden natural death or sudden unnatural death. Associations were not modified by whether the bereaved was blood-related to the deceased or not.

          Conclusions

          Stigma was perceived more acutely by the relatives and friends of those who died by suicide than those bereaved by other causes of sudden natural or sudden unnatural death. Their high levels of perceived stigma, shame, responsibility and guilt require qualitative investigation to identify whether these grief dimensions limit social functioning, help-seeking behaviour and/or support offered.

          Highlights

          • No studies have confirmed if suicide confers more stigma than other sudden losses.

          • We compared people bereaved by suicide, sudden natural causes, and sudden unnatural causes.

          • We found suicide bereavement to be most stigmatising of sudden bereavements.

          • Suicide bereavement was also associated with shame, guilt, and responsibility.

          • Associations applied to both relatives and non-relatives.

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          Most cited references50

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          Stigma, shame, and blame experienced by patients with lung cancer: qualitative study.

          To draw on narrative interviews with patients with lung cancer and to explore their perceptions and experience of stigma. Qualitative study. United Kingdom. 45 patients with lung cancer recruited through several sources. Participants experienced stigma commonly felt by patients with other types of cancer, but, whether they smoked or not, they felt particularly stigmatised because the disease is so strongly associated with smoking. Interaction with family, friends, and doctors was often affected as a result, and many patients, particularly those who had stopped smoking years ago or had never smoked, felt unjustly blamed for their illness. Those who resisted victim blaming maintained that the real culprits were tobacco companies with unscrupulous policies. Some patients concealed their illness, which sometimes had adverse financial consequences or made it hard for them to gain support from other people. Some indicated that newspaper and television reports may have added to the stigma: television advertisements aim to put young people off tobacco, but they usually portray a dreadful death, which may exacerbate fear and anxiety. A few patients were worried that diagnosis, access to care, and research into lung cancer might be adversely affected by the stigma attached to the disease and those who smoke. Patients with lung cancer report stigmatisation with far reaching consequences. Efforts to help people to quit smoking are important, but clinical and educational interventions should be presented with care so as not to add to the stigma experienced by patients with lung cancer and other smoking related diseases.
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            Generalized Ordered Logit/Partial Proportional Odds Models for Ordinal Dependent Variables

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              Assessing individual differences in proneness to shame and guilt: development of the Self-Conscious Affect and Attribution Inventory.

              Individual differences in proneness to shame and proneness to guilt are thought to play an important role in the development of both adaptive and maladaptive interpersonal and intrapersonal processes. But little empirical research has addressed these issues, largely because no reliable, valid measure has been available to researchers interested in differentiating proneness to shame from proneness to guilt. The Self-Conscious Affect and Attribution Inventory (SCAAI) was developed to assess characteristic affective, cognitive, and behavioral responses associated with shame and guilt among a young adult population. The SCAAI also includes indices of externalization of cause or blame, detachment/unconcern, pride in self, and pride in behavior. Data from 3 independent studies of college students and 1 study of noncollege adults provide support for the reliability of the main SCAAI subscales. Moreover, the pattern of relations among the SCAAI subscales and the relation of SCAAI subscales to 2 extant measures of shame and guilt support the validity of this new measure. The SCAAI appears to provide related but functionally distinct indices of proneness to shame and guilt in a way that these previous measures have not.
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                Author and article information

                Contributors
                Journal
                J Psychosom Res
                J Psychosom Res
                Journal of Psychosomatic Research
                Pergamon Press
                0022-3999
                1879-1360
                1 August 2016
                August 2016
                : 87
                : 22-29
                Affiliations
                [a ]UCL Division of Psychiatry, University College London, Gower St, London WC1E 6BT, United Kingdom
                [b ]Camden and Islington NHS Foundation Trust, St Pancras Hospital, 4 Saint Pancras Way, London NW1 0PE, United Kingdom
                [c ]Education Unit, UCL Institute of Neurology, United Kingdom
                Author notes
                [* ]Corresponding author at: UCL Division of Psychiatry, Maple House, 149 Tottenham Court Road, London W1T 7NF, United Kingdom.UCL Division of PsychiatryMaple House149 Tottenham Court RoadLondonW1T 7NFUnited Kingdom a.pitman@ 123456ucl.ac.uk
                Article
                S0022-3999(16)30315-4
                10.1016/j.jpsychores.2016.05.009
                4988532
                27411748
                70e56ccc-e476-48e4-935f-1bff3db172df
                © 2016 The Authors

                This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).

                History
                : 24 February 2016
                : 8 May 2016
                : 26 May 2016
                Categories
                Article

                Clinical Psychology & Psychiatry
                bereavement,guilt,shame,stigma,suicide,responsibility
                Clinical Psychology & Psychiatry
                bereavement, guilt, shame, stigma, suicide, responsibility

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