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      Calidad de vida en el trastorno por déficit de atención con hiperactividad: percepción de padres e hijos Translated title: Quality of life in attention deficit hyperactivity disorder: perception of parents and children

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          Abstract

          Introducción: la calidad de vida relacionada con la salud (CVRS) es una dimensión relevante en la evaluación y consideración de los efectos de un tratamiento en el trastorno por déficit de atención con hiperactividad (TDAH). El objetivo del estudio es analizar las diferencias entre la percepción de padres e hijos en la CVRS en casos TDAH tratados farmacológicamente (TDAH-T), casos no tratados (TDAH-N) y controles. Material y métodos: muestra de 228 participantes entre 8 y 14 años (114 controles, 57 TDAH-T y 57 TDAH-N). Muestreo consecutivo de TDAH según DSM-IV (ADHD RS-IV) y muestreo aleatorio de controles emparejados por sexo y edad. Evaluación de CVRS mediante las diez dimensiones del KIDSCREEN-52 versión padres y versión hijos. Resultados: en los controles existen diferencias significativas entre padres e hijos en tres de las diez dimensiones del KIDSCREEN-52 (autonomía, autopercepción y recursos económicos), en cuatro dimensiones en TDAH-T (bienestar psicológico, autopercepción, entorno escolar y recursos económicos) y en seis dimensiones en TDAH-N (bienestar psicológico y físico, estado de ánimo, autopercepción, entorno escolar y recursos económicos). En todas las dimensiones donde existen diferencias significativas los hijos perciben mejor CVRS que la atribuida por los padres, excepto en la dimensión económica que sucede a la inversa. No existen diferencias significativas entre padres e hijos en controles, TDAH-N o TDAH-T en las dimensiones de aceptación social, relación con padres y amigos. Conclusiones: es necesario que en la evaluación que precede a cualquier intervención clínica se deban tener en cuenta las perspectivas de padres e hijos sobre la CVRS.

          Translated abstract

          Introduction: health-related quality of life (HRQL) is a relevant dimension in the evaluation and consideration of the effects of a treatment in Attention Deficit Hyperactivity Disorder (ADHD). The objective of the study is to analyze the differences on the perception between parents and children in the HRQL in ADHD cases treated pharmacologically (ADHD-T), untreated cases (ADHD-N) and controls. Material and methods: sample of 228 participants between 8 and 14 years old (114 controls, 57 ADHD-T and 57 ADHD-N). Consecutive sampling of ADHD according to DSM-IV (ADHD Rating Scales IV) and random sampling of controls matched by sex and age. HRQL assessment using the ten dimensions of the KIDSCREEN-52 parent version and child version. Results: there are significant differences between parents/children in three out of ten dimensions of KIDSCREEN-52 (autonomy, self-perception, and financial resources), in four ADHD-T dimensions (psychological well-being, self-perception, school environment, and financial resources), and in six ADHD-N dimensions (psychological and physical well-being, mood, self-perception, school environment and financial resources) in controls. Children perceive HRQL better than parents in all dimensions with significant differences, except for economic dimension (the opposite). There are no significant differences between parents/children in controls, ADHD-N or ADHD-T in the dimensions of social acceptance, relationship with parents and friends. Conclusions. it is necessary to take into account the perspectives of parents and children regarding HRQL in the evaluation preceding any clinical intervention.

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          Most cited references28

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          ADHD in children and young people: prevalence, care pathways, and service provision

          Attention-deficit hyperactivity disorder (ADHD) is a common childhood behavioural disorder. Systematic reviews indicate that the community prevalence globally is between 2% and 7%, with an average of around 5%. At least a further 5% of children have substantial difficulties with overactivity, inattention, and impulsivity that are just under the threshold to meet full diagnostic criteria for ADHD. Estimates of the administrative prevalence (clinically diagnosed or recorded) vary worldwide, and have been increasing over time. However, ADHD is still relatively under-recognised and underdiagnosed in most countries, particularly in girls and older children. ADHD often persists into adulthood and is a risk factor for other mental health disorders and negative outcomes, including educational underachievement, difficulties with employment and relationships, and criminality. The timely recognition and treatment of children with ADHD-type difficulties provides an opportunity to improve long-term outcomes. This Review includes a systematic review of the community and administrative prevalence of ADHD in children and adolescents, an overview of barriers to accessing care, a description of associated costs, and a discussion of evidence-based pathways for the delivery of clinical care, including a focus on key issues for two specific age groups-younger children (aged ≤6 years) and adolescents requiring transition of care from child to adult services.
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            A critical review of self-perceptions and the positive illusory bias in children with ADHD.

            Despite significant functional problems in multiple domains, children with Attention-Deficit/Hyperactivity Disorder (ADHD) unexpectedly provide extremely positive reports of their own competence in comparison to other criteria reflecting actual competence. This counterintuitive phenomenon is known as the positive illusory bias (PIB). This article provides a comprehensive and critical review of the literature examining the self-perceptions of children with ADHD and the PIB. Specifically, we analyze methodological and statistical challenges associated with the investigation of the phenomenon, the theoretical basis for the PIB, and the effects of sample heterogeneity on self-perception patterns. We conclude by discussing the implications of this work and providing recommendations for advancing research in this area.
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              Health-related quality of life and symptom reporting: similarities and differences between children and their parents.

              Health-related quality of life (HRQOL) is increasingly seen as important to reflect the impact of an illness and its treatment on a patient from the patient's perspective. However, there may be times when it is difficult to obtain this information directly from pediatric patients, and parents are therefore used as substitutes. Nevertheless, an informant discrepancy between children and their parents increase the need to identify variables which contribute to the observed differences between children's self-reports and parents' proxy-reports. Discrepancies between child and parent reports have often been regarded as "methodological error" and have led to misconceived arguments about who is "right." The aims of this review are to provide an overview and update to help understand the relation between children's self-report of their symptoms and HRQOL and parents' proxy-reports, the circumstances in which informant discrepancies might be expected, and potential reasons for these discrepancies. Discrepancies can be summarized in relation to characteristics of the child, the adult and the HRQOL domain being measured. We conclude that informant discrepancy is not simply an irritating measurement error, but also has its clinical implications. We argue that parents and children base their judgments of pediatric HRQOL on different information and as such, comprehensive evaluation needs to take account of both perspectives. This perspective has implications for the design of clinical trials and necessitates routine collection of data from both sources in clinical research and practice.
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                Author and article information

                Journal
                pap
                Pediatría Atención Primaria
                Rev Pediatr Aten Primaria
                Asociación Española de Pediatría de Atención Primaria (Madrid, Madrid, Spain )
                1139-7632
                March 2021
                : 23
                : 89
                : e1-e9
                Affiliations
                [8] Valladolid orgnameCentro de Salud Circular España
                [1] Palencia orgnameComplejo Asistencial Universitario de Palencia orgdiv1Servicio de Psiquiatría España
                [7] Valladolid orgnameCentro de Salud Laguna de Duero España
                [5] Valladolid orgnameCentro de Salud La Tórtola España
                [4] Santander orgnameHospital Universitario Marqués de Valdecilla orgdiv1Servicio de Psiquiatría España
                [6] Palencia orgnameComplejo Asistencial Universitario de Palencia orgdiv1Servicio Pediatría España
                [2] Valladolid orgnameHospital Recoletas Campo Grande orgdiv1Servicio de Pediatría España
                [3] Valladolid orgnameCentro de Salud Arturo Eyries España
                Article
                S1139-76322021000100006 S1139-7632(21)02308900006
                71fbadee-0685-4603-b613-ba65c6c0b7df

                This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

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                SciELO Spain

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                Calidad de vida,Trastorno por déficit de atención con hiperactividad,Attention-deficit hyperactivity disorder,Methylphenidate,Quality of life,Metilfenidato

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