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      ANÁLISIS SISTÉMICO DEL CUIDADO DE UNA NIÑA CON LEUCEMIA LINFOBLÁSTICA TIPO “B” EN UNA FAMILIA Translated title: SYSTEMIC ANALYSIS OF THE CARE OF A GIRL WITH TYPE "B" LYMPHOBLASTIC LEUKEMIA IN A FAMILY Translated title: ANÁLISE SISTÊMICA DO ATENDIMENTO DE UMA MENINA COM LEUCEMIA LINFOBLÁSTICA TIPO "B" EM UMA FAMÍLIA

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          Abstract

          En este estudio de caso se analiza desde el modelo sistémico la estructura familiar de una niña con leucemia linfoblástica tipo “B” en función al impacto de la enfermedad, a su afrontamiento y al tipo de cuidado y asistencia que se le brinda a la menor. La investigación revela los cambios en la estructura familiar. Además, expone la manifestación, las características, las actividades y los efectos de la sobrecarga en el cuidador familiar primario. Tiene como participante un sistema familiar que convive con la problemática del cáncer, lo cual origina reacciones emocionales y/o comportamentales en respuesta a un evento estresante psicosocial identificado. Contiene resultados desarrollados a través de técnicas de investigación que permiten la representación, la interpretación y la explicación de la información. Se recurre al análisis temático con el fin de organizar los relatos y facilitar su comprensión. Para verificar la validez de los sucesos se trabaja sobre triangulaciones en el registro de patrones de convergencia que facilitan el razonamiento integral del fenómeno examinado.

          Translated abstract

          In this case study, the family structure of a girl with "B" type lymphoblastic leukemia is analyzed from the systemic model in terms of the impact of the disease, its coping and the type of care and assistance provided to the child. The research reveals changes in the family structure. In addition, it exposes the manifestation, the characteristics, the activities and the effects of the overload on the primary family caregiver. It has as a participant a family system that coexists with the cancer problem, which originates emotional and / or behavioral reactions in response to an identified psychosocial stressful event. It contains results developed through research techniques that allow the representation, interpretation and explanation of information. The thematic analysis is used in order to organize the stories and facilitate their understanding. In order to verify the validity of the events, triangulations are worked on in the registration of convergence patterns that facilitate the integral reasoning of the phenomenon examined.

          Translated abstract

          Neste estudo de caso, a estrutura familiar de uma menina com leucemia linfoblástica tipo "B" é analisada a partir do modelo sistêmico em termos do impacto da doença, seu enfrentamento e o tipo de cuidado e assistência prestados à criança. A pesquisa revela mudanças na estrutura familiar. Além disso, expõe a manifestação, as características, as atividades e os efeitos da sobrecarga no cuidador familiar primário. Tem como participante um sistema familiar que coexiste com o problema do câncer, que origina reações emocionais e / ou comportamentais em resposta a um evento psicossocial estressante identificado. Contém resultados desenvolvidos através de técnicas de pesquisa que permitem a representação, interpretação e explicação da informação. A análise temática é utilizada para organizar as histórias e facilitar sua compreensão. Para verificar a validade dos eventos, as triangulações são trabalhadas no registro de padrões de convergência que facilitam o raciocínio integral do fenômeno examinado.

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          Most cited references31

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          Relatives of the Impaired Elderly: Correlates of Feelings of Burden

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            La entrevista en profundidad: una técnica útil dentro del campo antropofísico

            Los métodos cualitativos se apoyan en la "interpretación" de la realidad social, los valores, las costumbres, las ideologías y cosmovisiones se construirán a partir de un discurso subjetivo, ya que el investigador asignará un sentido y un significado particular a la experiencia del otro. Dentro de los estudios cualitativos existen diferentes técnicas que ayudan a aproximarse a los fenómenos sociales, entre estas la entrevista en profundidad juega un papel importante, ya que se construye a partir de reiterados encuentros cara a cara del investigador y los informantes con el objetivo de adentrarse en su intimidad y comprender la individualidad de cada uno. En este texto describiré las características principales de las entrevistas en profundidad como una forma clave de profundizar en la subjetividad social dentro del ámbito antropológico.
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              Methodology or method? A critical review of qualitative case study reports

              Despite on-going debate about credibility, and reported limitations in comparison to other approaches, case study is an increasingly popular approach among qualitative researchers. We critically analysed the methodological descriptions of published case studies. Three high-impact qualitative methods journals were searched to locate case studies published in the past 5 years; 34 were selected for analysis. Articles were categorized as health and health services (n=12), social sciences and anthropology (n=7), or methods (n=15) case studies. The articles were reviewed using an adapted version of established criteria to determine whether adequate methodological justification was present, and if study aims, methods, and reported findings were consistent with a qualitative case study approach. Findings were grouped into five themes outlining key methodological issues: case study methodology or method, case of something particular and case selection, contextually bound case study, researcher and case interactions and triangulation, and study design inconsistent with methodology reported. Improved reporting of case studies by qualitative researchers will advance the methodology for the benefit of researchers and practitioners.
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                Author and article information

                Journal
                rap
                Ajayu Órgano de Difusión Científica del Departamento de Psicología UCBSP
                Ajayu
                Universidad Cátolica Boliviana "San Pablo" (La Paz, , Bolivia )
                2077-2161
                March 2021
                : 19
                : 1
                : 214-247
                Affiliations
                [01] orgnameUniversidad Catolíca Boliviana 'San Pablo'
                Article
                S2077-21612021000100008 S2077-2161(21)01900100008
                76059c94-644d-45dc-bc0e-4d56ee47049c

                This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

                History
                : 04 April 2020
                : 22 January 2021
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 32, Pages: 34
                Product

                SciELO Bolivia

                Categories
                ARTÍCULO

                cuidador familiar e sobrecarga,família,câncer,cuidador familiar y sobrecarga,familia,cáncer,family caregiver and overload,family,cancer

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