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      Adaptação cultural e validação para a língua portuguesa da Parental Stress Scale: Neonatal Intensive Care Unit (PSS:NICU) Translated title: Cultural adaptation and validation for the portuguese language of the Parental Stress Scale: Neonatal Intensive Care Unit (PSS:NICU) Translated title: Adaptación cultural y validación al idioma português del Parental Stress Scale: Neonatal Intensive Care Unit (PSS:NICU)

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          Abstract

          OBJETIVO: Traduzir, realizar a adaptação cultural e validar a escala Parental Stress Scale:Neonatal Intensive Care Unit (PSS:NICU) para a língua portuguesa. MÉTODOS: Utilizou-se o método descritivo de validação de instrumentos de medida, baseado nas etapas propostas por Guillemin et al. A análise da confiabilidade foi realizada por meio dos testes e retestes e da consistência interna. Na validação clínica, participaram 163 pais de recém-nascidos internados em Unidade de Terapia Intensiva Neonatal (UTIN). RESULTADOS: Os coeficientes de correlação intraclasse ficaram em torno de 0,70 mostrando boa estabilidade entre as duas avaliações. A análise fatorial pelo método de componentes principais utilizou os mesmos critérios da escala original, com rotação Varimax, com grau de variância adequado de 57,9%. Os maiores níveis de estresse dos pais foram obtidos na subescala "alteração do papel de pais". CONCLUSÃO: A PSS:NICU na versão em português é uma ferramenta válida e confiável para avaliação do estresse de pais com filho internado na UTIN.

          Translated abstract

          OBJECTIVE: To translate, perform cultural adaptation and validation of the scale Parental Stress Scale: Neonatal Intensive Care Unit (PSS: NICU) for the Portuguese language. METHODS: We used the descriptive validation method of measurment instruments, based on the steps proposed by Guillemin et al. The reliability analysis was performed by means of the test - retest method and internal consistency. In the clinical validation, 163 parents of newborns hospitalized in the Neonatal Intensive Care Unit (NICU) were included. RESULTS: The intraclass correlation coefficients were around 0.70, showing good stability between the two assessments. Factor analysis by principal components method used the same criteria as the original scale, with Varimax rotation, with an appropriate degree of variance of 57.9%. The highest stress levels of parents were obtained in the subscale, "changing role of parents." CONCLUSION: The PSS: NICU in the Portuguese version is a valid and reliable tool for evaluating the stress of parents with children hospitalized in the NICU.

          Translated abstract

          OBJETIVO: Traducir, realizar la adaptación cultural y validar la escala Parental Stress Scale:Neonatal Intensive Care Unit (PSS:NICU) al idioma portugués. MÉTODOS: Se utilizó el método descriptivo de validación de instrumentos de medida, basado en las etapas propuestas por Guillemin et al. El análisis de la confiabilidad fue realizado por medio de los tests y retests y de la consistencia interna. En la validación clínica, participaron 163 padres de recién nacidos internados en una Unidad de Cuidados Intensivos Neonatal (UCIN). RESULTADOS: Los coeficientes de correlación intraclase quedaron alrededor de 0,70 mostrando buena estabilidad entre las dos evaluaciones El análisis factorial por el método de componentes principales utilizó los mismos criterios de la escala original, con rotación Varimax, con grado de varianza adecuado de 57,9%. Los mayores niveles de estrés de los padres fueron obtenidos en la subescala "alteración del papel de padres". CONCLUSIÓN: La PSS:NICU en la versión en portugués es una herramienta válida y confiable para la evaluación del estrés de padres con un hijo internado en la UCIN.

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          Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines

          Clinicians and researchers without a suitable health-related quality of life (HRQOL) measure in their own language have two choices: (1) to develop a new measure, or (2) to modify a measure previously validated in another language, known as a cross-cultural adaptation process. We propose a set of standardized guidelines for this process based on previous research in psychology and sociology and on published methodological frameworks. These guidelines include recommendations for obtaining semantic, idiomatic, experiential and conceptual equivalence in translation by using back-translation techniques and committee review, pre-testing techniques and re-examining the weight of scores. We applied these guidelines to 17 cross-cultural adaptation of HRQOL measures identified through a comprehensive literature review. The reporting standards varied across studies but agreement between raters in their ratings of the studies was substantial to almost perfect (weighted kappa = 0.66-0.93) suggesting that the guidelines are easy to apply. Further research is necessary in order to delineate essential versus optional steps in the adaptation process.
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            Measuring neonatal intensive care unit-related parental stress.

            This paper reports a study: (1) to determine the validity and reliability of the Parent Stressor Scale:Neonatal Intensive Care Unit (PSS:NICU) for use with United Kingdom (UK) parents; (2) compare UK scores with those from a contemporary reference sample from the United States (US), (3) to identify the sources of greatest NICU-related stressors for parents and (4) to identify demographic or situational factors influencing NICU-related parental stress. Evaluation of the adequacy of nursing care and psychosocial support services for parents of ill infants in the NICU requires valid and reliable measures of parental stress. The PSS:NICU is a well-validated scale developed in the US to measure NICU-related parental stress. However, it has not been tested in the UK. Consecutive samples of parents (n = 257) of infants in nine UK NICUs and two reference US units completed the PSS:NICU and the Spielberger State-Trait Anxiety Scale approximately 1 week after admission. Psychometric properties of the PSS:NICU, including internal consistency reliability and construct, concurrent and predictive validity, were evaluated. PSS:NICU scores were similar in the UK and US samples and high internal consistency reliability was found for all metrics (e.g. Overall Stress: 0.94 for both samples). A three-factor principal components solution accounted for 66% of the variance in the scores, with the items grouped into the three a priori scales specified in the PSS:NICU (Infant Behaviour and Appearance, Parental Role Alterations, and Sights and Sounds). Stress Occurrence and Overall Stress were moderately correlated with State Anxiety in both samples (r = 0.46-0.61, P < 0.001). Thirty-one per cent of the variance in Stress Occurrence in the UK sample was explained by State Anxiety, infant severity of illness score, parent gender, and less frequent visitation. The PSS:NICU demonstrated appropriate psychometrics in a large sample of parents from diverse NICUs in the UK. These findings support its wider use in research and clinical practice to identify parental distress and evaluate the effectiveness of nursing care and psychosocial support services for parents.
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              How parents of premature infants gather information and obtain support.

              To identify the process by which parents of premature infants seek information, the kinds of information they seek, and the resources they use to meet their educational and support needs. Descriptive study using 19 parent interviews and 64 questionnaires. MAIN OUTCOME VARIABLE; The process parents use to obtain information and support. Parents of premature infants make a transition from being passive recipients of information to actively seeking it. They spend 10-20 hours a week gathering information during the first month of the baby's hospitalization. They desire more information than is provided, particularly in the areas of infant health, infant care, and coping. Family is the primary source of support prior to birth and after discharge, but during the infant's convalescence, nurses are the main source of support and help for parents in understanding and adapting to their baby. Many parents would use a computer-based resource for information if it were available to them.
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                Author and article information

                Journal
                ape
                Acta Paulista de Enfermagem
                Acta paul. enferm.
                Escola Paulista de Enfermagem, Universidade Federal de São Paulo (São Paulo, SP, Brazil )
                0103-2100
                1982-0194
                2012
                : 25
                : 2
                : 171-176
                Affiliations
                [01] São Carlos SP orgnameUniversidade Federal de São Carlos Brasil
                [02] São Paulo SP orgnameUniversidade Federal de São Paulo orgdiv1Escola Paulista de Enfermagem Brasil
                Article
                S0103-21002012000200003 S0103-2100(12)02500200003
                10.1590/S0103-21002012000200003
                8a4d02f2-4216-44ab-a7ae-5ffc3453c094

                This work is licensed under a Creative Commons Attribution 4.0 International License.

                History
                : 16 April 2010
                : 19 January 2012
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 18, Pages: 6
                Product

                SciELO Revista de Enfermagem

                Categories
                Artigos Originais

                Enfermagem neonatal,Unidades de terapia intensiva neonatal,Estudos de validação,Questionários,Linguagem,Estrés psicológico,Padres,Enfermeria neonatal,Unidades de cuidado intensivo neonatal,Estudios de validación,Cuestionarios,Lenguaje,Stress,psychological,Parents,Neonatal nursing,Intensive care units, neonatal,Validation studies,Questionnaires,Language,Estresse psicológico,Pais

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