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      The social functioning in dementia scale (SF-DEM): Exploratory factor analysis and psychometric properties in mild, moderate, and severe dementia

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          Abstract

          Introduction

          The psychometric properties of the social functioning in dementia scale over different dementia severities are unknown.

          Methods

          We interviewed 299 family carers of people with mild, moderate, or severe dementia from two UK research sites; examined acceptability (completion rates); conducted exploratory factor analysis; and tested each factor's internal consistency and construct validity.

          Results

          Of 299, 285 (95.3%) carers completed questionnaires. Factor analysis indicated three distinct factors with acceptable internal consistency: spending time with other people, correlating with overall social function (r = 0.56, P < .001) and activities of daily living (r = −0.48, P < .001); communicating with other people correlating with activities of daily living (r = −0.66, P < .001); and sensitivity to other people correlating with quality of life (r = 0.35, P < .001) and inversely with neuropsychiatric symptoms (r = −0.45, P < .001). The three factors' correlations with other domains were similar across all dementia severities.

          Discussion

          The social functioning in dementia scale carer version measures three social functioning domains and has satisfactory psychometric properties in all severities of dementia.

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          Most cited references7

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          Dementia prevention, intervention, and care

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            The experience of dementia

            T Kitwood (1997)
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              Suffering from dementia - the patient's perspective: a review of the literature.

              Among the general public there is a deep fear of developing dementia, which has led to an increasing number of people "at risk" seeking ways (such as advance directives) to avoid undergoing progressive mental decline. The views of people with dementia are vital in obtaining a real answer to the question of how the disease affects people's lives and whether it actually involves the suffering that so many fear. A review of the international literature is provided on what is known about living through dementia from the patient's perspective. A total of 50 papers met the inclusion criteria. The findings of these reviewed papers give insight into the impact of dementia and the ways that those who have it deal with its effects by using different coping strategies. The literature on the perspective of the patient gives no solid support to the widespread assumption that dementia is necessarily a state of dreadful suffering. Although the impact of dementia and the experiences of loss resulting in multiple "negative" emotions cannot be denied, our findings also indicate that people do not undergo the disease passively and use both emotion-oriented and problem-oriented coping strategies to deal with its challenges. The experiences of living through dementia as told by the sufferers appear to yield a more subtle picture than the assumptions made by the general public. The overview provides a good starting point for improving the adjustment of care to the experience and wishes of people with dementia.
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                Author and article information

                Contributors
                Journal
                Alzheimers Dement (Amst)
                Alzheimers Dement (Amst)
                Alzheimer's & Dementia : Diagnosis, Assessment & Disease Monitoring
                Elsevier
                2352-8729
                02 January 2019
                December 2019
                02 January 2019
                : 11
                : 45-52
                Affiliations
                [a ]Division of Psychiatry, University College London, London, UK
                [b ]Camden and Islington NHS Foundation Trust, St Pancras Hospital, London, UK
                [c ]School of Psychology, University of Kent, Canterbury, UK
                [d ]Centre for Dementia Studies, Brighton and Sussex Medical School, University of Sussex, Brighton, East Sussex, UK
                Author notes
                []Corresponding author. Tel.: 020 7679 9248. a.sommerlad@ 123456ucl.ac.uk
                Article
                S2352-8729(18)30077-0
                10.1016/j.dadm.2018.11.001
                6317324
                8bcc409a-599b-471f-b3aa-804cfdee876a
                © 2018 The Authors

                This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).

                History
                Categories
                Cognitive & Behavioral Assessment

                psychometrics,factor analysis,social behaviour,dementia,behavior rating scale

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