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      Translation and Validation of the Malay Version of the Parents’ Satisfaction Scale (PSS-M) for Assessment of Caregivers’ Satisfaction with Health Care Services for Children with Autism Spectrum Disorder

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          Abstract

          Background: A Malay version of Parent Satisfaction Scale (PSS-M) is needed to investigate the factors contributing to the Malay caregivers’ satisfaction with health care management for children with autism spectrum disorder (ASD). The aim of the study is to translate and validate the questionnaire to assess the caregivers’ satisfaction on health care services. Methods: A cross-sectional study was conducted among 110 caregivers of children with ASD aged between 2 and 17 years old that received treatment at two tertiary care centres in Kelantan. Permission to use the original version of the PSS questionnaire was obtained. The original English version of the PSS was translated into a Malay version following the 10 steps proposed by an established guideline. Pre-testing of the PSS was carried out with 30 caregivers before confirmatory factor analysis (CFA) was established using 110 caregivers. They were asked to assess their understanding of the questionnaire. The one-dimensional questionnaire consists of 11 items, including staff attitudes, availability of staff, supportiveness, and helpfulness. The 5-point Likert scale provided ratings from 1 (strongly disagree) to 5 (strongly agree). Confirmatory factor analysis was performed using a robust maximum likelihood estimator. Results: The analysis showed model fit data with good reliability. Conclusion: The PSS-M shows overall model fitness based on specific indices, with good construct validity and excellent absolute reliability to determine the satisfaction level of caregivers of children with ASD with respect to health care services.

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          Most cited references 17

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          Estimation of congeneric scale reliability using covariance structure analysis with nonlinear constraints.

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          A method of composite reliability estimation using covariance structure analysis with nonlinear constraints is outlined. To motivate the developments, initially a short overview of research is presented, demonstrating that in many cases the widely used coefficient alpha is an unsatisfactory index of scale reliability already at the population level. As an alternative, the proposed covariance structure analysis procedure is based on the theoretical formula of the scale reliability coefficient in terms of parameters pertaining to a given set of congeneric components. The described approach is illustrated with several numerical examples and its performance compared with that of coefficient alpha.
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            Assessing the diagnostic experiences of a small sample of parents of children with autism spectrum disorders.

            Although no Canadian studies have been conducted, studies suggest parents of children with autism experience difficulties obtaining a diagnosis for their child. Fifty-six parents of children with autism completed three questionnaires providing information on the families' demographics, parents' experiences throughout the diagnostic process, and their child's autistic symptomatology. These parents experienced significant difficulties obtaining a diagnosis for their child. Parents saw an average of 4.5 professionals, and waited almost 3 years to receive a diagnosis following their first visit to a professional regarding their child's development. The impact of autistic symptomatology on the diagnostic process is discussed.
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                Author and article information

                Journal
                Int J Environ Res Public Health
                Int J Environ Res Public Health
                ijerph
                International Journal of Environmental Research and Public Health
                MDPI
                1661-7827
                1660-4601
                04 November 2018
                November 2018
                : 15
                : 11
                Affiliations
                [1 ]Department of Community Medicine, School of Medical Sciences, Universiti Sains Malaysia, Kubang Kerian, Kota Bharu, 16150 Kelantan, Malaysia; eyedasyukran@ 123456gmail.com (N.A.N.A.); azriani@ 123456usm.my (A.A.R.)
                [2 ]Department of Psychiatric, School of Medical Sciences, Hospital Universiti Sains Malaysia, Kubang Kerian, Kota Bharu, 16150 Kelantan, Malaysia; raishanshafini@ 123456usm.my
                [3 ]Department of Pediatric, Hospital Raja Perempuan Zainab II, Kota Bharu, 15150 Kelantan, Malaysia; drazni@ 123456yahoo.co.uk
                [4 ]Department of Psychiatric, Hospital Raja Perempuan Zainab II, Kota Bharu, 15150 Kelantan, Malaysia; suriahussin74@ 123456yahoo.com.my
                [5 ]Unit of Biostatistics and Research Methodology, School of Medical Sciences, Universiti Sains Malaysia, Kubang Kerian, Kota Bharu, 16150 Kelantan, Malaysia; wnarifin@ 123456usm.my
                Author notes
                [* ]Correspondence: ismaildr@ 123456usm.my ; Tel.: +06097676621 or +06129898604
                Article
                ijerph-15-02455
                10.3390/ijerph15112455
                6265777
                30400357
                © 2018 by the authors.

                Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license ( http://creativecommons.org/licenses/by/4.0/).

                Categories
                Article

                Public health

                pss-m, caregivers’ satisfaction, confirmatory factor analysis, validity

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