Cuidados neonatales respiratorios para bebes prematuros. Apoyos que valoran los padres y cuidadores de niños prematuros con soporte respiratorio

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Resumen Referencia del documento de práctica clínica basada en la evidencia: National Guideline Alliance (UK). Specialist neonatal respiratory care for babies born preterm. London: National Institute for Health and Care Excellence (UK); 2019 Apr.

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Psychosocial support for parents of extremely preterm infants in neonatal intensive care: a qualitative interview study

Anna Bry, Helena Wigert (2019)

Background Extremely premature infants (those born before 28 weeks’ gestational age) are highly immature, requiring months of care at a neonatal intensive care unit (NICU). For parents, their child’s grave medical condition and prolonged hospitalization are stressful and psychologically disruptive. This study aimed at exploring the needs of psychosocial support of parents of extremely premature infants, and how the NICU as an organization and its staff meets or fails to meet these needs. Method Sixteen open-ended interviews were conducted with 27 parents after their infant’s discharge from the NICU. Inductive content analysis was performed. Results Four themes were identified: Emotional support (with subthemes Empathic treatment by staff, Other parents as a unique source of support, Unclear roles of the various professions); Feeling able to trust the health care provider; Support in balancing time spent with the infant and other responsibilities; Privacy. Parents of extremely premature infants needed various forms of emotional support at the NICU, including support from staff, professional psychological help and/or companionship with other patients’ parents. Parents were highly variable in their desire to discuss their emotional state with staff. The respective roles of nursing staff, social workers and psychologists in supporting parents emotionally and identifying particularly vulnerable parents appeared unclear. Parents also needed to be able to maintain a solid sense of trust in the NICU and its staff. Poor communication with and among staff, partly due to staff discontinuity, damaged trust. Parents struggled with perceived pressure from staff to be at the hospital more than they could manage and with the limited privacy of the NICU. Conclusions The complex and individual psychosocial needs of parents of extremely preterm infants present many challenges for the NICU and its staff. Increasing staffing and improving nurses’ competence in addressing psychosocial aspects of neonatal care would help both nurses and families. Clarifying the roles of different professions in supporting parents and developing their teamwork would lessen the burden on nurses. Communicating with parents about their needs and informing them early in their NICU stay about available support would be essential in helping them cope with their infant’s hospitalization.

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The neonatal nurses' view of their role in emotional support of parents and its complexities.

Aviaja Anna Hansen, Melanie Turner, Helen Winefield (2014)

To explore the nurses' views of their role both in the neonatal intensive care unit and in the provision of interacting with, and emotionally supporting, families. The neonatal intensive care nurse has a large and complex clinical role and also a role of emotional supporter for parents in the neonatal intensive care unit. Identifying components of their role and recognising the elements within the nursery that obstruct or encourage this role can allow for modification of nurse education and peer support. Qualitative study based on semistructured interviews. Nine neonatal nurses from a single neonatal intensive care unit were interviewed and the data analysed thematically using NVIVO version 10. Participants viewed their role as an enjoyable yet difficult one, requiring seniority, training and experience. They provided support to parents by communicating, listening, providing individualised support and by encouraging parental involvement with their baby. Constructive elements that contributed to the provision of support included a positive neonatal intensive care unit environment and providing a parent support group. More obstructive elements were a lack of physical neonatal intensive care unit space, little time available for nurse-to-parent conversation and language and cultural barriers between nurses and parents. The role of the neonatal nurse in providing emotional support is complex and requires a high level of ongoing support and education for staff, and minimisation of physical and staff-related obstructions. The modern neonatal intensive care unit offers complex medical and nursing services and with this care comes higher needs from both babies and their parents. Neonatal intensive care unit nurses should be supported in their roles by having peer support available in the neonatal intensive care unit and education and training in emotional support and counselling skills. The nursing staff also require a comfortable and practical physical working space in which to assist parents to be with their baby. © 2014 John Wiley & Sons Ltd.

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Cuidados psicosociales dirigidos a los padres en una unidad de Cuidados Intensivos Neonatales (UCIN)

L GarcÌa (2019)

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Journal ID (publisher-id): ene

Title: Ene

Abbreviated Title: Ene.

Publisher: Martín Rodríguez Álvaro (Santa Cruz de La Palma, La Palma, Spain )

ISSN (Electronic): 1988-348X

Publication date (Print and electronic): 2021

Volume: 15

Issue: 3

Electronic Location Identifier: 1337

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[1] orgnameHospital Universitario Marqués de Valdecilla orgdiv1Unidad Neonatal España

[2] orgnameServicio Cántabro de Salud orgdiv1Subdirección de Cuidados España

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Publisher ID: S1988-348X2021000300013 Publisher ID: S1988-348X(21)01500300013

SO-VID: 8d05a5a1-506e-46e3-a205-538a109c5574

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This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.

Cuidados neonatales respiratorios para bebes prematuros. Apoyos que valoran los padres y cuidadores de niños prematuros con soporte respiratorio

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Psychosocial support for parents of extremely preterm infants in neonatal intensive care: a qualitative interview study

The neonatal nurses' view of their role in emotional support of parents and its complexities.

Cuidados psicosociales dirigidos a los padres en una unidad de Cuidados Intensivos Neonatales (UCIN)

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