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      The stigma associated with bereavement by suicide and other sudden deaths: A qualitative interview study

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          Abstract

          Quantitative studies have found that suicide bereavement is associated with suicide attempt, and is perceived as the most stigmatising of sudden losses. Their findings also suggest that perceived stigma may explain the excess suicidality. There is a need to understand the nature of this stigma and address suicide risk in this group. We aimed to describe and compare the nature of the experiences of stigma reported by people bereaved by suicide, sudden unnatural death, and sudden natural death, and identify any commonalities and unique experiences. We conducted a population-based cross-sectional survey of 659,572 staff and students at 37 British higher educational institutions in 2010, inviting those aged 18–40 who had experienced sudden bereavement of a close contact since the age of 10 to take part in an on-line survey and to volunteer for an interview to discuss their experiences. We used maximum variation sampling from 1398 volunteer interviewees to capture a range of experiences, and conducted individual face-to-face semi-structured interviews to explore perceptions of stigma and support. We continued sampling until no new themes were forthcoming, reaching saturation at n = 27 interviews (11 participants bereaved by suicide). We employed thematic analysis to identify any distinct dimensions of reported stigma, and any commonalities across the three groups. We identified two key themes: specific negative attitudes of others, and social awkwardness. Both themes were common to interviewees bereaved by suicide, sudden unnatural death, and sudden natural death. All interviewees reported the experience of stigmatising social awkwardness, but this may have been experienced more acutely by those bereaved by suicide due to self-stigma. This study provides evidence of a persistent death taboo in relation to sudden deaths. There is potential for anti-stigma interventions to reduce the isolation and social awkwardness perceived by people bereaved suddenly, particularly after suicide loss.

          Highlights

          • Explores stigma after suicide, unnatural deaths and sudden natural deaths.

          • First qualitative study internally comparing these three groups' experiences.

          • All three groups described stigmatising social awkwardness.

          • The death taboo in relation to sudden deaths is particularly marked after suicide.

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          Most cited references36

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          Using thematic analysis in psychology

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            Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

            Qualitative research explores complex phenomena encountered by clinicians, health care providers, policy makers and consumers. Although partial checklists are available, no consolidated reporting framework exists for any type of qualitative design. To develop a checklist for explicit and comprehensive reporting of qualitative studies (in depth interviews and focus groups). We performed a comprehensive search in Cochrane and Campbell Protocols, Medline, CINAHL, systematic reviews of qualitative studies, author or reviewer guidelines of major medical journals and reference lists of relevant publications for existing checklists used to assess qualitative studies. Seventy-six items from 22 checklists were compiled into a comprehensive list. All items were grouped into three domains: (i) research team and reflexivity, (ii) study design and (iii) data analysis and reporting. Duplicate items and those that were ambiguous, too broadly defined and impractical to assess were removed. Items most frequently included in the checklists related to sampling method, setting for data collection, method of data collection, respondent validation of findings, method of recording data, description of the derivation of themes and inclusion of supporting quotations. We grouped all items into three domains: (i) research team and reflexivity, (ii) study design and (iii) data analysis and reporting. The criteria included in COREQ, a 32-item checklist, can help researchers to report important aspects of the research team, study methods, context of the study, findings, analysis and interpretations.
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              A method of analysing interview transcripts in qualitative research.

              P Burnard (1991)
              A method of analysing qualitative interview data is outlined as a stage-by-stage process. Some of the problems associated with the method are identified. The researcher in the field of qualitative work is urged to be systematic and open to the difficulties of the task of understanding other people's perceptions.
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                Author and article information

                Contributors
                Journal
                Soc Sci Med
                Soc Sci Med
                Social Science & Medicine (1982)
                Pergamon
                0277-9536
                1873-5347
                1 February 2018
                February 2018
                : 198
                : 121-129
                Affiliations
                [a ]UCL Division of Psychiatry, 6th floor, Maple House, 149 Tottenham Court Road, London, W1T 7NF, United Kingdom
                [b ]Camden and Islington NHS Foundation Trust, St Pancras Hospital, 4 Saint Pancras Way, London NW1 0PE, United Kingdom
                [c ]UCL Research Department of Primary Care & Population Health, UCL Medical School, Royal Free Campus, Rowland Hill St, London NW3 2PF, United Kingdom
                Author notes
                []Corresponding author. UCL Division of Psychiatry, 6th floor, Maple House, 149 Tottenham Court Road, London W1T 7NF, United Kingdom.UCL Division of Psychiatry6th floor, Maple House149 Tottenham Court RoadLondonW1T 7NFUnited Kingdom a.pitman@ 123456ucl.ac.uk
                Article
                S0277-9536(17)30779-7
                10.1016/j.socscimed.2017.12.035
                5884304
                29316512
                8d10581f-97fb-4954-8ac0-848b310a5210
                © 2018 The Authors

                This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).

                History
                : 30 May 2017
                : 12 December 2017
                : 28 December 2017
                Categories
                Article

                Health & Social care
                stigma,suicide,bereavement,grief,social support,taboo,united kingdom
                Health & Social care
                stigma, suicide, bereavement, grief, social support, taboo, united kingdom

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