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      Empowering autistic adults through their involvement in the development of a virtual world

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          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Purpose

          People with cognitive disabilities have a right to an inclusive society, and to have access to services and products that meet their specific needs. Participatory design (PD) represents a potentially effective way to ensure these rights, because users become influencers of the technological development and design process, are actively involved in the customization of that technology and develop a relationship with the designers/developers. Literature suggests that user involvement in technology development produces better products and has shown that this process offers users a voice and the process is also conducive to mutual learning between researchers and participants. This paper aims to discuss these issues.

          Design/methodology/approach

          Here the authors will present the development of a virtual world (VW) platform, having as a starting point a minimally viable initial version. This was followed by the creation of a networking framework to test each feature of the VW, which allowed connected users, most of whom on the autistic spectrum, to interact with each other in real time in the VW, and to see each other’s effects. Stress testing sessions were initiated with a mixed group of 15 users, 8 of whom with autism (7 male and 1 female). Ten of the participants were male and five were female ( Figure 1).

          Findings

          Even though the platform is feature-complete, its code is still in development; features can be improved/expanded upon, which necessitates further testing. The most commonly flagged issues from the stress testing were requests for videos/text manuals, the camera controls and chat message errors. These were implemented/fixed or added to the feature roadmap. “Heavy avatar customization” was also suggested, which has conceptual merit, but is not a priority.

          Practical implications

          PD is an inclusive approach that addresses personal needs and preferences, matching up the person with the tools and environments to ensure equity and inclusion. The VW whose development is described in this paper has been used for communication skills training with autistic young adults. It could be used for other social, life, academic and vocational skills training. This type of training through VR/VW may help enhance the employment-related skills of neurodiverse populations (and thus empower independent living) and has the potential for broader implementation and wider access in terms of distance learning.

          Originality/value

          This paper adds to the rather limited literature on applying PD approaches in the development of products for people with neurodevelopmental disabilities. The authors will present such a process for the development of a VW with people with autism. Although literature suggests that user involvement produces better outcomes, adopting this approach is not straightforward. The paper will describe in detail not only the contribution the participants made in every phase but also the limitations of applying a PD approach with a neurodiverse population, in order for them to be equal partners in the process and be involved in a meaningful way.

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          Most cited references 30

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          Games, Motivation, and Learning: A Research and Practice Model

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            The Proteus Effect: Implications of Transformed Digital Self-Representation on Online and Offline Behavior

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              Digital Game-Based Learning in high school Computer Science education: Impact on educational effectiveness and student motivation

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                Author and article information

                Contributors
                Journal
                AIA
                10.1108/AIA
                Advances in Autism
                AIA
                Emerald Publishing
                2056-3868
                26 September 2019
                : 5
                : 4
                : 303-317
                Affiliations
                SMARTlab, University College Dublin , Dublin, Ireland
                HIVE-RD LLP, London, UK
                Author notes
                Yurgos Politis is the corresponding author and can be contacted at: yurgos.politis@ucd.ie; yurgos.politis@gmail.com
                Article
                630745 AIA-01-2019-0001.pdf AIA-01-2019-0001
                10.1108/AIA-01-2019-0001
                © Emerald Publishing Limited
                Page count
                Figures: 4, Tables: 2, Equations: 0, References: 54, Pages: 15, Words: 8459
                Product
                Categories
                case-report, Case study
                cat-HSC, Health & social care
                cat-LID, Learning & intellectual disabilities
                Custom metadata
                yes
                yes
                JOURNAL
                included

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