Do health and social support and personal autonomy have an influence on the health-related quality of life of individuals with intellectual disability?

Abstract

Background

The aim of this study was to assess the relation between perceived social support and personal autonomy of individuals with intellectual disabilities and Health-Related Quality of Life.

Methods

A cross-sectional study with a multicentre sample was carried out including 162 institutionalized individuals with intellectual disability. The measurement tool was a structured questionnaire with sociodemographic variables, and three scales: Functional Independence Measure(FIM) scale, Duke-UNC Functional Social Support Questionnaire, and SF-36 Health Survey, which were completed during an individual/family interview.

Results

The perception of received social support is high on all 11 items of the Duke-UNC questionnaire, with an average of 3.45 for item-1 and 4.85 for item-11, which represents a total perceived support of an average 47.98 points (±SD7.30) (normal support). The Mental-Health component is rated worse than Physical-Health (67.41 vs. 71.74). The average rates for the different dimensions range from 57.34 points for Social-Functioning (the lowest rating) to 79.61 points for Bodily-Pain (highest rating). A multiple linear regression analysis reveals that the dimensions of Physical-Functioning ( p < 0.001), Role-Physical ( p = 0.016) and Bodily-Pain ( p = 0.022), which are elements of the Physical-Health component, are independent predictive variables with the Degree of Autonomy (FIM) as a dependent variable. Social-Support ( Duke-UNC) as a dependent variable is determined by the dimensions of Vitality ( p = 0.014), Role-Emotional ( p = 0.001) and Mental-Health ( p < 0.001), which are part of the Mental-Health component and act as independent predictive variables.

Conclusions

Individuals with intellectual disability and a higher degree of personal autonomy determined by institutional and family support report better Health and Quality of Life.

Electronic supplementary material

The online version of this article (10.1186/s12913-018-3856-5) contains supplementary material, which is available to authorized users.