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      The effect of social support on the quality of life of patients with multiple sclerosis Translated title: Efeito do apoio social na qualidade de vida de pacientes com esclerose múltipla

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          Abstract

          OBJECTIVE: To determine the predictive value of social support on health related quality of life (HRQoL) in multiple sclerosis (MS) patients. METHODS: The sample is composed by 150 MS consecutive patients. We used the Medical Outcomes Study Social Support Survey to assess social support and the Health Status Questionnaire to assess HRQoL. For inferential analysis, we used the Multiple Linear Regression with stepwise selection of variables. RESULTS: The age, basic education, psychological support and disability explains 41.6% of the variance in physical function, 29.4% in physical performance and 30.6% in emotional performance. Age and psychological support explains 23.1% of the variance in physical function and 29.4% in vitality. CONCLUSION: This study demonstrated that social support is a predictor with a significant effect on HRQoL in MS.

          Translated abstract

          OBJETIVO: Determinar o valor preditivo do apoio social na qualidade de vida relacionada com a saúde dos doentes com esclerose múltipla (HRQoL). MÉTODO: Cento e cinquenta doentes foram consecutivamente avaliados na consulta de esclerose múltipla. Usamos o Medical Outcomes Study Social Support Survey para avaliar o apoio social e o Health Status Questionnaire para avaliar a qualidade de vida. Na análise inferencial, utilizamos a regressão múltipla linear com a seleção de variáveis passo a passo. RESULTADOS: A idade, a educação básica, o apoio psicológico e a incapacidade explicam 41,6% da variância na função física, 29,4% da variância no desempenho físico e 30,6% da variância no desempenho emocional. Idade e apoio psicológico explicam 23,1% da variância na função física e 29,4% na vitalidade. CONCLUSÃO: Este estudo demonstrou que o apoio social é o preditor com um efeito significativo sobre HRQoL.

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          Most cited references27

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          Conceptual, methodological, and theoretical problems in studying social support as a buffer against life stress.

          P. Thoits (1982)
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            [Development of the Portuguese version of MOS SF-36. Part II --Validation tests].

            This paper describes the study aimed at validating the Portuguese version of the MOS SF-36 instrument of assessment. It starts by presenting the results of the implementation of this instrument in a sample of 930 pregnant women and the results of scaling tests, including the values of internal consistency and reliability. However, since a reliable instrument is not necessarily a valid one, the results of several validity tests are also presented. Finally, this paper ends by recommending the use of the Portuguese version of the SF-36 instrument of assessment.
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              Relationship between Psychosocial Factors and Onset of Multiple Sclerosis

              Objective: The aim of this study was to investigate the influence of psychosocial variables on patients with multiple sclerosis (MS) and the relationship between these variables and the onset of MS. Background: The current evidence indicates that many types of psychosocial factors are involved in the development and relapse of MS, and it has been suggested that they could serve as predictors as well. So far, little has been reported on the effect of psychosocial factors on MS and the relationship between psychosocial factors and the onset of MS. Methods: Forty-one patients, 15 males and 26 females, average age 37.44 ± 12.24 years (mean ± SD), were evaluated by the Life Event Scale, Eysenck Personality Questionnaire, Social Support Revaluate Scale and Symptom Check List 90 and compared with 41 equivalent healthy control subjects, 15 males and 26 females, average age 36.38 ± 12.84 years (mean ± SD). Disease, demographic, psychosocial and lifestyle factors were measured at baseline. Patients with MS were first diagnosed by 3 neurologists according to the Poser (1983) MS diagnostic criteria. Results: Significant differences were found between the MS and the control group in their negative emotions and symptoms such as depression, anxiety, obsession, phobia, tense interpersonal relationship and somatization disorder. Significant differences were found between the two groups in the total number of negative life events, their family problems and the utilization of social support. The scores for various negative emotions in the MS group correlated positively with those for neuroticisms in personality type, and negatively with those for introverted and extroverted personality. Many kinds of negative emotions in the MS group correlated positively with the total number of life events, negative life events and family problems. Many kinds of negative emotions in the MS group correlated negatively with the utilization of social support. Conclusion: The psychosocial factors are closely associated with MS onset and may play important roles in the development of the disease.
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                Author and article information

                Contributors
                Role: ND
                Role: ND
                Role: ND
                Journal
                anp
                Arquivos de Neuro-Psiquiatria
                Arq. Neuro-Psiquiatr.
                Academia Brasileira de Neurologia - ABNEURO (São Paulo )
                1678-4227
                February 2012
                : 70
                : 2
                : 108-113
                Affiliations
                [1 ] School of Social Work Portugal
                [2 ] Hospital S. João
                [3 ] Universidade Fernando Pessoa Portugal
                [4 ] Universidade da Beira Interior Portugal
                [5 ] National Institute of Health Doutor Ricardo Jorge Portugal
                Article
                S0004-282X2012000200007
                10.1590/S0004-282X2012000200007
                8ed4e8c3-3a12-496b-b512-15536342ad0a

                http://creativecommons.org/licenses/by/4.0/

                History
                Product

                SciELO Brazil

                Self URI (journal page): http://www.scielo.br/scielo.php?script=sci_serial&pid=0004-282X&lng=en
                Categories
                NEUROSCIENCES
                PSYCHIATRY

                Neurosciences,Clinical Psychology & Psychiatry
                multiple sclerosis,disability,social support,quality of life,esclerose múltipla,incapacidade,apoio social,qualidade de vida

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