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      Photovoice Ethics: Critical Reflections From Men’s Mental Health Research

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          Abstract

          As photovoice continues to grow as a method for researching health and illness, there is a need for rigorous discussions about ethical considerations. In this article, we discuss three key ethical issues arising from a recent photovoice study investigating men’s depression and suicide. The first issue, indelible images, details the complexity of consent and copyright when participant-produced photographs are shown at exhibitions and online where they can be copied and disseminated beyond the original scope of the research. The second issue, representation, explores the ethical implications that can arise when participants and others have discordant views about the deceased. The third, vicarious trauma, offers insights into the potenial for triggering mental health issues among researchers and viewers of the participant-produced photographs. Through a discussion of these ethical issues, we offer suggestions to guide the work of health researchers who use, or are considering the use of, photovoice.

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          Most cited references41

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          Photovoice: a review of the literature in health and public health.

          Although a growing number of projects have been implemented using the community-based participatory research method known as photovoice, no known systematic review of the literature on this approach has been conducted to date. This review draws on the peer-reviewed literature on photovoice in public health and related disciplines conducted before January 2008 to determine (a) what defines the photovoice process, (b) the outcomes associated with photovoice, and (c) how the level of community participation is related to photovoice processes and outcomes. In all, 37 unduplicated articles were identified and reviewed using a descriptive coding scheme and Viswanathan et al.'s quality of participation tool. Findings reveal no relationship between group size and quality of participation but a direct relationship between the latter and project duration as well as with getting to action. More participatory projects also were associated with long-standing relationships between the community and outside researcher partners and an intensive training component. Although vague descriptions of project evaluation practices and a lack of consistent reporting precluded hard conclusions, 60% of projects reported an action component. Particularly among highly participatory projects, photovoice appears to contribute to an enhanced understanding of community assets and needs and to empowerment.
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            Photovoice ethics: perspectives from Flint Photovoice.

            Photovoice is a participatory health promotion strategy in which people use cameras to document their health and work realities. As participants engage in a group process of critical reflection, they may advocate for change in their communities by using the power of their images and stories to communicate with policy makers. In public health initiatives from China to California, community people have used photovoice to carry out participatory needs assessment, conduct participatory evaluation, and reach policy makers to improve community health. This article begins to address ethical issues raised by the use of photovoice: the potential for invasion of privacy and how that may be prevented; issues in recruitment, representation, participation, and advocacy; and specific methodological techniques that should be used to minimize participants' risks and to maximize benefits. The authors describe lessons learned from the large-scale Flint Photovoice involving youth, adults, and policy makers.
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              Further than the eye can see? Photo elicitation and research with men.

              Photo elicitation studies have attracted modest attention in qualitative health research. However, few researchers have focused exclusively on men's health and/or illness experiences. In this article, the authors discuss the benefits of using photo elicitation among a sub-cohort of 19 prostate cancer survivors from a larger ethnographic study. Specifically, participants were asked to imagine that they were being paid to mount a photographic exhibition entitled Living With My Prostate Cancer, an exhibition that would show prostate cancer from their unique perspective. The authors subsequently discussed the photographs with the participants during individual interviews using photo elicitation techniques. The methods provided some unique and unanticipated benefits, the details of which the authors share to guide researchers considering similar approaches. In addition, the authors make specific recommendations for future photo elicitation applications to men's health research.
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                Author and article information

                Journal
                Qual Health Res
                Qual Health Res
                QHR
                spqhr
                Qualitative Health Research
                SAGE Publications (Sage CA: Los Angeles, CA )
                1049-7323
                29 September 2017
                February 2018
                : 28
                : 3 , Special Issue: Methods
                : 446-455
                Affiliations
                [1 ]University of British Columbia, Vancouver, British Columbia, Canada
                [2 ]University of New South Wales, Sydney, New South Wales, Australia
                Author notes
                [*]Genevieve Creighton, School of Nursing, University of British Columbia, 2176 Health Sciences Mall, Vancouver, British Columbia, Canada V6T 1Z3. Email: gcreighton@ 123456msfhr.org
                Article
                10.1177_1049732317729137
                10.1177/1049732317729137
                5764141
                28962540
                90de4bfd-221a-4c1d-ac4e-ab087ff911de
                © The Author(s) 2017

                This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License ( http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

                History
                Categories
                Methods—Ethics

                Medicine
                research evaluation, methodology,ethics,moral perspectives,qualitative,canada,north america,north americans,qualitative methods,research design, photography, photovoice,research strategies

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