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      Social/economic costs and health-related quality of life in patients with Prader-Willi syndrome in Europe.

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          Abstract

          The aim of this study was to determine the economic burden from a societal perspective and health-related quality of life (HRQOL) of patients with Prader-Willi syndrome (PWS) in Europe.

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          Author and article information

          Journal
          Eur J Health Econ
          The European journal of health economics : HEPAC : health economics in prevention and care
          Springer Nature America, Inc
          1618-7601
          1618-7598
          Apr 2016
          : 17 Suppl 1
          Affiliations
          [1 ] University of Castilla-La Mancha, Talavera de la Reina, Toledo, Spain. julio.lopezbastida@uclm.es.
          [2 ] Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain. julio.lopezbastida@uclm.es.
          [3 ] Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain.
          [4 ] Canary Islands Foundation for Health Research (FUNCANIS), Las Palmas de Gran Canaria, Spain.
          [5 ] University of Castilla-La Mancha, Toledo, Spain.
          [6 ] Institute of Rare Diseases Research (IIER), Spain RDR and CIBERER, Madrid, Spain.
          [7 ] Evaluation and Planning Service at Canary Islands Health Service, Santa Cruz de Tenerife, Spain.
          [8 ] London School of Economics and Political Science-Health Research Centre, London, UK.
          [9 ] National Center for Rare Diseases, Istituto superiore di sanità (ISS), Rome, Italy.
          [10 ] Centro di Ricerche Cliniche per Malattie Rare Aldo e Cele Daccò, Istituto di Ricerche Farmacologiche Mario Negri, Ranica, Bergamo, Italy.
          [11 ] Institute of Rare Diseases, Plovdiv, Bulgaria.
          [12 ] Department of Social Medicine and Public Health, Faculty of Public Health, Medical University of Plovdiv, Plovdiv, Bulgaria.
          [13 ] Department of Health Economics, Corvinus University of Budapest, Budapest, Hungary.
          [14 ] Federación Española de Enfermedades Raras (FEDER), Madrid, Spain.
          [15 ] Centre for Health Economics/Institute for Risk and Insurance, Leibniz University, Hannover, Germany.
          [16 ] The Swedish Institute for Health Economics, Lund, Sweden.
          [17 ] URC Eco Ile de France, AP-HP, Paris, France.
          [18 ] Université Paris Diderot, Sorbonne Paris Cité, ECEVE, UMRS 1123, Paris, France.
          [19 ] INSERM, ECEVE, U1123, Paris, France.
          [20 ] Centre for Research on Health and Social Care (CERGAS), Bocconi University, Milan, Italy.
          Article
          10.1007/s10198-016-0788-z
          10.1007/s10198-016-0788-z
          27038627
          9410480c-a715-4d33-9c9e-ee4aba6fb6a4
          History

          Economic burden,Health-related quality of life,Prader-Willi syndrome,Cost of illness

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