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      The quality of life when a partner has substance use problems: a scoping review

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          Abstract

          Objective

          To examine the existing body of knowledge on quality of life (QoL) in partners of people with substance use problems (PP-SUPs) to provide a synthesized summary of the evidence and identify gaps in our knowledge on the QoL of PP-SUPs .

          Methods

          A systematic scoping review was performed. Publications indexed in EMBASE, Medline, PsycINFO, CINAHL, SocINDEX, and CENTRAL were searched for original, empirical, peer-reviewed, full-length research papers that examined QoL in PP-SUPs. Research papers identified through a manual search of key references and known references by co-authors were also included. A total of 3070 abstracts were screened, 41 full-text papers examined, and nine were found to meet the inclusion criteria. Eligibility was determined in two steps by four and two independent researchers, respectively. The main findings were explored by content analysis.

          Results

          Eight of the nine included studies had quantitative designs, one had a mixed methods design, and no qualitative studies were found. Three studies were conducted exclusively among PP-SUPs, whereas the others included various subgroups. A majority of participants were women, and no study was conducted exclusively among men. Nearly half of the studies reported on whether there were minor children in the PP-SUPs’ household. The studies used established and generic QoL instruments based on different conceptual and theoretical perspectives on QoL. A majority of the studies found lower QoL in PP-SUPs than in general population, with substance use by the person with a SUP having the most impact on QoL of all evaluated factors. Two studies reported that gender was associated with QoL, with poor QoL being associated with being a male partner and vice versa for female partners.

          Conclusions

          Further research is needed to examine QoL in PP-SUPs exclusively. A variety of QoL instruments covering various, but limited, dimensions of the concept have been used in previous studies of PP-SUPs. Thus, obtaining a comprehensive understanding of PP-SUPs’ QoL is challenging. Both qualitative and large-scale quantitative designs should be used in research on QoL in PP-SUPs, particularly among those with a parenting role.

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          Most cited references28

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          Guidance for conducting systematic scoping reviews.

          Reviews of primary research are becoming more common as evidence-based practice gains recognition as the benchmark for care, and the number of, and access to, primary research sources has grown. One of the newer review types is the 'scoping review'. In general, scoping reviews are commonly used for 'reconnaissance' - to clarify working definitions and conceptual boundaries of a topic or field. Scoping reviews are therefore particularly useful when a body of literature has not yet been comprehensively reviewed, or exhibits a complex or heterogeneous nature not amenable to a more precise systematic review of the evidence. While scoping reviews may be conducted to determine the value and probable scope of a full systematic review, they may also be undertaken as exercises in and of themselves to summarize and disseminate research findings, to identify research gaps, and to make recommendations for the future research. This article briefly introduces the reader to scoping reviews, how they are different to systematic reviews, and why they might be conducted. The methodology and guidance for the conduct of systematic scoping reviews outlined below was developed by members of the Joanna Briggs Institute and members of five Joanna Briggs Collaborating Centres.
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            The estimation of a preference-based measure of health from the SF-12.

            The SF-12 is a multidimensional generic measure of health-related quality of life. It has become widely used in clinical trials and routine outcome assessment because of its brevity and psychometric performance, but it cannot be used in economic evaluation in its current form. We sought to derive a preference-based measure of health from the SF-12 for use in economic evaluation and to compare it with the original SF-36 preference-based index. The SF-12 was revised into a 6-dimensional health state classification (SF-6D [SF-12]) based on an item selection process designed to ensure the minimum loss of descriptive information. A sample of 241 states defined by the SF-6D (of 7500) have been valued by a representative sample of 611 members of the UK general population using the standard gamble (SG) technique. Models are estimated of the relationship between the SF-6D (SF-12) and SG values and evaluated in terms of their coefficients, overall fit, and the ability to predict SG values for all health states. The models have produced significant coefficients for levels of the SF-6D (SF-12), which are robust across model specification. The coefficients are similar to those of the SF-36 version and achieve similar levels of fit. There are concerns with some inconsistent estimates and these have been merged to produce the final recommended model. As for the SF-36 model, there is evidence of over prediction of the value of the poorest health states. The SF-12 index provides a useful tool for researchers and policy makers wishing to assess the cost-effectiveness of interventions.
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              Critique on the conceptualisation of quality of life: a review and evaluation of different conceptual approaches.

              Over the past decades, the concept of quality of life has been of paramount importance for evaluating the quality and outcome of health care. Despite its importance, there is still no consensus on the definition or proper measurement of quality of life. Several concept analyses of quality of life have been published. However, they appear to have had a rather limited impact on how empirical studies are conducted. Therefore, we present an overview and critique of different conceptualisations of quality of life, with the ultimate goal of making quality of life a less ambiguous concept. We also describe six conceptual problems. These problems were used as criteria to evaluate the appropriateness of different conceptualisations. This evaluation suggests that defining quality of life in terms of life satisfaction is most appropriate, because this definition successfully deals with all the conceptual problems discussed. The result of our concept evaluation was not surprising for it corroborated the results of several concept analyses and the findings of a structural equation modelling study. Based on the findings revealed by our review, we propose that the scientific community should revitalise the conceptual discussion on quality of life. Furthermore, our findings can assist researchers in developing more rigourous quality-of-life research.
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                Author and article information

                Contributors
                +47-381-32-600 , bente.b@sshf.no
                kim.foster@acu.edu.au
                anne.schanche.selbekk@rogaland-asenter.no
                magnhild.hoie@uia.no
                torleif.ruud@medisin.uio.no
                bente.weimand@ahus.no
                Journal
                Health Qual Life Outcomes
                Health Qual Life Outcomes
                Health and Quality of Life Outcomes
                BioMed Central (London )
                1477-7525
                20 November 2018
                20 November 2018
                2018
                : 16
                : 219
                Affiliations
                [1 ]ISNI 0000 0004 0627 3712, GRID grid.417290.9, Addiction Department, Research Unit, , Sørlandet Hospital HF, ; P.B. 416, 4604 Kristiansand, Norway
                [2 ]ISNI 0000 0001 2194 1270, GRID grid.411958.0, School of Nursing, Midwifery & Paramedicine, , Australian Catholic University, ; Victoria, Australia
                [3 ]NorthWestern Mental Health, Victoria, Australia
                [4 ]Department for Research and Development, Rogaland A-senter, Stavanger, Norway
                [5 ]ISNI 0000 0004 0417 6230, GRID grid.23048.3d, Department of Psychosocial Health, Faculthy of Health and Sports Science, , University of Agder, ; Grimstad, Norway
                [6 ]ISNI 0000 0004 1936 8921, GRID grid.5510.1, Institute of Clinical Medicine, , University of Oslo, ; Oslo, Norway
                [7 ]ISNI 0000 0000 9637 455X, GRID grid.411279.8, Division Mental Health Services, R&D Department, , Akershus University Hospital, ; 1478, Lørenskog, Norway
                [8 ]Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway
                Author information
                http://orcid.org/0000-0002-9949-5554
                Article
                1042
                10.1186/s12955-018-1042-4
                6245914
                30453992
                9cc5c497-bd62-4750-bd7e-05946097372e
                © The Author(s). 2018

                Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License ( http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver ( http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

                History
                : 1 June 2018
                : 1 November 2018
                Funding
                Funded by: Sørlandet hospital
                Funded by: Directorate for Health (Norway
                Categories
                Review
                Custom metadata
                © The Author(s) 2018

                Health & Social care
                quality of life,partners,substance use
                Health & Social care
                quality of life, partners, substance use

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