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      "Es algo que no se cuenta": relatos sobre pérdidas gestacionales en Youtube Translated title: "It's something you don't talk about": miscarriage testimonies on Youtube

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          Abstract

          RESUMEN: Objetivo: Analizar el contenido de los videos testimoniales sobre pérdidas gestacionales en Youtube en español para poder concluir si las narrativas se enmarcan en la lógica biomédica moderna o posmoderna de vivir esta situación de acuerdo a los postulados de Frank y Bauman. Métodos: Búsqueda sistemática de los vídeos en español desde 2011 a mayo de 2019, que contuvieran en su título las palabras clave "aborto" o "perdida gestacional", y que tuvieran más de 100.000 visualizaciones en Youtube desde su publicación, como criterios de inclusión. Visualización de los vídeos para su posterior análisis de contenido para detallar las características del canal, los motivos para contar la experiencia, el momento en que se cuentan, la interacción existente con las seguidoras, las etapas que se narran sobre el suceso y el lenguaje utilizado para relatarlo. Resultados Se encontraron nueve youtubers que cumplieron los criterios de inclusión, y un total de diez vídeos que recogían relatos sobre pérdidas gestacionales. Sólo dos de los nueve canales estaban centrados exclusivamente en la maternidad. Los relatos se inscriben en una lógica biomédica posmoderna, por la necesidad manifiesta de explicar el suceso online, el reconocimiento de la fase del duelo, y la poca presencia del lenguaje de la supervivencia. Conclusiones Este estudio muestra que la necesidad de explicar la experiencia online responde a la decisión de visibilizarla y de servir de apoyo a otras mujeres. Los resultados de este estudio pueden ser de utilidad para los/as profesionales de Enfermería que en su práctica clínica tienen contacto directo con las mujeres que han sufrido pérdidas gestacionales.

          Translated abstract

          ABSTRACT: Objective: To analyze the content of testimonial videos about pregnancy loss in Spanish on YouTube, so as to explore whether such narratives are framed in relation to the modern or postmodern biomedical logic of this experience as formulated by Frank and Bauman. Methods: Systematic search of videos in Spanish from 2011 to May 2019, using the following inclusion criteria: contain the key words miscarriage or pregnancy loss in their title and have had more than 100,000 views on YouTube since their publication. To enable further content analysis, the videos were viewed to detail the characteristics of the publication channel in each case and to catalog their contents in terms of reasons for talking about the experience, the time chosen to tell the story, interaction with followers, the stages in the narrative, and the language used. Results: We identified nine YouTubers that met the inclusion criteria, comprising a total of ten videos. Only two of the nine channels focused exclusively on motherhood. The stories are inscribed in a postmodern biomedical logic, due to the clear need to explain the traumatic event online, the recognition of the grief phase, and the limited use of survival language. Conclusions: This study shows that the need to talk about the experience online is motivated by a decision to make the experience visible and offer support to other women. The results of this study may be useful to nursing professionals whose clinical practice involves caring for women who have suffered pregnancy loss.

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          Naturally Occurring Peer Support through Social Media: The Experiences of Individuals with Severe Mental Illness Using YouTube

          Increasingly, people with diverse health conditions turn to social media to share their illness experiences or seek advice from others with similar health concerns. This unstructured medium may represent a platform on which individuals with severe mental illness naturally provide and receive peer support. Peer support includes a system of mutual giving and receiving where individuals with severe mental illness can offer hope, companionship, and encouragement to others facing similar challenges. In this study we explore the phenomenon of individuals with severe mental illness uploading videos to YouTube, and posting and responding to comments as a form of naturally occurring peer support. We also consider the potential risks and benefits of self-disclosure and interacting with others on YouTube. To address these questions, we used qualitative inquiry informed by emerging techniques in online ethnography. We analyzed n = 3,044 comments posted to 19 videos uploaded by individuals who self-identified as having schizophrenia, schizoaffective disorder, or bipolar disorder. We found peer support across four themes: minimizing a sense of isolation and providing hope; finding support through peer exchange and reciprocity; sharing strategies for coping with day-to-day challenges of severe mental illness; and learning from shared experiences of medication use and seeking mental health care. These broad themes are consistent with accepted notions of peer support in severe mental illness as a voluntary process aimed at inclusion and mutual advancement through shared experience and developing a sense of community. Our data suggest that the lack of anonymity and associated risks of being identified as an individual with severe mental illness on YouTube seem to be overlooked by those who posted comments or uploaded videos. Whether or not this platform can provide benefits for a wider community of individuals with severe mental illness remains uncertain.
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            Psychological morbidity following miscarriage.

            Emerging evidence has suggested that miscarriage could be associated with significant and possibly enduring psychological consequences. As many as 50% of miscarrying women suffer some form of psychological morbidity in the weeks and months after loss. About 40% of miscarrying women were found to be suffering from symptoms of grief shortly after miscarriage, and pathological grief can follow. Elevated anxiety and depressive symptoms are common, and major depressive disorder has been reported in 10-50% after miscarriage. Psychological symptoms could persist for 6 months to 1 year after miscarriage. The underlying risk factors predisposing a miscarrying woman to psychological morbidity include a history of psychiatric illness, childlessness, lack of social support or poor marital adjustment, prior pregnancy loss, and ambivalence toward the fetus. In addition, care-givers should be aware of the possible moderating effect of clinical practices such as surgical treatment and ultrasound findings on the psychological impact on a miscarrying woman. Unlike in postpartum depression, simple and effective screening measures of psychological morbidity in the context of miscarriage have not been well established. While studies have highlighted that psychological follow-up was highly desired by miscarrying women, and that psychological intervention was potentially beneficial, there is a substantial lack of randomized controlled intervention studies in this area.
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              Changing bodies, changing narratives and the consequences of tellability: a case study of becoming disabled through sport.

              This article explores the life story of a young man who experienced a spinal cord injury (SCI) and became disabled though playing the sport of rugby union football. His experiences post SCI illuminate the ways in which movement from one form of embodiment to another connects him to a dominant cultural narrative regarding recovery from SCI that is both tellable and acceptable in terms of plot and structure to those around him. Over time, the obdurate facts of his impaired and disabled body lead him to reject this dominant narrative and move into a story line that is located on Norrick's (2005) upper-bounding side of tellability. This makes it transgressive, frightening, difficult to hear, and invokes the twin processes of deprivation of opportunity and infiltrated consciousness as described by Nelson (2001). These, and the effects of impairment, are seen to have direct consequences for the tellability of embodied experiences along with identity construction and narrative repair over time. Finally, some reflections are offered on how the conditions that negate the telling of his story might be challenged.
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                Author and article information

                Journal
                eg
                Enfermería Global
                Enferm. glob.
                Universidad de Murcia (Murcia, Murcia, Spain )
                1695-6141
                2020
                : 19
                : 59
                : 193-213
                Affiliations
                [1] orgnameUnversidad de Lérida España erica.briones@ 123456dif.udl.cat
                Article
                S1695-61412020000300193 S1695-6141(20)01905900193
                10.6018/eglobal.394321
                9e26dfd1-8671-424e-888b-84d915927703

                This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 International License.

                History
                : 17 January 2020
                : 30 August 2019
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 31, Pages: 21
                Product

                SciELO Spain

                Categories
                Originales

                experiencias personales,Youtube,duelo,aborto,content analysis,miscarriage,grief,personal experiences,análisis de contenido,motherhood,maternidad,pérdida gestacional

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