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      Evaluación de la calidad de vida en Esclerosis Múltiple a través del MSQOL-54 y su relación con la salud de la persona Translated title: Assessment of Quality of Life in Multiple Sclerosis through the MSQOL-54 and its relation to the health of the caregiver

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          Abstract

          RESUMEN: Objetivo: El objetivo del presente estudio fue evaluar la Calidad de Vida Relacionada con la salud (CVRS) en personas con Esclerosis Múltiple (EM) mediante el cuestionario MSQOL-54 y analizar su relación con la salud de las personas cuidadoras principales a través del cuestionario GHQ-12 y un cuestionario de salud física autopercibida. Metodología: Se evaluó a 115 personas con diagnóstico de EM y a 79 personas cuidadoras principales. Resultados: Los resultados obtenidos señalan la significativa afectación de la CVRS de las personas con EM y su relación con la salud de las personas cuidadoras principales. Se encontraron relaciones significativas entre la salud física y mental de la persona con EM y un mayor número de enfermedades, peor salud mental y menor autopercepción de salud en la persona cuidadora. Conclusiones: Los resultados obtenidos señalan la significativa afectación de la CVRS de las personas con EM y su relación directa con la salud de las personas cuidadoras principales.

          Translated abstract

          ABSTRACT: Objective: The aim of the present study was to evaluate the health-related quality of life (HRQoL) in patients with Multiple Sclerosis (MS) through the MSQOL-54 questionnaire and to analyse its relationship with the health of primary caregivers through the GHQ-12 questionnaire and a questionnaire on self-perceived physical health. Materials and Methods: A total of 115 subjects diagnosed with MS and 79 primary caregivers were evaluated. Results: The results obtained show the significance of effects on HRQoL of patients with MS and its relationship to the health of primary caregivers. Significant relationships were found between the physical and mental health of the person with MS and an increased number of illnesses, poorer mental health and lower self-perception of health in the caregiver. Conclusions: The results obtained point to the significant impairment of the HRQoL of people with MS, and its direct relationship with the health of primary caregivers.

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          The 12-Item General Health Questionnaire (GHQ-12): reliability, external validity and factor structure in the Spanish population.

          Virginia Dresch, M Sánchez (2008)
          The purpose of this study was to analyze the internal consistency and the external and structure validity of the 12-Item General Health Questionnaire (GHQ-12) in the Spanish general population. A stratified sample of 1001 subjects, ages between 25 and 65 years, taken from the general Spanish population was employed. The GHQ-12 and the Inventory of Situations and Responses of Anxiety-ISRA were administered. A Cronbach's alpha of .76 (Standardized Alpha: .78) and a 3-factor structure (with oblique rotation and maximum likelihood procedure) were obtained. External validity of Factor I (Successful Coping) with the ISRA is very robust (.82; Factor II, .70; Factor III, .75). The GHQ-12 shows adequate reliability and validity in the Spanish population. Therefore, the GHQ-12 can be used with efficacy to assess people's overall psychological well-being and to detect non-psychotic psychiatric problems. Additionally, our results confirm that the GHQ-12 can best be thought of as a multidimensional scale that assesses several distinct aspects of distress, rather than just a unitary screening measure.
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            A health-related quality of life measure for multiple sclerosis.

            B Vickrey, R Hays, R Harooni … (1995)
            The need for measures of health-related quality of life (HRQOL) for clinical effectiveness research and for quality of care research, particularly for chronic diseases, is increasingly recognized. We assessed a measure of HRQOL for people with multiple sclerosis, a chronic neurological condition. We used the RAND 36-Item Health Survey 1.0 (aka SF-36) as a generic core measure, to enable comparisons of HRQOL of patients with multiple sclerosis to those of other patient populations and to the general population. To enhance comparisons within groups of multiple sclerosis patients, these items were supplemented with 18 additional items in the areas of health distress (four items), sexual function (four items), satisfaction with sexual function (one item), overall quality of life (two items), cognitive function (four items), energy (one item), pain (one item), and social function (one item). The final measure, the Multiple Sclerosis Quality of Life (MSQOL)-54 Instrument, contains 52 items distributed into 12 scales, and two single items. Internal consistency reliability estimates for the 12 multi-item scales ranged from 0.75 to 0.96 in a sample of 179 patients with multiple sclerosis. Test-retest intraclass correlation coefficients ranged from 0.66 to 0.96. Exploratory factor analysis confirmed two underlying dimensions of physical health and mental health. Construct validity was supported by significant associates between MSQOL-54 scales and degree of multiple sclerosis symptom severity in the prior year, level of ambulation, employment limitations due to health, admission to hospital in the previous year, and depressive symptoms.
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              Gender Differences in Caregiver Stressors, Social Resources, and Health: An Updated Meta-Analysis

              M Pinquart, S. Sorensen (2006)
              Article 0 comments Cited 106 times – based on 0 reviews     Review now
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                Author and article information

                Journal
                Journal ID (publisher-id): eg
                Title: Enfermería Global
                Abbreviated Title: Enferm. glob.
                Publisher: Universidad de Murcia (Murcia, Murcia, Spain )
                ISSN (Electronic): 1695-6141
                Publication date (Print and electronic): 2021
                Volume: 20
                Issue: 64
                Pages: 217-249
                Affiliations
                [2] Murcia orgnameHospital Clínico Universitario Virgen de la Arrixaca España
                [1] Murcia orgnameUniversidad de Murcia Spain liminana@ 123456um.es
                Article
                Publisher ID: S1695-61412021000400217 Publisher ID: S1695-6141(21)02006400217
                DOI: 10.6018/eglobal.474161
                SO-VID: a53b596f-9de9-40d7-a1bb-1bf0dd7d4e82
                License:

                This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 International License.

                History
                Date accepted : 10 July 2021
                Date received : 23 March 2021
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 31, Pages: 33
                Product

                SciELO Spain

                Categories
                Subject: Originales

                Keywords: multiple sclerosis,salud mental,cuidadores,calidad de vida relacionada con la salud,calidad de vida,esclerosis múltiple,mental health,caregivers,health-related quality of life,quality of life
                Data availability:
                Keywords: multiple sclerosis, salud mental, cuidadores, calidad de vida relacionada con la salud, calidad de vida, esclerosis múltiple, mental health, caregivers, health-related quality of life, quality of life

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