28
views
0
recommends
+1 Recommend
0 collections
    0
    shares
      • Record: found
      • Abstract: not found
      • Article: not found

      More than Tuskegee: Understanding Mistrust about Research Participation

      Read this article at

      ScienceOpenPublisherPMC
      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          This paper describes results of a qualitative study that explored barriers to research participation among African American adults. A purposive sampling strategy was used to identify African American adults with and without previous research experience. A total of 11 focus groups were conducted. Groups ranged in size from 4-10 participants (N=70). Mistrust of the health care system emerged as a primary barrier to participation in medical research among participants in our study. Mistrust stems from historical events including the Tuskegee syphilis study and is reinforced by health system issues and discriminatory events that continue to this day. Mistrust was an important barrier expressed across all groups regardless of prior research participation or socioeconomic status. This study illustrates the multifaceted nature of mistrust, and suggests that mistrust remains an important barrier to research participation. Researchers should incorporate strategies to reduce mistrust and thereby increase participation among African Americans.

          Related collections

          Author and article information

          Journal
          Journal of Health Care for the Poor and Underserved
          Journal of Health Care for the Poor and Underserved
          Project Muse
          1548-6869
          August 2010
          August 2010
          : 21
          : 3
          : 879-897
          Article
          10.1353/hpu.0.0323
          4354806
          20693733
          a6dc35ee-d75d-4959-9358-3d69417827fe
          © 2010
          History

          Comments

          Comment on this article