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      Palliative care made visible: Developing a rural model for the Western Cape Province, South Africa

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          Abstract

          Introduction

          Caring for people with life-threatening illnesses is a key part of working in health care. While South Africa launched the National Policy Framework and Strategy for Palliative Care 2017–2022, integrating palliative care into existing public health care is in its infancy. Most patients in the Western Cape have poor access to palliative care, an inequality felt hardest by those living in rural areas.

          Building the model

          In 2018, with district wide institutional managerial support, a palliative care model for rural areas was initiated in the Western Cape. The process involved setting up hospital- and community-based multi-professional palliative care teams, initiating weekly palliative care ward rounds, training champions in palliative care and raising awareness of palliative care and its principles.

          Discussion

          Establishing regular ward rounds has changed the way patients needing palliative care are managed, particularly in challenging the mindsets of specialist departments. The emergence of the multi-professional team listening and planning together at the patient’s bedside has restored some of the dignity and ethos of patient-centred care, which is a core principle of the provincial Health Care 2030 vision.

          Conclusion

          In a short time period, we have managed to build a service that aims to improve care for palliative patients in rural areas. Its strength lies in a multi-professional patient-centred approach and improved communication between different components of the health system, providing a more seamless service that supports patients when they need it most.

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          Most cited references10

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          Changing how we think about healthcare improvement

          Complexity science offers ways to change our collective mindset about healthcare systems, enabling us to improve performance that is otherwise stagnant, argues Jeffrey Braithwaite
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            Development and evaluation of the Supportive and Palliative Care Indicators Tool (SPICT): a mixed-methods study

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              Community health workers lensed through a South African backdrop of two peri-urban communities in KwaZulu-Natal

              Background As the South African government re-engineers primary healthcare (PHC), the need for additional information on stakeholders involved in the process has emerged. Of these are community health workers (CHWs), who have been identified as central to PHC success. Objectives To profile the current CHWs within KwaDabeka and Clermont in KwaZulu-Natal, to describe their roles and to explore the barriers and enablers influencing their service delivery. Method A convergent mixed methods design was employed with a sample of CHWs with the use of a survey ( n = 53) and two focus groups ( n = 10) and semi-structured interviews with four ward councillors ( n = 4). Data were analysed statistically and thematically. Results The profile of CHWs reflected only women with a mixed age range and a majority of 59% who had not completed formal schooling. General work experience as a CHW varied. There were diverse opinions expressed towards the CHW role which related to their job title and identity, supervision, remuneration, growth pathways and psychological and emotional issues. Whilst the National Community Health Worker Profile Framework was established for the CHW programme, there are several factors lacking in the current CHW programme such as a formal growth pathway or formal training to align the CHWs with the National Qualifications Framework. Conclusion The study findings are essential for the monitoring and evaluation as well as development and refinement of policies that will assist in ensuring adequate rollout of PHC with CHWs.
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                Author and article information

                Journal
                Afr J Prim Health Care Fam Med
                Afr J Prim Health Care Fam Med
                PHCFM
                African Journal of Primary Health Care & Family Medicine
                AOSIS
                2071-2928
                2071-2936
                31 October 2019
                2019
                : 11
                : 1
                : 2147
                Affiliations
                [1 ]Improving Global Health, National Health Services, Thames Valley and Wessex Leadership Academy, Winchester, United Kingdom
                [2 ]Department of Family and Emergency Medicine, Western Cape Department of Health, George Regional Hospital, Garden Route District, George, South Africa
                [3 ]Department of Family and Emergency Medicine, Faculty of Health Sciences, Stellenbosch University, South Africa
                [4 ]Division of Primary Health Care, University of Cape Town, Cape Town, South Africa
                [5 ]Western Cape Department of Health, George Regional Hospital, Garden Route District, George, South Africa
                [6 ]Department of Palliative Care, Knysna Sedgefield Hospice, Knysna, South Africa
                [7 ]Western Cape Department of Health, Garden Route and Central-Karoo Districts, George, South Africa
                Author notes
                Corresponding author: Louis Jenkins, louis.jenkins@ 123456westerncape.gov.za
                Author information
                https://orcid.org/0000-0002-0133-274X
                https://orcid.org/0000-0002-3221-8683
                https://orcid.org/0000-0002-1188-429X
                https://orcid.org/0000-0002-3749-6033
                https://orcid.org/0000-0003-1678-8253
                https://orcid.org/0000-0003-2706-9764
                https://orcid.org/0000-0002-2407-2987
                Article
                PHCFM-11-2147
                10.4102/phcfm.v11i1.2147
                6852428
                31714129
                aa540935-f2f1-46a5-b545-5bbaaec0eb81
                © 2019. The Authors

                Licensee: AOSIS. This work is licensed under the Creative Commons Attribution License.

                History
                : 17 May 2019
                : 15 August 2019
                Categories
                Opinion Paper

                family medicine,rural health,palliative care,integrated care,multi-professional

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