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      Proceso de adaptación al castellano del Charing Cross Venous Ulcer Questionnaire (CCVUQ) para medir la calidad de vida relacionada con la salud en pacientes con úlceras venosas Translated title: Spanish adaptation process of the Charing Cross Venous Ulcer Questionnaire (CCVUQ) to measure the quality of life related to health in patients with venous ulcers

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          Abstract

          Introducción: la medición de la calidad de vida relacionada con la salud (CVRS) permite, en gran medida, contribuir a mejorar la calidad del cuidado. Se ha constatado que la CVRS de las personas con úlceras venosas (UV) está afectada negativamente. Los instrumentos específicos que miden CVRS en estas personas no están disponibles en castellano. Por tanto, se hace necesario disponer de algún instrumento de este tipo adaptado y validado en este idioma. El objetivo de este estudio es la adaptación transcultural al castellano de uno de estos instrumentos, en concreto el Charing Cross Venous Ulcer Questionnaire (CCVUQ). Material y método: la versión original del cuestionario CCVUQ, que incluye 20 preguntas, se ha adaptado al castellano siguiendo la metodología de traducción y retrotraducción y el establecimiento de equivalencias semánticas culturales. En el proceso de adaptación han participado un grupo de expertos en heridas crónicas y un grupo de pacientes con estas lesiones. Resultados: se obtuvo una versión satisfactoria del cuestionario CCVUQ traducida y adaptada culturalmente a España, con la realización de ajustes considerados menores a las preguntas originales, pero necesarios para la comprensión de la población local, a fin de guardar la equivalencia semántica y conceptual de la versión original. Discusión y conclusiones: la versión española del CCVUQ es semántica y culturalmente equivalente a la versión original inglesa. Es un instrumento con preguntas sencillas que durante el proceso sufrió modificaciones a partir de los aportes y las sugerencias de expertos y de los pacientes, que no afectó a su esencia, y que ha permitido contar con una versión pre-test adecuada, adaptada al idioma español y a la cultura española. En una fase posterior, se llevará a cabo una investigación con el fin de validar y testar las propiedades psicométricas del instrumento adaptado al español.

          Translated abstract

          Introduction: the measurement of quality of life related to health (HRQOL) allows greatly contribute to improving the quality of care. It has been found that the HRQOL of persons with venous ulcers (UV) is adversely affected. The specific instruments that measure HRQL in These people are not available in Spanish. Therefore, it is need for such an instrument adapted and validated in Spanish. The aim of this study is the cultural adaptation to Spanish in one of these instruments, namely the Charing Cross Venous Ulcer Questionnaire (CCVUQ). Materials and methods: the original version of the questionnaire CCVUQ, which includes 20 questions, has been adapted into Spanish following the methodology of translation and back-translation and the establishment of cultural semantic equivalences. In the adaptation process has involved a group of experts in chronic wounds and a group of patients with these lesions. Results: we obtained a satisfactory version of the questionnaire translated and adapted culturally CCVUQ Spain, with the realization of "minor adjustments to the original questions, but necessary for the understanding of the local population in order to save the semantic and conceptual equivalence of the original version. Discussion and conclusions: the Spanish version of CCVUQ is semantically and culturally equivalent to the original English version. It is an instrument with simple questions during the process has been altered from the contributions and suggestions from experts and patients, which did not affect their essence, and that has ensured an adequate pre-test version, adapted to the Spanish language and Spanish culture. At a later stage will be carried out an investigation to validate and test the psychometric properties adapted to Spanish.

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          Measuring the quality of life in patients with venous ulcers.

          This prospective study aimed to validate a newly designed specific measure of quality of life for patients with venous ulcers. The study was set in a London teaching hospital and surrounding community clinics. Items for the questionnaire were selected by means of patient interviews, a literature review, and expert opinion. The questionnaire and the Short Form 36-item (SF-36) Health Survey were given to a prospective consecutive cohort of 98 patients with proven venous ulcers that were diagnosed by means of clinical and color duplex examination. Fifty-eight of the patients were women (60%), and the median age of patients was 76 years. The questionnaire was assessed for reliability, validity, and responsiveness. The ulcer-specific questionnaire showed good reliability, as assessed by means of the internal consistency (Cronbach alpha = 0.93) and test-retest analysis (r = 0.84). Factor analysis identified four important health factors: social function, domestic activities, cosmesis, and emotional status. Validity was demonstrated by means of a high correlation with all eight domains of the SF-36 general health measure (r > 0.55, P <.001). Responsiveness was demonstrated by means of a significant reduction in the score on the ulcer questionnaire as ulcers healed at 6 and 11 weeks (P <.05). Good evidence exists that a clinically derived measure for patients with venous ulcers has validity to measure the quality of life.
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            Living with leg ulceration: a synthesis of qualitative research.

            This paper is a report of a study to identify and synthesize all published qualitative research studies exploring patients' experiences of living with a leg ulcer. Leg ulceration is a common chronic condition with over 40% of patients having open ulceration for over a year. Leg ulceration can have a significant and detrimental effect on a persons' life. Electronic searches of Ovid MEDLINE (R) (1966-2005), CINAHL (1982-2005), EMBASE (1980-2005), British Nursing Index (1985-2005), ASSIA, Social Science Citation Index (SSCI) and PsychINFO (1985-2005) were carried out in June 2005. Studies were included if: they described experience of living with a leg ulcer, e.g. phenomenological studies, grounded theory, descriptive, focus groups or interview studies; included adults with chronic leg ulceration (venous, mixed or arterial); published in English. Analysis was undertaken using the Qualitative Assessment and Review Instrument software for synthesis of qualitative research. Twelve studies met the inclusion criteria. There were eight phenomenological studies, two using grounded theory and two 'descriptive studies'. The location of the research was United Kingdom (7), United States of America (2), Sweden (1), Australia (1). Five common themes related to the experience of living with leg ulceration were identified: Physical effects of leg ulceration; Describing the leg ulcer journey; Patient-professional relationships; Cost of a leg ulcer; Psychological impact. Leg ulceration should be viewed as a chronic, debilitating condition. The clinical focus of care should be symptom management through the 'leg ulcer journey'.
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              Measuring the impact of venous leg ulcers on quality of life.

              To identify health-related quality-of-life (HRQoL) issues in patients with venous leg ulcers, with the aim of generating items for a treatment outcome measure. Thirty-eight patients with venous leg ulcers were interviewed by a psychologist using a semi-structured guide; they also completed a HRQoL questionnaire (modified Skindex). Data from the questionnaire were examined to explore the impact of venous leg ulcers on patients' lives. Interview transcripts were analysed using qualitative methods to identify additional venous leg ulcer-specific HRQoL items. Skindex scores indicated that older patients had worse HRQoL (p<0.05), as did those with pain and non-healing ulcers. Ulcer duration and size did not correlate with HRQoL. Interviews revealed the following effects of ulceration: pain (80.5%); itching (69.4%); altered appearance (66.7%); loss of sleep (66.6%); functional limitation (58.3%); and disappointment with treatment (50%). Based on the interview transcripts, items were generated and discussed with an expert panel, with a view to including them in a venous leg ulcer-specific HRQoL questionnaire. Disease-specific HRQoL outcome measures should be considered when evaluating treatments for venous leg ulcers.
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                Author and article information

                Contributors
                Role: ND
                Role: ND
                Journal
                geroko
                Gerokomos
                Gerokomos
                Idemm Farma, S.L. (Barcelona, Barcelona, Spain )
                1134-928X
                June 2010
                : 21
                : 2
                : 80-87
                Affiliations
                [01] orgnameUniversidad Nacional de Colombia orgdiv1Facultad de Enfermería Colombia
                [02] Alicante orgnameUniversidad de Alicante orgdiv1Departamento de Enfermería Comunitaria, Medicina Preventiva y Salud Pública e História de la Ciencia
                [06] orgnameConferencia Nacional de Consenso sobre las Úlceras de la Extremidad Inferior (CONUEI)
                [05] orgnameEuropean Wound Management Association (EWMA)
                [03] orgnameGrupo Nacional para el Estudio y Asesoramiento en Úlceras por Presión y Heridas Crónicas (GNEAUPP)
                [04] orgnameEuropean Pressure Ulcer Advisory Panel (EPUAP)
                Article
                S1134-928X2010000200007
                10.4321/s1134-928x2010000200007
                ad33fe07-6945-410d-8321-77328ee60d29

                This work is licensed under a Creative Commons Attribution-NonCommercial 3.0 International License.

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                Figures: 0, Tables: 0, Equations: 0, References: 23, Pages: 8
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                SciELO Spain


                Calidad de vida relacionada con salud,instrumentos,adaptación transcultural,heridas,úlceras venosas,úlceras de pierna,Quality of life related to health,instruments,cultural adaptation,wounds,ulcers,venous leg ulcers

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