Rare Disease Terminology and Definitions-A Systematic Global Review: Report of the ISPOR Rare Disease Special Interest Group.

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Abstract

At present, there is no universal definition of rare disease.

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Author and article information

Journal

Journal ID (iso-abbrev): Value Health

Title: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research

ISSN (Electronic): 1524-4733

ISSN (Print): 1098-3015

Publication date (Electronic): Sep 2015

Volume: 18

Issue: 6

Affiliations

[1 ] Canadian Agency for Drugs & Technologies in Health (CADTH), Ottawa, Ontario, Canada. Electronic address: trevorr@cadth.ca.

[2 ] Roboleo & Co, York, UK.

[3 ] St. Elizabeth University, Bratislava, Slovakia.

[4 ] Celgene Corporation, Summit, NJ, USA.

[5 ] International Society for Pharmacoeconomics and Outcomes Research (ISPOR), South Lawrenceville, NJ, USA.

[6 ] Center for Health Economics and Medicines Evaluation, Bangor University, Wales, UK.

Article

Publisher Item ID: S1098-3015(15)01979-8

DOI: 10.1016/j.jval.2015.05.008

PubMed ID: 26409619

SO-VID: ae3fc000-4454-4bf5-a70c-f5ede48dbf63

History

Keywords: orphan drugs,prevalence,rare disease,terminology

Data availability:

Keywords: orphan drugs, prevalence, rare disease, terminology

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