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      Integrating Symptoms Into the Middle-Range Theory of Self-Care of Chronic Illness

      research-article
      , PhD, RN, FAAN, , PhD, RN, FAAN, , PhD, RN, FAAN, , PhD, RN, FAAN
      Ans. Advances in Nursing Science
      Wolters Kluwer Health, Inc.
      nursing theory, self-care, symptoms

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          Abstract

          The Middle-Range Theory of Self-Care of Chronic Illness has been used widely since it was first published in 2012. With the goal of theoretical refinement in mind, we evaluated the theory to identify areas where the theory lacked clarity and could be improved. The concept of self-care monitoring was determined to be underdeveloped. We do not yet know how the process of symptom monitoring influences the symptom appraisal process. Also, the manner in which self-care monitoring and self-care management are associated was thought to need refinement. As both of these issues relate to symptoms, we decided to enrich the Middle-Range Theory with knowledge from theories about symptoms. Here, we propose a revision to the Middle-Range Theory of Self-Care of Chronic Illness where symptoms are clearly integrated with the self-care behaviors of self-care maintenance, monitoring, and management.

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          Most cited references63

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          A middle-range theory of self-care of chronic illness.

          Nearly 50% of adults have one or more chronic illnesses. Self-care is considered essential in the management of chronic illness, but the elements of self-care in this context have not been specified in a middle-range theory. This article describes a middle-range theory of self-care that addresses the process of maintaining health with health promoting practices within the context of the management required of a chronic illness. The key concepts include self-care maintenance, self-care monitoring, and self-care management. Assumptions and propositions of the theory are specified. Factors influencing self-care including experience, skill, motivation, culture, confidence, habits, function, cognition, support from others, and access to care are described.
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            Advancing the science of symptom management.

            Since the publication of the original Symptom Management Model (Larson et al. 1994), faculty and students at the University of California, San Francisco (UCSF) School of Nursing Centre for System Management have tested this model in research studies and expanded the model through collegial discussions and seminars. In this paper, we describe the evidence-based revised conceptual model, the three dimensions of the model, and the areas where further research is needed. The experience of symptoms, minor to severe, prompts millions of patients to visit their healthcare providers each year. Symptoms not only create distress, but also disrupt social functioning. The management of symptoms and their resulting outcomes often become the responsibility of the patient and his or her family members. Healthcare providers have difficulty developing symptom management strategies that can be applied across acute and home-care settings because few models of symptom management have been tested empirically. To date, the majority of research on symptoms was directed toward studying a single symptom, such as pain or fatigue, or toward evaluating associated symptoms, such as depression and sleep disturbance. While this approach has advanced our understanding of some symptoms, we offer a generic symptom management model to provide direction for selecting clinical interventions, informing research, and bridging an array of symptoms associated with a variety of diseases and conditions. Finally, a broadly-based symptom management model allows the integration of science from other fields.
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              Delay in seeking a cancer diagnosis: delay stages and psychophysiological comparison processes.

              Two analyses of patient delay in seeking a medical diagnosis are considered. In the first, a model of delay is presented. Specifically, delay is comprised of four stages (appraisal, illness, behavioural and scheduling delay intervals), each governed by a conceptually distinct set of decisional and appraisal processes beginning with the initial day that an unexplained symptom is detected to the day the individual appears before a physician. The second analysis is a social psychological one of the attributions individuals draw when relating their symptoms to their expectations and knowledge about physiological bodily processes. The eight principles of Psychophysiological Comparison Theory (PCT) provide the basis for clarifying the psychological processes of symptom interpretation and appraisal. Two studies were conducted with women seeking diagnostic evaluations for prevalent cancers: breast or gynaecological tumours. Regarding the delay model, results indicated that the delay intervals were independent (i.e. uncorrelated). Also, appraisal delay constituted the majority (at least 60 per cent) of the total delay. In the test of PCT, support was found across measures of symptoms, the context in which the symptoms arose, and the inferences people made about the symptoms.
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                Author and article information

                Journal
                ANS Adv Nurs Sci
                ANS Adv Nurs Sci
                AINS
                Ans. Advances in Nursing Science
                Wolters Kluwer Health, Inc.
                0161-9268
                1550-5014
                July 2019
                30 July 2019
                : 42
                : 3
                : 206-215
                Affiliations
                School of Nursing, University of Pennsylvania, Philadelphia (Dr Riegel); Department of Social and Welfare Studies (Dr Jaarsma), and Department of Medical and Health Sciences, Division of Nursing (Dr Strömberg), Linköping University, Linköping, Sweden; and Connell School of Nursing, Boston College, Boston, Massachusetts (Dr Lee).
                Author notes
                [*] Correspondence: Barbara Riegel, PhD, RN, FAAN, School of Nursing, University of Pennsylvania, 418 Curie Blvd, Philadelphia, PA 19104 ( briegel@ 123456nursing.upenn.edu ).
                Article
                ains4203p206
                10.1097/ANS.0000000000000237
                6686959
                30475237
                b120936d-b700-401c-8771-1fad9d552a39
                © 2019 The Authors. Published by Wolters Kluwer Health, Inc.

                This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.

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                nursing theory,self-care,symptoms
                nursing theory, self-care, symptoms

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